A friend once said “the ground is shifting under her”
At first I didn’t quite get it but now I think I do.
The ground shifting is when your sense of safety, be it a job, a house or a relationship is unraveling and definite change is inevitable.
And in those moments, where everything seems so unsteady and uncertain, where do we find comfort?
Some say you should embrace the discomfort and I think there is some truth in that, I think it’s also weird so what else? Radical acceptance maybe? Or finding snippets of joy in what you can and hold on for dear life.
I am still figuring it out as my own ground is also shifting
and so we stand, 2 lovers on opposite side of a great river without a clue on how to cross but unable to walk away maybe eventually we will find a way
I have a different fear
It’s the fear that if this love dies, I won’t find another love, I won’t grow to be very comfortable in a new love, can this new love be trusted?
I am afraid of new love
Do I exist
Like I know I am here
I feel my body, I see everything around me
I smell smells
I hear things
I feel feels, I love and I am loved
But sometimes it doesn’t feel real
It’s hard to call it dissonance
But I feel untethered from time to time
Like most times I am not here
But the real me fights through the haze and I am me
In that moment
But that makes all the other moment not feel real
Okay it doesn’t sound coherent
Maybe it’s not
Maybe that’s the whole point
You can say "I am struggling to do [x thing] because of my disability" and neurotypicals + able-bodied people will come up with any reason ever why it isn't actually your disability causing you to struggle and is actually a personal moral failing.
There are signs
That the tide is about to turn
That new things are coming
That there is a reward on the horizon
There are signs
That you are going to be okay
That this overwhelm you feel will pass
That you can handle it 
There are signs
That the universe smiles warmly on you
That your journey is beautiful
That it will all work out for you
There are signs
I have been lying to myself secretly and now I’m not sure how to move forward
What part of myself likes to ignore reality, what part of myself likes to warp reality, what part of me doesn’t understand reality
It’s like I live in a day dream and the rude awakening’s become increasingly ungracious
Why is it so hard to face reality, to speak my mind, to be brutally honest to myself, why is it so hard.
Maybe it’s the fear, that causes the trembling and the aversion
Maybe I need to become friends with my fear
Monday
Monday feels different these days, not anxious about the work I am doing or not wanting to do the work, I am doing.
I love what I do, I am happy I get to do this, but it also has its drawbacks, like, when will I get my invoices paid, will I find another opportunity to keep me fed and kept?
And so the anxiety is now about surviving, not the work and in some ways it feels like such a vicious cycle
I don’t write great poetry but I write and they make life feel a little less heavy
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