The Coolest People Are Actually Weird And Fucked Up And Strange And Peculiar And They Just Dont Care.

i’m getting my drains out tomorrow and i’m sure things will be different after they’re gone, so here’s my observations about top surgery recovery as of 6 days post-op!

(click here for my first post, from 3 days after)

something i forgot to mention in my last post is that if they tell you a medication has to be taken with food, do not fuck with that. absolutely do not. my antibiotic had to be taken with food and on day 2, i thought “well, i just had breakfast not too long ago, surely that’s close enough and i’ll be fine” and my parents agreed, but guess what? i spent the next hour in hell. the meds made me nauseous so i had to eat, but eating still hurt a lot because of the sore throat from being intubated, so trying to make it better just caused me more pain. and both the sore throat and the nausea (which i guess was as much a heartburn sort of situation as it was nausea) were both very chest-adjacent feelings, so that on top of the usual pain and discomfort from surgery was just a perfect storm of horrible things all centralized to one part of my body. it was awful, and i will never fuck around with something like that again. that being said, if you do find yourself in that situation or are just looking for something light that will still do the job because you’re not that hungry, 10/10 would recommend oatmeal and apple sauce. apple sauce is what finally got my body to stop rioting against me and my bad decisions, and after that i started always taking it halfway through a bowl of oatmeal and that worked perfectly.

on day 4, i was able to sit up and get out of bed by myself for the first time! i still can’t do it just by using my core muscles, but if i hold onto my legs and lower them, i can sort of roll myself up into a sitting position without using any of the affected muscles too much.

on day 5, the sore throat from hell that being intubated gave me finally went away! cheers to not gripping my pillow in pain every two seconds while i swallow my spit anymore. it lasted a while, but it honestly went away pretty fast — on day 4 it was a bit better than it had been, and then the next day it was just gone.

also on day 5, i really started to feel the bandages digging into my armpits. i’m not sure if it’s because the bandage has been slipping up over time, if my armpits have some extra swelling now, or if it’s just been wearing my body down over time, but it feels like it’s starting to cut off circulation at a certain point and it makes my arms ache sometimes. that’s probably not great, but the surgeon will be redoing everything at my post-op anyway so i’ve just been riding it out until then. in the meantime, i can tell it’s definitely worse when i’m sitting back and kind of slouched (because that position pushes it up more), so i try to sit up or walk around when i feel it. having pillows on either side of me to put my elbows up on definitely also helps a lot — that’s how i’ve been sleeping, but it would be good for just sitting too.

also also on day 5, i started getting this weird fluttery feeling in the spot where the left side of my chest and the meat of my left armpit connect. it feels like it’s probably some sort of muscle spasm. it’s not painful at all, but i honestly wish it was because it’s just super weird and uncomfortable instead and i hate it. it genuinely might be my least favorite out of any pains or sensations i’ve had so far. luckily, though, it seems like it’s already died down and only happened a couple times today.

my energy has been all over the place. i’m at the point now where mentally i’m much closer to my normal state so i’m once again having the adhd urge to constantly do stuff, but my body’s ability to keep up is far less consistent. sometimes i get restless and can just get up and pace around for a while, but other times i try to do that and get really quickly exhausted. i’m definitely more able to have conversations and feel more like myself now though, even when my body is tired out.

i’ve been thirsty as all hell the past few days. i feel like i’m constantly asking my boyfriend to refill my water for me because i drain it so fast. it’s a very specific kind of thirst, too — like it never quite goes away even when i’m definitely very thoroughly hydrated, and like anything but water can’t even touch it. it’s not a bad thing, getting lots of fluids after surgery is important and i wouldn’t be surprised if that’s exactly why my body is doing it, but it is a bit frustrating to just be incessantly thirsty for days at a time.

my walking posture is getting straighter every day. i still have to hold my chest to walk because of the bandage feeling like it drags things down, but if i’m walking with my mastectomy pillow, it mostly just looks like a typical slouch and not the deep hunch i started with.

