My Version Of The “do It Scared” Post Is: Do It Scared And Don’t Wait Until You Feel Absolutely

Pro tip for adulting: being late isn’t a death sentence for 95% of things. All you gotta do is call the moment you realize you’re gonna be late, apologize, and then give another small apology when you get there. The thing people really don’t like about lateness is that it seems like the other person doesn’t value their time, and since calling shows that you value their time, that leaves only the mild inconvenience of waiting a bit for them to deal with

Learning to knit turned out to be an early step in remembering my own small powers.

No good sweater options? I'll knit my own. Pants don't fit quite right? I'll alter them. Hole worn in my favorite pajamas? I'll patch it. Shoes don't match my clothes? I'll dye them. Cabinet not exactly what I hoped for? Paint.

As much as these are small things, I think it's genuinely transformative to take ownership of your space and your things in this way.

Maybe next I can work to transform my relationships, my gatherings, my communities.

Hey, take it from someone creeping towards 40:

Ignore the fun police.

If you like it, order your steak well done. Get your bagel toasted with jam and butter. Put ice in your scotch and ketchup on your hotdog. Get red wine with fish and white with steak. Who cares?

If you want to, listen to pop music. Watch blockbuster popcorn flicks. Read dime store novels. Enjoy them.

Dye your hair or cut it off. Paint your fingernails blue. Wear whatever the fuck you want on your own time (ie, when not at a job or school or whatever where you can get penalized for breaking rules) as long as you aren’t like welding or shoveling snow.

Anyone who tries to tell you you’re wrong? Say “okay” and go back to what you were doing. You’re not hurting them by enjoying yourself or having things the way you like them.

There are no caveats or addendums to this. No “but what about x?” Nah. You’re allowed the things you like. You don’t have to justify your taste or apologize for it if it’s not hurting anyone.

And likewise, let other people live their lives. We’re all dead in the long run, so tend your own garden before you become fertilizer in it.

Something that literally changed my life was working with a friend on a coding thing. He was helping me create an auto rig script and was trying to explain something to me but his words were just turning into static in my brain. I was tired and confused and there was so many new concepts happening.

I could feel myself working toward a crying meltdown and was getting preemptively ashamed of what was about to happen when he said, “Hey, are you someone who benefits from breaks?”

It broke me.

Did I benefit from breaks? I didn’t know. I’d never taken them.

When a problem frustrated or upset me I just gritted my teeth and plowed through the emotional distress because eventually if you batter and flail at something long enough you figure it out. So what if you get bruised on the way.

I viscerally remembered in that moment being forced to sit at the table late into the night with my dad screaming at me, trying to understand math. I remembered taking that with me into adulthood and having breakdowns every week trying to understand coding. I could have taken a break? Would it help? I didn’t know! I’d never taken one!

“Yes,” I told him. We paused our call. I ate lunch. I focused on other stuff for half an hour. I came back in a significantly better state of mind, and the thing he’d been trying to explain had been gently cooking in the back of my head and seemed easier to understand.

Now when I find myself gritting my teeth at problems I can hear his gentle voice asking if I benefit from breaks. Yes, dear god, yes why did I never get taught breaks? Why was the only way I knew to keep suffering until something worked?

I was relating to this same friend recently my roadtrip to the redwoods with my wife. “We stopped every hour or so to get out and stretch our legs and switch drivers. It was really nice. When I was a kid we’d just drive twelve hours straight and not stop for anything, just gas. We’d eat in the car and power through.”

He gave a wry smile, immediately connecting the mindset of my parents on a road trip to what they’d instilled in me about brute forcing through discomfort. “Do you benefit from breaks?” he echoed, drawing my attention to it, making me smile with the same sad acknowledgement.

Take breaks. You’re allowed. You don’t have to slam into problems over and over and over, let yourself rest. It will get easier. Take. Breaks.

i’m getting my drains out tomorrow and i’m sure things will be different after they’re gone, so here’s my observations about top surgery recovery as of 6 days post-op!

