TW- My Inspiration For The Art Piece Is Rather Sad

Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭

That's amazing! My cane is pink and my walker is purple and I'm so happy I get to chose. I'm glad you feel powerful with physical therapy, cause you should! And plushies are the absolute best \ (•◡•) /

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

Such a cute idea!

Showing off the friend I crocheted for my cane, his name is Rio (yes, Arcane reference). I've had him for a while but I love him.

The pink rose pattern cane was not my choice initially, it was just what was available to me at the time, but it has grown on me :)

I am absolutely PISSED

I am homeless, disabled, and trying to find housing. I don't qualify since I don't have a I have no income. I asked my social worker about finding housing if my gf lives with me but she doesn't make enough. I asked about getting disability once I receive a proper diagnosis, and I got a MAYBE. Not to mention, I'm so appalled after learning how much disabled people earn in one month. The government wants you to be homeless when you're disabled, and then punsihes you for it.

Digital Detox Helping With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

POTS Life Hacks For Diffucult Mornings

We all know how important it is to stay hydrated, especially when chronically ill.

If you're anything like me, you wake up feeling awful. Keep a giant glass of water right next to where you sleep. Before getting out of bed, drink water for about 1 to 2 minutes. Bonus points if you use electrolyte drops.

Breakfast- a breakfast I love is oatmeal and salted butter toast. It gives me protien and some salt to start off my day

Having an extremely difficult morning? Don't be afraid to ask for help if it is available to you! There are days where my girlfriend makes me breakfast. You are NOT weak for asking for help. In fact, I think you're pretty brave.

If my doctors aren’t gonna take me seriously I’m going to make them

I went to a cardiologist, and he didn’t take me seriously at all. I got an off vibe from him. I asked the nurses, the receptionist, and my primary care doctor for a tilt table test. My cardiologist said no to getting me a TTT, all because I got better with water and salt intake (almost as if I have POTS???)

After bawling my eyes out m called a different cardiologist and hopefully they’ll actually listen to me. I just want a diagnosis so I can move on. I feel crazy.

My plan is to purposely decrease my salt and water intake so they take me seriously when I finally get a tilt table test. I’m ready to take drastic measures to be taken seriously

I feel so much better adding these to my drinks. May have more energy and can walk easier. But I feel better not amazing and cured. Why am I not cured? 🤨 I was told water and exercise is gonna cure me /sar

No but seriously I recommend these they’re great

Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!

Digital Detox Helpung With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?