at this point, my chest is super sensitive to any kind of movement, and that’s the other thing the pillow has been really good for at this stage. if the bandage shifts at all, if my body moves at all, basically anything — i feel it all in my chest really intensely. it’s not always painful, but it isn’t comfortable either. holding the pillow to my chest helps stabilize things so the movement doesn’t reach the sensitive parts as much, which is really great.

walking up stairs is easier than walking down stairs, which is the exact opposite of what i would’ve guessed. from what i can tell just from moving around, i think it’s because bending your legs up to a higher step pretty solidly relies on your legs and lower core muscles to make it happen, while reaching your legs down to a lower step requires stretching your body out (which is famously not your body’s favorite thing to do after top surgery). it often feels like i almost can’t reach the step below and have to just barely catch it with the balls of my feet. it’s also just generally been good to take the stairs super slow going up or down because you really can’t use the railing — putting enough weight on it to really rely on it at all requires using chest muscles, so the best i’ve been able to do is just rest my hand on it in case of emergency (because i’d rather hurt my chest than crack my head open if it comes to that).

one of the things that makes the stairs hard is that my center of balance is off from hunching, and that definitely affects my walking too. it’s less pronounced now that i’m in the habit of using the pillow to walk straighter, but i have to take shorter strides and sort of shuffle around because longer strides need better balance, and even with the shuffle i’m stumbling more than usual. i already have some balance problems so i’m pretty used to the feeling of it, but it has freaked my parents out a couple times to see me start listing to one side before i catch myself.

fuck reflexes. reflexes are the actual worst. something i didn’t anticipate is that no matter how careful you are to not reach your arms too far or move them too fast, you can never totally account for what you do if something starts falling. a few times now, i’ve definitely reached too far or fast before stopping myself because i saw something about to go down and my brain instinctively told my hands to catch it. i’m not sure if there’s anything you can really do about that, but it’s worth being aware of because it caught me by surprise the first time i did it.

one side of my chest has been consistently more swollen than the other. that side has also consistently drained less, and the fluid it does drain is darker and redder. we asked my surgeon if that was normal and she said there’s almost always one side that drains more than the other, but it’s still something we’ve been keeping an eye on. hopefully i’ll be able to get a more concrete answer at my post-op, once she can see the swelling up close and look at the drainage numbers from the past week.

as i’ve been getting some use of my body back, the pain in my chest has gotten a bit more obvious. it’s milder pain, and when i’m not doing anything it’s mostly painless to the point where i’m going a lot longer between tylenol doses, but when i’m using my body, i can definitely feel it. the fact that i’m not avoiding physical activity like the plague as much means i’m noticing more pain even though objectively my pain levels have gone down — the things that hurt now didn’t hurt less before, i just didn’t even attempt them before because i knew they would hurt so much. now that the pain is down, i can try more things, which means i’m more likely to try something that ends up hurting. of course, you should always try to follow the if-it-hurts-then-stop rule, but you can’t avoid the pain altogether as you learn your body’s boundaries, so i ended up getting to a point where getting better feels like getting worse.

on that note, i’ve also learned that there’s a pretty distinct difference between milder “i should proceed with caution” pain and intense “stop what you’re doing right now” pain. as much as avoiding things that hurt is ideal, it’s not always realistic, but my body has definitely been very clear in telling me what i can and can’t compromise on. in the beginning i was really paranoid about doing anything that caused any pain at all, but now i’m more familiar with where i can push a bit further if needed and where i really need to hold off.

i’ve been getting chills much more easily lately, and they’ve also been SUPER strong. i’ll be watching a show or listening to music and something will give me chills, and it’s a really intense feeling all across my ribs, and even thinking about the thing that caused it brings on a whole new wave. i’m super curious to see if it’s just a temporary result of my nerves doing their thing or if it’ll stick around long-term. it’s not unpleasant at all, i honestly really like it.