(click here for my first post, from 3 days after)

something i forgot to mention in my last post is that if they tell you a medication has to be taken with food, do not fuck with that. absolutely do not. my antibiotic had to be taken with food and on day 2, i thought “well, i just had breakfast not too long ago, surely that’s close enough and i’ll be fine” and my parents agreed, but guess what? i spent the next hour in hell. the meds made me nauseous so i had to eat, but eating still hurt a lot because of the sore throat from being intubated, so trying to make it better just caused me more pain. and both the sore throat and the nausea (which i guess was as much a heartburn sort of situation as it was nausea) were both very chest-adjacent feelings, so that on top of the usual pain and discomfort from surgery was just a perfect storm of horrible things all centralized to one part of my body. it was awful, and i will never fuck around with something like that again. that being said, if you do find yourself in that situation or are just looking for something light that will still do the job because you’re not that hungry, 10/10 would recommend oatmeal and apple sauce. apple sauce is what finally got my body to stop rioting against me and my bad decisions, and after that i started always taking it halfway through a bowl of oatmeal and that worked perfectly.

on day 4, i was able to sit up and get out of bed by myself for the first time! i still can’t do it just by using my core muscles, but if i hold onto my legs and lower them, i can sort of roll myself up into a sitting position without using any of the affected muscles too much.

on day 5, the sore throat from hell that being intubated gave me finally went away! cheers to not gripping my pillow in pain every two seconds while i swallow my spit anymore. it lasted a while, but it honestly went away pretty fast — on day 4 it was a bit better than it had been, and then the next day it was just gone.

also on day 5, i really started to feel the bandages digging into my armpits. i’m not sure if it’s because the bandage has been slipping up over time, if my armpits have some extra swelling now, or if it’s just been wearing my body down over time, but it feels like it’s starting to cut off circulation at a certain point and it makes my arms ache sometimes. that’s probably not great, but the surgeon will be redoing everything at my post-op anyway so i’ve just been riding it out until then. in the meantime, i can tell it’s definitely worse when i’m sitting back and kind of slouched (because that position pushes it up more), so i try to sit up or walk around when i feel it. having pillows on either side of me to put my elbows up on definitely also helps a lot — that’s how i’ve been sleeping, but it would be good for just sitting too.

also also on day 5, i started getting this weird fluttery feeling in the spot where the left side of my chest and the meat of my left armpit connect. it feels like it’s probably some sort of muscle spasm. it’s not painful at all, but i honestly wish it was because it’s just super weird and uncomfortable instead and i hate it. it genuinely might be my least favorite out of any pains or sensations i’ve had so far. luckily, though, it seems like it’s already died down and only happened a couple times today.

my energy has been all over the place. i’m at the point now where mentally i’m much closer to my normal state so i’m once again having the adhd urge to constantly do stuff, but my body’s ability to keep up is far less consistent. sometimes i get restless and can just get up and pace around for a while, but other times i try to do that and get really quickly exhausted. i’m definitely more able to have conversations and feel more like myself now though, even when my body is tired out.

i’ve been thirsty as all hell the past few days. i feel like i’m constantly asking my boyfriend to refill my water for me because i drain it so fast. it’s a very specific kind of thirst, too — like it never quite goes away even when i’m definitely very thoroughly hydrated, and like anything but water can’t even touch it. it’s not a bad thing, getting lots of fluids after surgery is important and i wouldn’t be surprised if that’s exactly why my body is doing it, but it is a bit frustrating to just be incessantly thirsty for days at a time.

my walking posture is getting straighter every day. i still have to hold my chest to walk because of the bandage feeling like it drags things down, but if i’m walking with my mastectomy pillow, it mostly just looks like a typical slouch and not the deep hunch i started with.

