I’m Getting My Drains Out Tomorrow And I’m Sure Things Will Be Different After They’re Gone, So

i’m getting my drains out tomorrow and i’m sure things will be different after they’re gone, so here’s my observations about top surgery recovery as of 6 days post-op!

(click here for my first post, from 3 days after)

something i forgot to mention in my last post is that if they tell you a medication has to be taken with food, do not fuck with that. absolutely do not. my antibiotic had to be taken with food and on day 2, i thought “well, i just had breakfast not too long ago, surely that’s close enough and i’ll be fine” and my parents agreed, but guess what? i spent the next hour in hell. the meds made me nauseous so i had to eat, but eating still hurt a lot because of the sore throat from being intubated, so trying to make it better just caused me more pain. and both the sore throat and the nausea (which i guess was as much a heartburn sort of situation as it was nausea) were both very chest-adjacent feelings, so that on top of the usual pain and discomfort from surgery was just a perfect storm of horrible things all centralized to one part of my body. it was awful, and i will never fuck around with something like that again. that being said, if you do find yourself in that situation or are just looking for something light that will still do the job because you’re not that hungry, 10/10 would recommend oatmeal and apple sauce. apple sauce is what finally got my body to stop rioting against me and my bad decisions, and after that i started always taking it halfway through a bowl of oatmeal and that worked perfectly.

on day 4, i was able to sit up and get out of bed by myself for the first time! i still can’t do it just by using my core muscles, but if i hold onto my legs and lower them, i can sort of roll myself up into a sitting position without using any of the affected muscles too much.

on day 5, the sore throat from hell that being intubated gave me finally went away! cheers to not gripping my pillow in pain every two seconds while i swallow my spit anymore. it lasted a while, but it honestly went away pretty fast — on day 4 it was a bit better than it had been, and then the next day it was just gone.

also on day 5, i really started to feel the bandages digging into my armpits. i’m not sure if it’s because the bandage has been slipping up over time, if my armpits have some extra swelling now, or if it’s just been wearing my body down over time, but it feels like it’s starting to cut off circulation at a certain point and it makes my arms ache sometimes. that’s probably not great, but the surgeon will be redoing everything at my post-op anyway so i’ve just been riding it out until then. in the meantime, i can tell it’s definitely worse when i’m sitting back and kind of slouched (because that position pushes it up more), so i try to sit up or walk around when i feel it. having pillows on either side of me to put my elbows up on definitely also helps a lot — that’s how i’ve been sleeping, but it would be good for just sitting too.

also also on day 5, i started getting this weird fluttery feeling in the spot where the left side of my chest and the meat of my left armpit connect. it feels like it’s probably some sort of muscle spasm. it’s not painful at all, but i honestly wish it was because it’s just super weird and uncomfortable instead and i hate it. it genuinely might be my least favorite out of any pains or sensations i’ve had so far. luckily, though, it seems like it’s already died down and only happened a couple times today.

my energy has been all over the place. i’m at the point now where mentally i’m much closer to my normal state so i’m once again having the adhd urge to constantly do stuff, but my body’s ability to keep up is far less consistent. sometimes i get restless and can just get up and pace around for a while, but other times i try to do that and get really quickly exhausted. i’m definitely more able to have conversations and feel more like myself now though, even when my body is tired out.

i’ve been thirsty as all hell the past few days. i feel like i’m constantly asking my boyfriend to refill my water for me because i drain it so fast. it’s a very specific kind of thirst, too — like it never quite goes away even when i’m definitely very thoroughly hydrated, and like anything but water can’t even touch it. it’s not a bad thing, getting lots of fluids after surgery is important and i wouldn’t be surprised if that’s exactly why my body is doing it, but it is a bit frustrating to just be incessantly thirsty for days at a time.

my walking posture is getting straighter every day. i still have to hold my chest to walk because of the bandage feeling like it drags things down, but if i’m walking with my mastectomy pillow, it mostly just looks like a typical slouch and not the deep hunch i started with.

at this point, my chest is super sensitive to any kind of movement, and that’s the other thing the pillow has been really good for at this stage. if the bandage shifts at all, if my body moves at all, basically anything — i feel it all in my chest really intensely. it’s not always painful, but it isn’t comfortable either. holding the pillow to my chest helps stabilize things so the movement doesn’t reach the sensitive parts as much, which is really great.