i got some food for myself for the first time today (day 6) and it just involved slicing some pretty soft cheese, but wow, it was a workout for my shoulder. i’m guessing it’s because i haven’t really used my muscles in that way for a week, and because not being able to use my chest muscles means i was relying on my shoulder a lot more to do all the work of moving my arm. by the time i was done, just holding the block of cheese to put it back in the fridge felt like lifting weights.

i didn’t change my shirt the first few days but i’ve changed a few times now, and we’ve perfected the art of getting a button up shirt on me without overreaching my arms at all. basically, you want to put both arms into the sleeves before you lift the shirt up onto your shoulders, because once the shirt is on one shoulder, you have to reach back a lot farther to get to the other sleeve. once you have both arms in, you can lift it onto your shoulders and button it. ideally, whoever’s helping you should do most of the work to pull the sleeves over your arms so you don’t have to stretch your arm out to get them on. i’m sure that’ll be overkill once i have a bit more mobility, but for now, it works great. it definitely would be tough if the shirt was fitted though, so i’m glad i went up a size.

i hope my posts like this have been helpful, or at least interesting to read! i’ll definitely keep updating as time goes on and things change, and i’m also going to work on a breakdown of my experience at the hospital pre- and post-op, as well as my post-op appointment experience once that happens tomorrow.

y’all are getting the good, the bad, and the ugly of my recovery experience. i know a lot of this has been very focused on the bad and the ugly so far because surgery is generally rough, but i’m going to see my chest again tomorrow so stay tuned for some good!

Please do things to strengthen your attention span. It stresses me out so much when people just accept their small attention spans and cater to them without any acknowledgment that they are making it worse by doing that.

There is a reason attention spans are worse now and it didn’t just happen by chance. Media and the internet designed it that way and we went with it because it was easier.

Some of us with ADHD and brain fog need to meet ourselves where we’re at and exercise our attention span by watching a two minute video instead of a one minute video. Some of us need to sit down and read a novel with our phones turned off.

Wherever you’re at, just realize that not doing things that feel hard will keep making your attention span worse.

Intrafamilial Parent/Child SA

An informational post on what it is, and advice on how to leave

CW: Incest, paedophilia, childhood sexual abuse, rape, manipulation, gaslighting,

Being a parental incest survivor is incredibly isolating, so I wrote this.

I wrote this with the intention that people currently experiencing this abuse will be able to read it. I took pains to keep the material factual to the ways we are/were manipulated and controlled. I don't discuss specific acts of sexual abuse because these are immaterial to this discussion and individual to the survivor.

Intrafamilial Sexual Assault is the most common form of CSA, Parents are the most common perpetrators of intrafamilial sexual abuse and also the most common perpetrators of childhood sexual abuse, and the next most common being an older sibling. Discretion advised in reading linked criminology paper.

Educational material below the cut.... Please reblog, lack of discussion/knowledge is both isolating and dangerous.

I can't believe I have to say this but I didn't write this for your fandom discourse, I'm not interested in being involved

Parental Incest is an unsettlingly common form of child abuse

Cases of parental incest are far more common than people generally believe. At least 15% of people have experienced a sexual contact of some kind by a parent during their life time, with a significant portion of us being subjected to sexual penetration or attempted penetration. This isn't something you need to feel isolated in as a survivor, don't be silent.

Tell People! Don't keep secrets... But make sure you prepared your safe exit.

Preferably the person you disclose to first is someone who is not connected to your parent/abuser, and is also a person who can help you to leave the abusive situation permanently. If you are a minor you can also make contact with child services (which I encourage if you are below the legal age of independence or there are other children in the house).

Abusers groom their character witnesses as deeply as they groom you. Whatever chips in the wall led you to question your parent/abuser, the people close to them haven't experienced and they have likely groomed the people around you to see you as a "story teller", "attention seeking", or "trouble".

