Essential Tremor - Blog Posts
My ass may be chronic but my pain is iconic.
Question for Service Dog handlers: How does your dog tell you they need to use the bathroom when you're inside for a long time? And how were they taught?
You don't know shame until you are almost crying in Millennium Park because of your body not being able to keep up with the people you are with.
I fucking hate my body.
Good morning
I still feel like a dream
I can't seem to hold things very well and am constantly dropping things.
This is scary.
I don't feel real.
Has anyone else experienced this?
I need help.
I feel like everything is a dream and I can't comprehend what people are saying to me.
My SDIT has helped to ground me, but I still feel extremely dizzy.
I am hallucinating a small, wiggly man
I can't walk in a straight line and an so thirsty.
Am going to bed.
I don't feel real.
Has anyone else experienced this?
I need help.
I feel like everything is a dream and I can't comprehend what people are saying to me.
My SDIT has helped to ground me, but I still feel extremely dizzy.
I am hallucinating a small, wiggly man
I can't walk in a straight line and an so thirsty.
Am going to bed.
Stranger: Ooh, look, a dog.
Me:
Stranger: *makes kissy noises to my dog.*
Me:
Stranger: *BARKS at my dog.*
Me:
Stranger: Oh, it's an emotional support dog.
Me: Actually-
I had a doctor tell me that my hip pain, visual blackouts, dizziness, fatigue, and all my other symptoms were just essential tremors.
Tell me your medical gaslighting story.
Tell me your medical gaslighting story.
The less I sleep, the more will to live I lose.
This Barbie feels like she has been thrown down a flight of stairs.
I just sneezed and my ass crack popped
Let me tell y'all about these pencil weights. They are absolutly a life (and wrist) saver. They are the only weights that I have found that are adjustable. They are also really pretty and allow me to use a normal pencil.
https://www.amazon.com/gp/product/B0BGRXY4G8/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&th=1
The worst thing about school is it makes me feel like my health problems need to come second. Even with a 504 plan, I still end up falling behind and have to force myself to suffer to get things done.
In a world of ableism, Lego Friends is showing their pride by creating disabled characters. Luna is a girl in a wheelchair who absolutely shreds it at the skate park. They also have an amputee who rides horses and a gardener with vitiligo.
I saw a girl who looked like me in a wheelchair and had to get her. I plan to customize her to look like me.
https://reviewed.usatoday.com/accessibility/features/lego-friends-sets-characters-kids-with-disabilities
Just had a nurse say she was living life on the edge by shopping in the Old Navy clearance section.
The little man has gotten out and is now stabbing my vagina.
It feels like there is a little man under my kneecaps trying to get out
Just got my ears pierced and now I'm shakey and lightheaded. On the bright side, I'm so used to needles being in me that it didn't hurt to bad.
Happy one year anniversary of this post.
Potsies listen up
PRESERVE YOUR OWN GARLIC
Chop up fresh garlic and put it in a jar with olive oil and a shit ton of salt (the garlic will help to mask some of it so you can add more) And stick it in the fridge for at least a week before cooking with it.
I had some that was preserved for around a year and it was so good.
Having a chronic illness sometimes means cutting a walk short. Other times it means chopping garlic on your bed because it's comfy there
"These hands may be broken, but they can still be thrown."
- me to @ask-and-i-answer at Disney World
I wish I could miss school because of that...
I wouldn't be there the entire year
I am not going to school today because I have “dislocated my entire skeleton” in my sleep.
I found this amazing article about Broadway actors with disabilities and thought I would share.
I am so out of spoons right now but I physically can't go home.
Living with chronic illness means learning to use your left foot to drive (while on a busy road alone in the car) because your right leg became extremely painful to move.
I would rather have my nipple ripped off than my stomach feeling like this.
Doctor: Here's a medication I want you to try, but it is a bit big. You might need to break it into smaller pieces so you don't choke.
Me:
This is the scariest thing with a chronic illness because we might have to change plans at the last minute due to a flare or any sudden health problems.
My biggest fear is that the person on the other end hates me because of this.
