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More Posts from Resources-and-reminders and Others

If you don't mind me asking, what ARE the right codewords to use on doctors and such?

I’ve thought, many times, about writing a book or something that was basically How To Negotiate Your Disability Without Curling Into A Ball And Weeping More Than Once Or Twice A Week *Or* Murdering The Entire Universe (More Than Once Or Twice A Week).

Here are some highlights:

1) On acquiring adequate pain medication.

Never actually say “I really need strong drugs here doctor, because the drugs you and every other doctor gave me for this injury/illness didn’t work, and also I’ve been in pain for years and I’d like that to stop.”

While there are some doctors who speak human languages and will understand what you’re saying, most, when you say that, will hear:

“I am a ravening junkie werekaiju, and I will come to your house and EAT YOUR BABIES IF YOU DON’T GIVE ME HEROIN.”

You think I’m kidding? Watch a healthcare professional’s eyes when someone else says something like the following. Watch them shut down and back away and tighten up and generally stop treating the person like a human. So what do you say?

Try this:

“Well, I hate these drugs that make me *stupid*, you know? One of these so-called doctors — they gave me some pill that made me feel like I was on a whole separate planet for *years*, but I was still in pain! I have things to *do*, doctor. I have a job/family/projects. I wouldn’t be here if I could get my work done the way I am now, but if I can’t do them with the drugs you give me, then what’s the point?”

Make sure to translate this into the appropriate dialect for your area, but note the important points:

a) Reassures the doctor that you’re not one of those ~*eeevil*~ junkies.b) Reassures the doctor that you’re not one of those ~*eeevil*~ non-productive members of society.

c) Reassures the doctor that you’re not one of those ~*eeevil*~ weak-willed disabled people.

Remember not to use too *much* *correct* medical jargon — they get suspicious about that.

Yes, all of this is necessary a *lot* of the time.

With the above code, 95% of the time the doctors begin *cooing* at me and treating me like *royalty* — and *100%* of the time I have gotten the effective medication.

Pro-tip: If you can add a true (or true-sounding) story about how much you *hate* one *particular* opiate (“Percocet is useless! All it does is make me stupid!”), then you’re probably in the bag.

2) Acquiring mobility devices.

Never actually say “I need a walker/wheelchair/scooter, because I have trouble getting around, and also I have a great deal of fatigue and pain when I try to do so.”

While some healthcare professionals speak human languages and have souls… well. A lot of them? Will hear this:

“I am a fat, lazy, Fatty McFatFat, and I will continue to expand, much like the universe, until I am a drain on the resources of this great nation and a proof that you, doctor, are a failure. I will never use the mobility devices, ever, and they will gather dust in my home — a mockery of everything you, Morally Healthy Person, holds dear.”

Yes, I know this makes even less sense than the former, but I’ve interrogated these people — the ones who have still have partially-functional souls and minds — and this really is how it works in their adorable little pinheads.

They really do think we’re asking for these devices for… no reason at all.

Or, as my otherwise sane GP put it, she has an honest fear that people like us will  take one look at our new mobility devices and throw all caution — and sense — to the winds. That we’ll stop stretching and exercising. That those of us who *can* walk for short distances will — somehow! — decide to *never walk again*. That we’ll decide to — gleefully! cheerfully! blithely! — let every last one of the muscles we’ve been clinging to with our *fingernails* *atrophy* to *nothing*, because…

Because they think we’re idiots, that’s why. So, try this instead:

“I have a lot of pain and fatigue when I try to walk for any kind of distance, at all, and that’s getting in the way of my ability to have anything resembling an active life. It’s even hard to get to my doctor’s appointments sometimes! I want to do at least some of my own shopping and other errands, and go out with my friends, and at least try to hold down a job, but unless the weather is really good and I’m having a good day in other ways, it’s just not going to happen. I don’t want to stop using my cane/walker/whatever completely — and I *won’t* unless I *have* to, just like I won’t stop doing my PT and OT exercises — but I need something that will let me actually have a life.” Note the similarities to the pain management code — and yes, do make sure you put this in your own words.

But also make sure you keep everything that makes you sound like the Virtuous Handicapable Person you totally are.

Because that’s necessary.Yes, it is.Yes. It. Is. Just as it will be necessary, in many states — make sure you check — to add in this little number:

“It’s just… well, you know that I don’t really have any bladder or GI issues, doctor, but I still… sometimes… on bad mobility days… you know.”

Here’s where you look down.

“Sometimes I don’t make it… you know. In time.”

Understand that you’ll have to repeat this to, like, four different people. At least.Understand that some of them will make you get specific.

If it helps, pretend you’re Steph Brown, doing her level best to gross the everloving bejeezus out of her P.E. teacher with graphic stories about her period so she can get out of class and fight crime.

*I* certainly found that helpful.

