If You Don't Mind Me Asking, What ARE The Right Codewords To Use On Doctors And Such?

If you don't mind me asking, what ARE the right codewords to use on doctors and such?

I’ve thought, many times, about writing a book or something that was basically How To Negotiate Your Disability Without Curling Into A Ball And Weeping More Than Once Or Twice A Week *Or* Murdering The Entire Universe (More Than Once Or Twice A Week).

Here are some highlights:

1) On acquiring adequate pain medication.

Never actually say “I really need strong drugs here doctor, because the drugs you and every other doctor gave me for this injury/illness didn’t work, and also I’ve been in pain for years and I’d like that to stop.”

While there are some doctors who speak human languages and will understand what you’re saying, most, when you say that, will hear:

“I am a ravening junkie werekaiju, and I will come to your house and EAT YOUR BABIES IF YOU DON’T GIVE ME HEROIN.”

You think I’m kidding? Watch a healthcare professional’s eyes when someone else says something like the following. Watch them shut down and back away and tighten up and generally stop treating the person like a human. So what do you say?

Try this:

“Well, I hate these drugs that make me *stupid*, you know? One of these so-called doctors — they gave me some pill that made me feel like I was on a whole separate planet for *years*, but I was still in pain! I have things to *do*, doctor. I have a job/family/projects. I wouldn’t be here if I could get my work done the way I am now, but if I can’t do them with the drugs you give me, then what’s the point?”

Make sure to translate this into the appropriate dialect for your area, but note the important points:

a) Reassures the doctor that you’re not one of those ~*eeevil*~ junkies.b) Reassures the doctor that you’re not one of those ~*eeevil*~ non-productive members of society.

c) Reassures the doctor that you’re not one of those ~*eeevil*~ weak-willed disabled people.

Remember not to use too *much* *correct* medical jargon — they get suspicious about that.

Yes, all of this is necessary a *lot* of the time.

With the above code, 95% of the time the doctors begin *cooing* at me and treating me like *royalty* — and *100%* of the time I have gotten the effective medication.

Pro-tip: If you can add a true (or true-sounding) story about how much you *hate* one *particular* opiate (“Percocet is useless! All it does is make me stupid!”), then you’re probably in the bag.

2) Acquiring mobility devices.

Never actually say “I need a walker/wheelchair/scooter, because I have trouble getting around, and also I have a great deal of fatigue and pain when I try to do so.”

While some healthcare professionals speak human languages and have souls… well. A lot of them? Will hear this:

“I am a fat, lazy, Fatty McFatFat, and I will continue to expand, much like the universe, until I am a drain on the resources of this great nation and a proof that you, doctor, are a failure. I will never use the mobility devices, ever, and they will gather dust in my home — a mockery of everything you, Morally Healthy Person, holds dear.”

Yes, I know this makes even less sense than the former, but I’ve interrogated these people — the ones who have still have partially-functional souls and minds — and this really is how it works in their adorable little pinheads.

They really do think we’re asking for these devices for… no reason at all.

Or, as my otherwise sane GP put it, she has an honest fear that people like us will  take one look at our new mobility devices and throw all caution — and sense — to the winds. That we’ll stop stretching and exercising. That those of us who *can* walk for short distances will — somehow! — decide to *never walk again*. That we’ll decide to — gleefully! cheerfully! blithely! — let every last one of the muscles we’ve been clinging to with our *fingernails* *atrophy* to *nothing*, because…

Because they think we’re idiots, that’s why. So, try this instead:

“I have a lot of pain and fatigue when I try to walk for any kind of distance, at all, and that’s getting in the way of my ability to have anything resembling an active life. It’s even hard to get to my doctor’s appointments sometimes! I want to do at least some of my own shopping and other errands, and go out with my friends, and at least try to hold down a job, but unless the weather is really good and I’m having a good day in other ways, it’s just not going to happen. I don’t want to stop using my cane/walker/whatever completely — and I *won’t* unless I *have* to, just like I won’t stop doing my PT and OT exercises — but I need something that will let me actually have a life.” Note the similarities to the pain management code — and yes, do make sure you put this in your own words.

But also make sure you keep everything that makes you sound like the Virtuous Handicapable Person you totally are.

Because that’s necessary.Yes, it is.Yes. It. Is. Just as it will be necessary, in many states — make sure you check — to add in this little number:

“It’s just… well, you know that I don’t really have any bladder or GI issues, doctor, but I still… sometimes… on bad mobility days… you know.”

Here’s where you look down.

“Sometimes I don’t make it… you know. In time.”

Understand that you’ll have to repeat this to, like, four different people. At least.Understand that some of them will make you get specific.

If it helps, pretend you’re Steph Brown, doing her level best to gross the everloving bejeezus out of her P.E. teacher with graphic stories about her period so she can get out of class and fight crime.

*I* certainly found that helpful.

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Until I Read The Third Tag I Was Hearing The Most Wise Shit In The Universe. Then It Just Became The

until i read the third tag i was hearing the most wise shit in the universe. then it just became the most insightful driving advice finally put to words, still a net gain

You're just a mammal. Let yourself act like it. Your brain needs enrichment. Your body needs rest. You feel hunger and grow hair. You need to pack bond with other sentient things so you don't become unsocialized and neurotic. You are biologically inclined to seek dopamine and become sick when chronically stressed. "Hedonism" is made up to place moral value on taking pleasure in sensory experiences. I am telling you that if you don't let yourself be a fucking mammal, as you were made, you will suffer and go insane. No grindset no diets no trying to be above your drive for connection. Pursue what makes you feel good and practice radial rejection of the constructs meant to turn you into a machine. You're a mammal.

