Wanted to make my first actual talking post cause I need y'all to know that this space is safe for those who may not feel welcome in their own communities.
Aspec people? Your love is so different from what others expect it to be, and if you're loveless you're so so valid and I love you in the same way I love the universe. Asexual, aromantic, aplatonic, asensual, every a- out there: you're not broken. You're not wrong for being yourself and I love you like all the stars in the sky, so many more than what's visible.
Alterhumans? No matter what/who you are, you're beautiful for exploring your identity as something non-human, human-adjacent, or human in a different flavor! You're amazing and wonderful and I'm so proud of you for even considering being yourself in a world not built for you. Human, animal, object, concept, doesn't matter because you still deserve respect and love. I love you like all the little bugs I find outside, all beautiful and free.
People with conflicting labels? You're so cool. I don't care if you identify as a man and a lesbian at the same time. I don't care if you identify as a woman and a gay bear at the same time. I don't care how you identify, you're a living being and you're just as valid as everyone else. I love you like trinkets, all so unique and beautiful in your own ways.
Systems? You're spectacular and no origin of system or headmate could change my mind. Your system came about from trauma? I'm so proud of you for coping with your trauma and living your life happier and healthier with others that can support you. No trauma? That's okay! It's none of anyone else's business how you came about, what matters is that you're living your life the best way you can and I'm so proud of you. I love you like yarn, all so wonderful and varying and full of endless possibility.
Disabled people? Your disabilities don't make you any less deserving of respect and love, no matter what anyone says. You don't need to prove your usefulness to anyone that actually deserves to know you. You're allowed to be "useless". Your existence is a blessing even though I know it can be so difficult or impossible to do even basic tasks, and your worth is way beyond whatever anyone tells you you "should" be able to do. I love you like plushies, made to love and be loved, made to exist.
Neurodivergent people? You're so strong. This world was not built for your mind that varies so greatly from what's expected of you. Those of you that have a "dangerous" disorder, you're so valued and I'm so proud of you for being your best self, no matter those that say you're insane or manipulative just for being yourself. I love you like nature, unpredictable or scary to those unwilling to understand, you're beautiful not despite your brain but in tandem with it.
Xenogenders? You're epic. It's so awesome that you've been able to identify with concepts, objects, animals, characters, literally anything! You can be anything! Isn't that amazing? I don't care if it's cringe, I don't care. You're being yourself and that's so amazing. I love you like art, found in every place you look if you're looking with an open mind.
Religious people? It's so amazing that you've found something to believe in that helps you live your best life. As long as you're not using your religion to put others down, you have my support. It's so spectacular that you have something you believe in. Please don't let anyone take that away from you. I love you like rainbows, a miracle of life and a wonderful sight to see.
People with personality disorders? You're so valid. Granted I don't know much, but I do know that you deserve love and respect just as much as anyone else. No matter how misunderstood or mistreated, you're safe here. I'm always willing to learn and understand how to be a good person to everyone, no matter how "scary" you are. You're wonderful and I hope you know that. I love you like the ocean, full of so much vastness and beauty below the surface.
I love you I love you I love you!!!
If you are a shitty person who forces yourself onto others or thinks that others are below you for what they believe in, do NOT be anywhere near my page. If you are any sort of -phobic, any sort of "minor liking person", any sort of asshole: I will automatically block you and you are NOT welcome here.
FYI to my disabled homies, that public establishment is legally required to be accessible to you and your mobility aids if you use them!
-Fascists
-Naz!s
-antikins
-TERFS
-People over the age of 25
-Ableists
-Homophobes
-Transphobes
-Pedos
-Proshippers
-Be kind
-Keep an open mind
-Don’t ask super personal questions
-NO N$fw allowed
-Don’t spam asks
-Don’t be a creep
-Follow the DNI list
-Check in for updates to DNI and rules
-$a/r4pe
-Domestic Abuse
-Eat!ng d!sorders
-Name:Zazzle/Moxie
-Fave color:Pink!!!