It's so weird talking to people who's view of "here's the way life is for everyone" is shattered as soon as they talk to someone with disabilities (physical, mental illness, any). Like you'll say you'll have a problem and instead of helping you they'll argue with you about how you're not actually facing that problem. Like,

Me: Hey, I'm really struggling to find a job and a part of it is my resume. I was depressed & psychotic during highschool so I didn't do anything to gain skills or achievements to put on my resume. I also don't have anyone to put as a reference. What can I do?

Them: You can add your skills, hobbies, clubs you're in, and different volunteer work you've done! You can also get your teacher as a reference.

Me: I already know what to put on a resume, my issue is that I don't have things that I can use. Also, I'm in my mid 20s so I don't know if I can put my highschool teacher as a reference.

Them: Well if you're a part of a church or an activity group, you could add that. Also, think of any projects you've worked on in the past.

Me: I already know you can put these things on a resume. I'm not looking for suggests of things I've already done, I'm looking for what I can do now if I haven't done anything.

Them: There's no way you didn't do anything during highschool?? What about some odd jobs you definitely did for extra money, like babysitting or mowing the lawn?

Me: I spent all of highschool either in modified classes or in bed doing nothing - not even hobbies, what about that do you not understand?

And then you talk to someone who's also disabled and they're like "Here's a bunch of jobs you can do from home that don't pay much but look good on a resume, here's some free online courses that also look good on a resume, here's how you can be making small amounts of money in the meantime, here's some things you can put besides a professional reference, and here are your rights if your future employer tries to take advantage of your disability - which you probably shouldn't tell them about unless you need accommodations."

And suddenly my will to continue trying returns!

There was a website called StumbleUpon. You clicked a button and you'd get redirected to some random website on the Internet ran by some random person about some random thing or community. https://t.co/6hoZA5hs4g

— SwiftOnSecurity (@SwiftOnSecurity) July 8, 2023

I can't stress enough how much I miss StumbleUpon

10 months ago

if it sucks hit da bricks <- litany against sunk cost

take it easy but take it <- litany against burnout/apathy cycle

fuck it we ball <- litany against perfectionism

now say something beautiful and true <- litany against irony poisoning

So I taught my students during the first few weeks of class that for their paper, they needed to cite profusely. They needed to cite more than they thought they should cite. They needed to cite multiple times per paragraph. I told them that it was literally impossible for them to over-cite. I showed them an example of my own published papers. It was in the rubric.

At the end of the term, I graded their papers. Most of them did ok. Some of them only cited 2-3 sources even though their References section had 6 sources. And some of them... some of them didn't cite a single time in their entire paper. They had their citations in the References section, but didn't cite them in the paper even once.

Some people just do not follow directions. It's baffling.

And that doesn't even get into all of the APA style errors. Those I can forgive because citation styles are confusing. Citing enough and citing correctly are two separate parts on my rubric to account for this fact, actually.

BUT - it just gives me data for how to teach this even better next semester. I don't have any way to require them to use a citation manager, but the students who used one did MUCH better than those who didn't.

hi any life advice for 21yo

Don't date thirty-year-olds until you are at least 25.

Having a glass of water for every glass of alcohol will give you a 50% reduction in hangover viciousness.

Bad people will use your willingness to be quiet as a weapon against you. If someone's being awful to you and trusting you'll be quiet to keep from making waves, surprise them.

There is no physical object in the world that is worth as much as your honor.

Honor is not the same as dignity. Retaining one sometimes means leaving the other aside.

Don't have any sex you don't want to have; have as much as you want of the sex that you do, whether that's a lot, a little, or none at all. Nothing you can do to your own body is immoral, unless you're doing it as an act of self-punishment.

Food is morally neutral. You do not have to earn the right to eat calories. Fat and sugar keep your brain from eating itself.

Learning to sit still and breathe--in, in, in, hold, hold, hold, out, out, out, out, out, out--can give you five feet of clear space around yourself in a maelstrom.

Find out how to make three good meals: A comfort meal you can make for just yourself relatively easily, a fancy meal you can use to wow a date, and a meal you can feed a bunch of people. All the other cooking can come later, but you can build a community on those three meals.

If you ever get to the point that things are so bleak you can see no other way forward but to die, make any other choice. If that means leaving everything you own and being a beach bum, or quitting your career, or taking up or leaving a religion, or deciding to bicycle across the country, so be it; living means more chances, dying means everything stops and you don't get to see any more interesting things. As you have not yet seen all the things that can interest you, it is better to live.

the coolest people are actually weird and fucked up and strange and peculiar and they just dont care. the coolest people are actually lame as hell and they rock it. this is what ive learned

The Outbursts Of Everett True Was A Comic Strip That Ran In Papers From 1905 To 1927, Wherein The Aforementioned

The Outbursts of Everett True was a comic strip that ran in papers from 1905 to 1927, wherein the aforementioned Everett True regularly beat the everliving shit out of rude people as a warning to anyone else who might consider being rude. Men have not only been taking up too much room on public transport for about as long as public transport has existed, but the people around them have been irritated about it for at least a hundred years. The next time someone tries to claim that manspreading is a false phenomenon, please direct them to this strip so that Everett True can correct their misconceptions with an umbrella upside the head.