walking up stairs is easier than walking down stairs, which is the exact opposite of what i would’ve guessed. from what i can tell just from moving around, i think it’s because bending your legs up to a higher step pretty solidly relies on your legs and lower core muscles to make it happen, while reaching your legs down to a lower step requires stretching your body out (which is famously not your body’s favorite thing to do after top surgery). it often feels like i almost can’t reach the step below and have to just barely catch it with the balls of my feet. it’s also just generally been good to take the stairs super slow going up or down because you really can’t use the railing — putting enough weight on it to really rely on it at all requires using chest muscles, so the best i’ve been able to do is just rest my hand on it in case of emergency (because i’d rather hurt my chest than crack my head open if it comes to that).

one of the things that makes the stairs hard is that my center of balance is off from hunching, and that definitely affects my walking too. it’s less pronounced now that i’m in the habit of using the pillow to walk straighter, but i have to take shorter strides and sort of shuffle around because longer strides need better balance, and even with the shuffle i’m stumbling more than usual. i already have some balance problems so i’m pretty used to the feeling of it, but it has freaked my parents out a couple times to see me start listing to one side before i catch myself.

fuck reflexes. reflexes are the actual worst. something i didn’t anticipate is that no matter how careful you are to not reach your arms too far or move them too fast, you can never totally account for what you do if something starts falling. a few times now, i’ve definitely reached too far or fast before stopping myself because i saw something about to go down and my brain instinctively told my hands to catch it. i’m not sure if there’s anything you can really do about that, but it’s worth being aware of because it caught me by surprise the first time i did it.

one side of my chest has been consistently more swollen than the other. that side has also consistently drained less, and the fluid it does drain is darker and redder. we asked my surgeon if that was normal and she said there’s almost always one side that drains more than the other, but it’s still something we’ve been keeping an eye on. hopefully i’ll be able to get a more concrete answer at my post-op, once she can see the swelling up close and look at the drainage numbers from the past week.

as i’ve been getting some use of my body back, the pain in my chest has gotten a bit more obvious. it’s milder pain, and when i’m not doing anything it’s mostly painless to the point where i’m going a lot longer between tylenol doses, but when i’m using my body, i can definitely feel it. the fact that i’m not avoiding physical activity like the plague as much means i’m noticing more pain even though objectively my pain levels have gone down — the things that hurt now didn’t hurt less before, i just didn’t even attempt them before because i knew they would hurt so much. now that the pain is down, i can try more things, which means i’m more likely to try something that ends up hurting. of course, you should always try to follow the if-it-hurts-then-stop rule, but you can’t avoid the pain altogether as you learn your body’s boundaries, so i ended up getting to a point where getting better feels like getting worse.

on that note, i’ve also learned that there’s a pretty distinct difference between milder “i should proceed with caution” pain and intense “stop what you’re doing right now” pain. as much as avoiding things that hurt is ideal, it’s not always realistic, but my body has definitely been very clear in telling me what i can and can’t compromise on. in the beginning i was really paranoid about doing anything that caused any pain at all, but now i’m more familiar with where i can push a bit further if needed and where i really need to hold off.

i’ve been getting chills much more easily lately, and they’ve also been SUPER strong. i’ll be watching a show or listening to music and something will give me chills, and it’s a really intense feeling all across my ribs, and even thinking about the thing that caused it brings on a whole new wave. i’m super curious to see if it’s just a temporary result of my nerves doing their thing or if it’ll stick around long-term. it’s not unpleasant at all, i honestly really like it.

i got some food for myself for the first time today (day 6) and it just involved slicing some pretty soft cheese, but wow, it was a workout for my shoulder. i’m guessing it’s because i haven’t really used my muscles in that way for a week, and because not being able to use my chest muscles means i was relying on my shoulder a lot more to do all the work of moving my arm. by the time i was done, just holding the block of cheese to put it back in the fridge felt like lifting weights.

i didn’t change my shirt the first few days but i’ve changed a few times now, and we’ve perfected the art of getting a button up shirt on me without overreaching my arms at all. basically, you want to put both arms into the sleeves before you lift the shirt up onto your shoulders, because once the shirt is on one shoulder, you have to reach back a lot farther to get to the other sleeve. once you have both arms in, you can lift it onto your shoulders and button it. ideally, whoever’s helping you should do most of the work to pull the sleeves over your arms so you don’t have to stretch your arm out to get them on. i’m sure that’ll be overkill once i have a bit more mobility, but for now, it works great. it definitely would be tough if the shirt was fitted though, so i’m glad i went up a size.

i hope my posts like this have been helpful, or at least interesting to read! i’ll definitely keep updating as time goes on and things change, and i’m also going to work on a breakdown of my experience at the hospital pre- and post-op, as well as my post-op appointment experience once that happens tomorrow.

y’all are getting the good, the bad, and the ugly of my recovery experience. i know a lot of this has been very focused on the bad and the ugly so far because surgery is generally rough, but i’m going to see my chest again tomorrow so stay tuned for some good!