at this point, my chest is super sensitive to any kind of movement, and that’s the other thing the pillow has been really good for at this stage. if the bandage shifts at all, if my body moves at all, basically anything — i feel it all in my chest really intensely. it’s not always painful, but it isn’t comfortable either. holding the pillow to my chest helps stabilize things so the movement doesn’t reach the sensitive parts as much, which is really great.

walking up stairs is easier than walking down stairs, which is the exact opposite of what i would’ve guessed. from what i can tell just from moving around, i think it’s because bending your legs up to a higher step pretty solidly relies on your legs and lower core muscles to make it happen, while reaching your legs down to a lower step requires stretching your body out (which is famously not your body’s favorite thing to do after top surgery). it often feels like i almost can’t reach the step below and have to just barely catch it with the balls of my feet. it’s also just generally been good to take the stairs super slow going up or down because you really can’t use the railing — putting enough weight on it to really rely on it at all requires using chest muscles, so the best i’ve been able to do is just rest my hand on it in case of emergency (because i’d rather hurt my chest than crack my head open if it comes to that).

one of the things that makes the stairs hard is that my center of balance is off from hunching, and that definitely affects my walking too. it’s less pronounced now that i’m in the habit of using the pillow to walk straighter, but i have to take shorter strides and sort of shuffle around because longer strides need better balance, and even with the shuffle i’m stumbling more than usual. i already have some balance problems so i’m pretty used to the feeling of it, but it has freaked my parents out a couple times to see me start listing to one side before i catch myself.

fuck reflexes. reflexes are the actual worst. something i didn’t anticipate is that no matter how careful you are to not reach your arms too far or move them too fast, you can never totally account for what you do if something starts falling. a few times now, i’ve definitely reached too far or fast before stopping myself because i saw something about to go down and my brain instinctively told my hands to catch it. i’m not sure if there’s anything you can really do about that, but it’s worth being aware of because it caught me by surprise the first time i did it.

one side of my chest has been consistently more swollen than the other. that side has also consistently drained less, and the fluid it does drain is darker and redder. we asked my surgeon if that was normal and she said there’s almost always one side that drains more than the other, but it’s still something we’ve been keeping an eye on. hopefully i’ll be able to get a more concrete answer at my post-op, once she can see the swelling up close and look at the drainage numbers from the past week.

as i’ve been getting some use of my body back, the pain in my chest has gotten a bit more obvious. it’s milder pain, and when i’m not doing anything it’s mostly painless to the point where i’m going a lot longer between tylenol doses, but when i’m using my body, i can definitely feel it. the fact that i’m not avoiding physical activity like the plague as much means i’m noticing more pain even though objectively my pain levels have gone down — the things that hurt now didn’t hurt less before, i just didn’t even attempt them before because i knew they would hurt so much. now that the pain is down, i can try more things, which means i’m more likely to try something that ends up hurting. of course, you should always try to follow the if-it-hurts-then-stop rule, but you can’t avoid the pain altogether as you learn your body’s boundaries, so i ended up getting to a point where getting better feels like getting worse.

on that note, i’ve also learned that there’s a pretty distinct difference between milder “i should proceed with caution” pain and intense “stop what you’re doing right now” pain. as much as avoiding things that hurt is ideal, it’s not always realistic, but my body has definitely been very clear in telling me what i can and can’t compromise on. in the beginning i was really paranoid about doing anything that caused any pain at all, but now i’m more familiar with where i can push a bit further if needed and where i really need to hold off.

i’ve been getting chills much more easily lately, and they’ve also been SUPER strong. i’ll be watching a show or listening to music and something will give me chills, and it’s a really intense feeling all across my ribs, and even thinking about the thing that caused it brings on a whole new wave. i’m super curious to see if it’s just a temporary result of my nerves doing their thing or if it’ll stick around long-term. it’s not unpleasant at all, i honestly really like it.