-Sexuality:Abrosexual
-Gender:Female
-Pronouns:He/They
-Chronically ill and proud 💪
-Low blood pressure, POTS, anemia, asthma, epilepsy
-Adhd, autism, manic bpd, seasonal depression, dyscalcula
-Hellenic pagan
-Marxist
Fave songs
shout out to “gross” disabled people.
people who can’t shower/bathe people who can’t shave people who can’t wash their clothes people who need help going to the bathroom people who have nasty habits (biting nails, picking nose, etc) people who can’t brush their teeth people who can’t go to the doctor people who can’t clean their room people who can’t make their beds people who vomit a lot people who wet the bed people who constantly have diarrhea people who’s physical deformities are seen as repulsive
and every other kind of person I missed that deserves to be here too.
you are people, first and foremost. your thoughts deserve to be heard, discussed, acknowledged, no matter what. you are not lesser. you are just another person. you should never be ignored for what you can/can’t do. you deserve care.
to abled people: check yourself. make sure you listen. and you can reblog, just don’t derail. maybe don’t add on, either.
Hi! I’m a disabled trans man, and I have an Etsy now.
The jewelry is made based on the disability pride flag created by @capricorn-0mnikorn
All profits go towards Open Doors for Multicultural Families, who, in their own words “provide culturally and linguistically relevant information, services, and programming to culturally and linguistically diverse families of persons with developmental and intellectual disabilities. The families we serve are often immigrants, refugees, and/or people of color.”
Please boost this so that a lot of people can have disability pride jewelry to show off this July, which is Disability Pride Month!
sorry we’re about to be annoying here
multigenic flag from Hozier album cover
voidgender flag from Why is it still raining single cover
disabled flag from Lumineers album cover
(sorry this one might be a bit hard) nebularomantic flag from David Kushner album cover?
if u can’t do all of them that’s okay!!!
No worries, I welcome any and all asks! I couldn’t do the voidgender one because I’m pretty sure it’s in black and white, so there’s no blue, or the nebularomantic one because all my attempts looked like absolute crap, sorry!
good luck with a second cardiologist appointment. I have only done the nasa lean test but got a diagnosis of pots through it. the instructions tell you to avoid excess salt and water 12-24 hours beforehand.
don't do this but i will also avoid taking painkillers before going to a doctor so that i will be crabby and exhausted and sore because i look fine when i'm coping
Its weird I made the same post about purposely making my symptoms worse on Reddit and it got taken down. You're not really supposed to talk about that. Its understandable but idk how else to get my doctors to take me seriously. And thank you! I hope it goes well too apparently they're a really good doctor
WORK IN PROGRESS
Represents my chest pain and rapid heart rate
I went to a cardiologist, and he didn’t take me seriously at all. I got an off vibe from him. I asked the nurses, the receptionist, and my primary care doctor for a tilt table test. My cardiologist said no to getting me a TTT, all because I got better with water and salt intake (almost as if I have POTS???)
After bawling my eyes out m called a different cardiologist and hopefully they’ll actually listen to me. I just want a diagnosis so I can move on. I feel crazy.
My plan is to purposely decrease my salt and water intake so they take me seriously when I finally get a tilt table test. I’m ready to take drastic measures to be taken seriously
Call me a gymnast cause I am jumping through hoops trying to get a diagnosis
I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.
I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.
As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break
So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)
Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?
I was so exhausted and has zero spoons left. Tookna three hour trip to snooze land. Probably shouldn't have taken that long of a nap, but you know what? I DESERVED THE DAMN NAP!!!! I might still be tire, but I'm feeling refreshed of spoons today.
If you need to rest go do it. No need to feel guilty about it
New to pots? Need some advice on managing symptons? Stay posted for my new vid coming out May 13 at 6:00 Eastern Time
You're adapting: Instead of pushing yourself past your limits, you learn ways to make your life with chronic illness just a little easier. It could be sitting while you beush your teeth, or opting for a bath instead of s shower.