You are likely to be accused of many things, and called many unpleasant names by members of your family and people close to you that you expected to treat you better or protect you, it will hurt.... But you are likely not the only person your parent/abuser has hurt/is hurting.

The reason for telling a person outside of your abusers influence first is that they can reassure you that you are right to act against your abuser if the people you love try to convince you that you're doing the wrong thing.

Why do survivors of parental incest feel obligated to protect our abusers?

Adult perpetrators of Incest act with predictable and repeated behaviours to instill a sense of complicity in their victims/children.

Introducing sexual ideas and behaviours through play.

"Love bombing" making the child feel especially important above other relationships in the parents life.

The parent makes great pains to reinforce to the child how "mature" and "trustworthy" they are.

The parent initiates sexual behaviours, typically followed by emotional reinforcement and statements of the child's responsibility for secrecy.

The narrative of the story is often changed to say that the child initiated the sexual relationship, "you were precocious" or "this was never meant to happen, but I'm glad it did".

If the child questions the relationship the parent explains it away, saying that the world doesn't understand relationships like theirs.

The experience doesn't need to match exactly, but it is likely to follow this closely.

We also feel conflict because beyond the grooming, the experience is paradoxical. You still experience sexual responses, arousal, pleasure and orgasm being subjected to intrafamilial sexual assault. It's traumatic and deeply confusing all on its own.

Abuse usually continues into adulthood.

The continuing abuse isn't necessarily sexual, though it often is, exiting any association with the parent/abuser is important because Incest is a particularly insidious vector of control.

The parent/abuser can leverage both the years of grooming, and also the embarrassment of an adult victim with their associated anxiety (with their generally undiagnosed c-PTSD) to exert control over the survivor/victim. Maintaining their silence, subservience and obedience. Allowing the parent/abuser to extract labour, financial support, and near anything else.

There are no excuses anybody can give for protecting your abuser!!!

There are no excuses, and you should not give any credence to anybody's argument in defence of them... You should not protect them but also you are not required to pursue prosecution of your parent/abuser. We survivors often struggle with significant trauma and have limited support networks. Your safety is paramount and always comes first.

When confronted perpetrators and those close to them will often obfuscate the abuses and their severity.

"it was a lapse in judgement", "I made a mistake", "it won't happen again"...

Or reasons why they can't be reported, such as they are too important to the family's finances, or if they go to prison they will be in danger....

Keep records, if you can do so safely.

This is the hardest part of it all.

If you have records (text messages, emails, letters, photos) keep them. You may not want to pursue prosecution now, but you may one day.

If you have soiled fabrics, put them in a PAPER bag somewhere dry and later seal them in zip lock bags with those silica gel packets if you can. DRY IS GOOD.

If you have not yet been able to leave your situation, diarise events (date/time, brief description). If it is safe to do so.

This will aid any future legal proceedings... Whether you are seeking prosecution or not.

----

(Note: statistically intrafamilial sexual abusers are exclusively intrafamilial abusers, and generally do not have an inclination to abuse children that share no familial ties and may not clinically be paedophiles despite engaging in sexual abuse of children).

----

This post does not discuss sibling incest perpetrators and survivors for these reasons.

Primarily my reason is that Intrafamilial Sexual Assault by a Sibling isn't within my experience

My second reason is that perpetrators behave differently at different ages and if I am going to write about Intrafamilial Sexual Assault by Siblings I will dedicate a post to it.

Third, parents are more common as perpetrators than siblings, while siblings are more likely to be prosecuted and less likely to successfully appeal (despite the overall rate of prosecution being low across the board) discussion bridging the two would need to address the failures in justice and the complexity of this is beyond the scope of this post.

hi any life advice for 21yo

Don't date thirty-year-olds until you are at least 25.

Having a glass of water for every glass of alcohol will give you a 50% reduction in hangover viciousness.

Bad people will use your willingness to be quiet as a weapon against you. If someone's being awful to you and trusting you'll be quiet to keep from making waves, surprise them.