i got some food for myself for the first time today (day 6) and it just involved slicing some pretty soft cheese, but wow, it was a workout for my shoulder. i’m guessing it’s because i haven’t really used my muscles in that way for a week, and because not being able to use my chest muscles means i was relying on my shoulder a lot more to do all the work of moving my arm. by the time i was done, just holding the block of cheese to put it back in the fridge felt like lifting weights.

i didn’t change my shirt the first few days but i’ve changed a few times now, and we’ve perfected the art of getting a button up shirt on me without overreaching my arms at all. basically, you want to put both arms into the sleeves before you lift the shirt up onto your shoulders, because once the shirt is on one shoulder, you have to reach back a lot farther to get to the other sleeve. once you have both arms in, you can lift it onto your shoulders and button it. ideally, whoever’s helping you should do most of the work to pull the sleeves over your arms so you don’t have to stretch your arm out to get them on. i’m sure that’ll be overkill once i have a bit more mobility, but for now, it works great. it definitely would be tough if the shirt was fitted though, so i’m glad i went up a size.

i hope my posts like this have been helpful, or at least interesting to read! i’ll definitely keep updating as time goes on and things change, and i’m also going to work on a breakdown of my experience at the hospital pre- and post-op, as well as my post-op appointment experience once that happens tomorrow.

y’all are getting the good, the bad, and the ugly of my recovery experience. i know a lot of this has been very focused on the bad and the ugly so far because surgery is generally rough, but i’m going to see my chest again tomorrow so stay tuned for some good!

On Voting in America

So one of the most profound comments on routine chores that I've ever encountered was, hilariously, the Pickle Rick episode of "Rick & Morty," where (after a lot of shenanigans have already ensued) this therapist absolutely lays Rick out:

"I have no doubt that you would be bored senseless by therapy, the same way I'm bored when I brush my teeth and wipe my ass. Because the thing about repairing, maintaining, and cleaning is: it's not an adventure. There's no way to do it so wrong you might die. It's just work. And the bottom line is some people are okay going to work and some people, well, some people would rather die. Each of us gets to choose."

I think about this at least once a week — usually while I'm doing my laundry or sweeping or some other task that needs doing and won't get me anything more than clean clothing or a dog-hair-free floor. There's no Pulitzer for wiping down your microwave or scrubbing your toilet; no one's awarding you for getting all the dishes out of the sink. At best you have the satisfaction of crossing it off your list.

Voting is very much the same (and I'm talking about the US here, as an American). Sure, you sometimes get a sticker; but nobody's going to cheer for you. There's no adventure here, no potential for anything more than crossing something off of a list. It's a chore, something that needs doing in order to repair, maintain, and yes even clean. So I get why people don't like doing it.

And I've decided I don't give a shit.

Do it anyway. Your country takes astonishingly little from you — taxes, the once-in-a-blue-moon jury duty, and a theoretical draft that hasn't been used in over half a century and likely will never be again — but it asks you (asks! not requires! not demands!) to vote once a year. It's not always easy; especially in conservative states, the impediments to vote can be ridiculous. But it is once a year and unlike in our nation's all-too-recent past, you will not die if you do it.

In fact, the worst outcome from voting these days is that the person or issue that you vote for loses — but you won't know if they lose until after the election. Polls are less accurate now, for a whole host of reasons; you cannot know until after the election who or what will win. This makes your vote more valuable than possibly ever before.

Use that power. Not because it's exciting or even rewarding, but because your vote is what keeps our country's metaphorical teeth from falling out and our metaphorical ass from stinking.

Brush, wipe, vote.

"Absolutely no one comes to save us but us."

Ismatu Gwendolyn, "you've been traumatized into hating reading (and it makes you easier to oppress)", from Threadings, on Substack [ID'd]

Biggest reframe of my artistic life was when somebody pointed out that putting down your own work in front of people who enjoy it is tantamount to insulting those people’s taste. Knocked the self deprecation right out of me