You stop telling yourseld you "aren't disabled enough:" Maybe you're an ambulatory wheel chair user or you don't always need a cane to walk around. Stop telling yourself that just because your chronic Illness differs from day to day, means you aren't disabled enough. Go buy that cane or walker and use it when you need to. You don't need anyone's permission. You don't need to prove anything to anyone
You've learned to ask for help: I know we all want to be independent and not rely on other people for help. But even able body people need help from time to time. Our body function differently, and it's okay to need extra help than the average person. You're not a burden.
You priorities your mental health: Mental health is extremely important especially when dealing with chronic illness. You may be grieving your old body or experiencing jealousy. This is all normal. Ways that have healped my mental health tremendously are making a gratitude list to remind me what I'm grateful for, creating a schedule, and minimizing the time on my phone.
HAPPY CHRONIC ILLNESS NEWS
Im so excited to say that after two months of having days that were an absolute roller coaster, I finally had a good day. A true good one. I don't mean my usual days where there is a sprinkle of good in a scoop of bad ice cream.
I usually spend my days doom scrolling, bored, and napping.
But my therapist and I came up with a plan to write down everything I do. This way I can create a schedule. I filled my day with low effort activities and rested. I drew, colored, did my makeup, did a graditude list, meditated. I'm so happy to prove to myself I in fact CAN have good days despite my illness
I wish everyone a good day with lots of rest
I'm trying to create a more positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically ill and they can really put me down. I wanna change that
I'd love to ask the question, what are you grateful for?
Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!
I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.
YOUR TURN!
ROUGH DRAFT chronic illness and insomnia
You can't sleep lying on a nail bed. The spikes digging into you. If you lay properly, it distributes all your weight. One wrong move and you're in agonizing pain. You roll around all night, trying to get one minute of rest.
You wake up after trying to sleep for hours. They ask you why you're so tired. No one sees the spiked bed, only you.
I'm not at all saying people can't vent or complain about being disabled and chronically ill. I do it all the time. What we go through is beyond difficult
But I'm on my phone a lot cause I don't have the spoons for anything else. I'm always seeing posts about how horrible it is to be chronically ill. It's constant reminder. Its like picking at a wound never meant to heal in the first place. Sometimes I see more positive posts, but they are few and far between. I should make an effort to post some more positive content.
I feel so much better adding these to my drinks. May have more energy and can walk easier. But I feel better not amazing and cured. Why am I not cured? 🤨 I was told water and exercise is gonna cure me /sar
No but seriously I recommend these they’re great
Just had to pay a thousand dollars of medical debt…
I spent a third of my savings, I can’t get a job because of my disability. I haven’t gotten a diagnosis. And if i want a diagnosis I gotta keep fucking pay off medical debt. And no getting paid disability till I get a diagnosis. THE AMERICAN HEALTH CARE IS ABSOLUTELY FUCKED
People act like we CHOSE to be disabled. That we CHOSE to not be able to hold a job, or not be able to take care of ourselves.
All I gotta say at this point is
I am absolutely PISSED
I am homeless, disabled, and trying to find housing. I don't qualify since I don't have a I have no income. I asked my social worker about finding housing if my gf lives with me but she doesn't make enough. I asked about getting disability once I receive a proper diagnosis, and I got a MAYBE. Not to mention, I'm so appalled after learning how much disabled people earn in one month. The government wants you to be homeless when you're disabled, and then punsihes you for it.
Happy birthday to meee!!!!! Introducing my walker named Susie, throne on wheels
THANK YOU TO EVERYONE WHO DONATED TO MY GO FUND ME TO GET MY WALKER
CHECK THE DATE GUYS!!!! TODAY IS THE DAY!!!!
I'm gonna faint from anxiety, but I DID IT!!! Made My First YouTube Video
From chronically offline to chronically ill
Psst… HEY
If you are also queer, disabled, and/or have chronic pain, and wanna see art and other content about it, then feel free to follow my youtube ;))
I've been making shorts, and hopefully filming a full video when I have the energy!
One of my videos (´ . .̫ . `)
Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭
Let’s make my girlfriend into, a beam of light. She has been a shiny ray of hope for me through these hard times. Chronically, ill and disabled she has left me taking care of me, loving me, no matter what.