There is no physical object in the world that is worth as much as your honor.

Honor is not the same as dignity. Retaining one sometimes means leaving the other aside.

Don't have any sex you don't want to have; have as much as you want of the sex that you do, whether that's a lot, a little, or none at all. Nothing you can do to your own body is immoral, unless you're doing it as an act of self-punishment.

Food is morally neutral. You do not have to earn the right to eat calories. Fat and sugar keep your brain from eating itself.

Learning to sit still and breathe--in, in, in, hold, hold, hold, out, out, out, out, out, out--can give you five feet of clear space around yourself in a maelstrom.

Find out how to make three good meals: A comfort meal you can make for just yourself relatively easily, a fancy meal you can use to wow a date, and a meal you can feed a bunch of people. All the other cooking can come later, but you can build a community on those three meals.

If you ever get to the point that things are so bleak you can see no other way forward but to die, make any other choice. If that means leaving everything you own and being a beach bum, or quitting your career, or taking up or leaving a religion, or deciding to bicycle across the country, so be it; living means more chances, dying means everything stops and you don't get to see any more interesting things. As you have not yet seen all the things that can interest you, it is better to live.

Hey All,

I've been away for some time, as we've been working really hard on something quite exciting:

let me present to you the world's first ever global ocean drainage basin map that shows all permanent and temporary water flows on the planet.

This is quite big news, as far as I know this has never been done before. There are hundreds of hours of work in it (with the data + manual work as well) and it's quite a relief that they are all finished now.

But what is an ocean drainage basin map, I hear most of you asking? A couple of years ago I tried to find a map that shows which ocean does each of the world's rivers end up in. I was a bit surprised to see there is no map like that, so I just decided I'll make it myself - as usual :) Well, after realizing all the technical difficulties, I wasn't so surprised any more that it didn't exist. So yeah, it was quite a challenge but I am very happy with the result.

In addition to the global map I've created a set of 43 maps for different countries, states and continents, four versions for each: maps with white and black background, and a version for both with coloured oceans (aka polygons). Here's the global map with polygons:

I know from experience that maps can be great conversation starters, and I aim to make maps that are visually striking and can effectively deliver a message. With these ocean drainage basin maps the most important part was to make them easily understandable, so after you have seen one, the others all become effortless to interpret as well. Let me know how I did, I really appreciate any and all kinds of feedback.

Here are a few more from the set, I hope you too learn something new from them. I certainly did, and I am a geographer.

The greatest surprise with Europe is that its biggest river is all grey, as the Volga flows into the Caspian sea, therefore its basin counts as endorheic.

An endorheic basin is one which never reaches the ocean, mostly because it dries out in desert areas or ends up in lakes with no outflow. The biggest endorheic basin is the Caspian’s, but the area of the Great Basin in the US is also a good example of endorheic basins.

I love how the green of the Atlantic Ocean tangles together in the middle.

No, the dividing line is not at Cape Town, unfortunately.

I know these two colours weren’t the best choice for colourblind people and I sincerely apologize for that. I’ve been planning to make colourblind-friendly versions of my maps for ages now – still not sure when I get there, but I want you to know that it’s just moved up on my todo-list. A lot further up.

Minnesota is quite crazy with all that blue, right? Some other US states that are equally mind-blowing: North Dakota, New Mexico, Colorado, Wyoming. You can check them all out here.

Yes, most of the Peruvian waters drain into the Atlantic Ocean. Here are the maps of Peru, if you want to take a closer look.

Asia is amazingly colourful with lots of endorheic basins in the middle areas: deserts, the Himalayas and the Caspian sea are to blame. Also note how the Indonesian islands of Java and Sumatra are divided.

I mentioned earlier that I also made white versions of all maps. Here’s Australia with its vast deserts. If you're wondering about the weird lines in the middle: that’s the Simpson desert with its famous parallel sand dunes.

North America with white background and colourful oceans looks pretty neat, I think.