This New Website is Making It Easier To Shop for Plus-Size Clothing
goodgoodgood.co
A new website aims to make finding ethical, sustainable plus-size clothes (that actually fit) a whole lot easier.

"Shopping for clothes is already intimidating. There are so many options and styles to consider, as well as factors like sustainability and ethics.

But for people in fat, disabled, or queer and gender-nonconforming bodies, it’s even more arduous.

Nico Herzetty, Emma K. Clark, and Paul Herzetty wondered: What if there was a way people could shop — not necessarily by color or size — but by measurements, materials, and ethics?

So they set off to create their website: Phoria. 

Here, shoppers can set up a free profile, add their body measurements (and “typical fit challenges”) and peruse over 270 brands. Once these data points are entered, users can personalize their pages with “saved,” “recommended,” or “hidden” brands. 

Pages can be totally private, or shared with the community to connect over styles and brands.

Aside from fit, brands in the Phoria database (which claims to be “the largest database of plus-friendly brands”) can also be filtered as “gender-neutral,” “woman-run,” “small business,” or “natural fibers.” Users can also filter for price, preferred styles, and more.

A screenshot of the "Fit Challenges" feature on Phoria, on top of a stylish purple and blue background. The screenshot has a search bar titled "Your Fit Challenges," and a dropdown menu to "Search for common challenges." The challenges visible in the dropdown include "Sleeves too long," "Sleeves too short," "Tops too tight across chest/bust," "Tops too tight across large tummy," and "Chest and waist need different sizes (e.g., small chest, large tummy.)" That last option is highlighted by the cursor.

Pictured: A screenshot of the "Fit Challenges" feature on a Phoria user's profile.

Some brands include popular names like Athleta, Levi’s, and Patagonia. Others are small businesses, like Beefcake Swimwear, or Hey Peach.

“For so many people, it feels too damn hard to find and keep clothing that fits in all the ways that really matter. So we’re doing something about it,” the Phoria website reads.

“Unlike most online shopping experiences, we center the needs of plus-size women, nonbinary, and trans people, and prioritize supporting clothing brands focused on sustainability, ethics, and inclusion.” ...

That team — made up of Clark, and Nico and Paul Herzetty — calls themselves “fat, disabled, and very, very queer.” 

“These are some of the main ways we identify, and they’re qualities that have directly impacted our ability to get dressed every day in a way that feels good,” the Phoria team introduces themselves on the website.

A screenshot set in a stylized web browser on top of a stylish colored background. The page, from Phoria's plus-size clothing brand database, is titled in big letters "The largest database of plus-friendly brands." Six brands are visible in the screenshot, each one including the name of the brand, a photoshoot picture of someone modeling a look, and a brief description. Below the highlighted brands is a wide button that says, "See all 270+ brands."

Pictured: A screenshot of Phoria's plus-size clothing brand database.

In addition to catering the user experience to women, non-binary, and trans people, Phoria is also a benefit corporation, or a B corp.

“We’ve legally required ourselves to consider the interests of all our stakeholders — customers, employees, the planet, and our shareholders,” the Phoria website explains.

“Our specific public benefit purpose is to reduce people’s dependence on buying mass-produced items made in unsustainable ways and to use human-centered business models to boldly challenge economic systems of inequity.” 

Right now, in the early stages of the company’s business, it doesn’t make any money.

“We’re focused on building something that genuinely solves plus-size people’s challenges around clothes shopping and supports smaller and more sustainable brands,” Phoria’s website states.

So, spreading the word seems to be of utmost importance...

Additionally, TikTok creators @couplagoofs (a queer couple named Morgan and Phoebe), recently shared a video in which they discovered Phoria. They met the website’s creators at a fat liberation event in their city and were introduced to the tool.

Quickly, commenters responded with gratitude and excitement.

“It is so disappointing to sort through pages of plus size clothes that aren’t even plus size,” a TikTok user commented. “This is gonna be such a good tool!” 

Some even shared emotional responses, speaking to the need at the heart of Phoria’s mission. 

“I’m… gonna cry,” another commenter wrote. “I’ve needed this my whole life.”"

-via Goodgoodgood, November 20, 2023

in my dream world that i live in sometimes we stop saying things like “NOBODY is gross or dirty!!!” And start saying things like “being gross or dirty isn’t a moral flaw or failing”

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tumblr wisdom, refs, advice, guides this blog exists for me to refer back to |main @kit-kat-kake

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