Finally, I made the drainage basin maps of the individual oceans: The Atlantic, the Arctic, the Indian and the Pacific. The Arctic is my favourite one.

I really hope you like my new maps, and that they will become as popular as my river basin maps. Those have already helped dozens of environmental NGOs to illustrate their important messages all around the world. It would be nice if these maps too could find their purpose.

People with low spoons, someone just recommended this cookbook to me, so I thought I’d pass it on.

I always look at cookbooks for people who have no energy/time to do elaborate meal preparations, and roll my eyes. Like, you want me to stay on my feet for long enough to prepare 15 different ingredients from scratch, and use 5 different pots and pans, when I have chronic fatigue and no dishwasher?

These people seem to get it, though. It’s very simple in places. It’s basically the cookbook for people who think, ‘I’m really bored of those same five low-spoons meals I eat, but I can’t think of anything else to cook that won’t exhaust me’. And it’s free!

itch.io

The Sad Bastard Cookbook by tRaum Books

by Rachel A. Rosen and Zilla Novikov || Food you can make so you don't die.

imperfect consistency rather than an all or nothing mentality

Learning to knit turned out to be an early step in remembering my own small powers.

No good sweater options? I'll knit my own. Pants don't fit quite right? I'll alter them. Hole worn in my favorite pajamas? I'll patch it. Shoes don't match my clothes? I'll dye them. Cabinet not exactly what I hoped for? Paint.

As much as these are small things, I think it's genuinely transformative to take ownership of your space and your things in this way.

Maybe next I can work to transform my relationships, my gatherings, my communities.

i feel like counter-trolling is an essential skill that kids online aren’t learning and it’s kinda worrying

like back in my day, the day of online forums, learning how to trick someone in to getting themselves banned was an essential skill. if you could tell someone was a chud, you would ask them short, leading questions and watch them get frustrated and post longer and longer rants until they said something that would catch a mod’s attention and get them banned and/or at least publicly humiliated. 

and guess what? that’s the exact same tactics the alt-right use now. these people are exclusively acting in bad faith. every interaction these people post online is done with the intention of getting someone to respond to them so they can screenshot the massive paragraphs of text and laugh

so, what’s the solution?

dare ‘em to post dick pics.

don’t acknowledge the content of the stuff they post. if you see someone trying to engage you in bad faith just dare them to post pictures of their penis until they either get frustrated and leave or get frustrated and do it. either way they lose. 

this is the tactic used by the fans of a podcast (that i haven’t listened to) called the Chapo Trap House, and 4chan’s /pol/ users fucking HATE them. they hate Chapo Trap House and think they’re crazy because Chapo Trap House fans refuse to engage in meaningful debate and repeatedly demand dick pics. they get frustrated and leave. it works. 

...what is the "sex is just rock climbing" category

It was kind of a joke between me and a friend ("you wouldn't judge someone for having gone rock climbing with a bunch of different people") but honestly the more I thought about it the more I bought into it unironically because:

It is a physical activity done with one or more partners

You should only go rock climbing with people you trust not to let you fall

You should not go rock climbing with someone who is drunk or currently incapable of rational decision-making

Some people get super super super into rock climbing and do not shut up about all the places they have climbed and how many are left on their bucket list and these people are usually men between the ages of 20 and 35 and like it's fine dude I'm glad you're happy but I don't know what most of those mountains even are

While many consider it a fun activity, pressuring someone into climbing when they don't want to (or ignoring their feelings and just dangling them off a cliff,) could cause both psychological and physical trauma

There is no moral value to it whatsoever. Who you have gone rock climbing with (or whether you have rock climbed at all) has no bearing on who you are as a person. Imagine telling someone "it's not that heights make you nauseous, it's just that you haven't found the right person to belay you!" or "you need to save your first time rock climbing for someone special." That would be absurd.

historically I have not asked myself "will this aggravate my hip flexer injury" before participating when perhaps I should have 😔