Abusers are generally great at something called “manufacturing insecurity”. It means, even if you’ve never been insecure about something, abuser will create an insecurity about it, solely for the purpose of emotionally manipulating you. Meaning, when you’re not doing, saying, or thinking what they want, they have a go at your “insecurity”, triggering your pain, fear, guilt, shame, everything they taught you to feel, as a way to teach you that this pain is what you’re going to get if you fail to obey them.

It’s not exactly hard to manufacture an insecurity (provided you are cruel and vicious), all you have to do is take a social norm and convince a person they aren’t good enough in one or all departments. You convince a person they’re too loud, too fat, too ugly, slow, naive, gullible, stupid, lazy, selfish, sexual, provocative, demanding, and that this is the reason why they will always fail, it’s a reason why they keep getting hurt, it’s a reason why nobody will ever love or care for them. It’s utterly cruel, and an absolute lie. Deviating from the “norm” in any way is not a reason of any of those things, if you’re getting hurt it’s because people are hurting you, if you’re unloved it’s because people around you refuse to show affection and care. These things cannot be the individual’s fault, it’s always the environment setting person up for pain. And abusers already know this. But they make a step to convince a victim it’s all their fault, everything others do to them, their fault. And even worse, that they deserved being hurt.

This kind of nonsense blaming everything on unrelated trait of individual can lead to a person getting terrified they could have somehow caused horrible things just by being themselves, that it’s impossible to even predict what might happen to them just because they’re “this way” or another. It creates an atmosphere of panic and confusion, and they find themselves seeing no way forward but to accept guidance from abuser. Abuser then pretends to know what victim is to do in order to avoid pain and failure - of course, only up to the point when abuser decides to inflict pain on purpose, to control and manipulate.

You’re not stupid if you fall for this kind of trap, it’s designed to work on people who are self-aware, who work on getting themselves better, who are trying their hardest. You don’t even have to lack confidence, abusers will take a confident person and eat their confidence away. And once caught in this situation, it might be hard to believe that someone would stoop that that kind of cruelty and lie to you while knowing perfectly well that you are good, that there’s no reason on earth to criticize your traits, that you have nothing to be ashamed of. That you haven’t deserved any of it.


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It's exhausting and hurtful to have your every action perceived as if you had the worst intentions, even when you're trying your best to do good. It's what forces you to constantly fight to prove yourself, that you do things in good faith, that you're being honest, that you mean well, as if your actions don't already prove it.

And the thing is it never stops, no matter how hard you try to show your true qualities it's never good enough, you always have to try harder and then hear the lies about what you meant by it. It puts you in this magic loop with no escape, you are never understood clearly, you are never free. At one point you too start wondering if they're right, if your intentions are bad. You doubt yourself, you feel guilty for wanting to feel good about yourself.

Anyone doing this to you does not care for you. You don't deserve to be continually misrepresented and to have the value of your actions voided by someone thinking you should have done differently. You should not be brought to exhaustion trying to be good enough for people who do not care if they're being good to you. People who usually do this won't tolerate any bad intention ascribed to their actions, even when it clearly belongs there. They judge you on standards they would never impose on themselves.

My chronic pain doctor suggested I exercise more

I asked him “how?”

He looked confused. Said I should try a bit every day

I said “not when, how?” I asked what exercises I should do

He suggested half a dozen options that had all been explicitly banned by other doctors. I’m not allowed to run. I’m not allowed to bike. I’m not allowed to use my rowing machine or my punching bag.

I walk my dog whenever I have the energy and when it doesn’t hurt too much

What else can I do?

He told me I should exercise more

And then he changed the subject.

Recently discovered, fully by accident, that the trick to feeling like you have more time in the day is to actually do shit with the time that's there, which seems fake and wrong and it's frankly infuriating that it works >:|

Everything Everywhere All At Once (2022) Dir. Daniel Kwan And Daniel Scheinert
Everything Everywhere All At Once (2022) Dir. Daniel Kwan And Daniel Scheinert

Everything Everywhere All at Once (2022) dir. Daniel Kwan and Daniel Scheinert

Everything Everywhere All At Once (2022) Dir. Daniel Kwan And Daniel Scheinert

Hey All,

I've been away for some time, as we've been working really hard on something quite exciting:

let me present to you the world's first ever global ocean drainage basin map that shows all permanent and temporary water flows on the planet.

Ocean drainage basin map of the world, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

This is quite big news, as far as I know this has never been done before. There are hundreds of hours of work in it (with the data + manual work as well) and it's quite a relief that they are all finished now.

But what is an ocean drainage basin map, I hear most of you asking? A couple of years ago I tried to find a map that shows which ocean does each of the world's rivers end up in. I was a bit surprised to see there is no map like that, so I just decided I'll make it myself - as usual :) Well, after realizing all the technical difficulties, I wasn't so surprised any more that it didn't exist. So yeah, it was quite a challenge but I am very happy with the result.

In addition to the global map I've created a set of 43 maps for different countries, states and continents, four versions for each: maps with white and black background, and a version for both with coloured oceans (aka polygons). Here's the global map with polygons:

Ocean drainage basin map of the world, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

I know from experience that maps can be great conversation starters, and I aim to make maps that are visually striking and can effectively deliver a message. With these ocean drainage basin maps the most important part was to make them easily understandable, so after you have seen one, the others all become effortless to interpret as well. Let me know how I did, I really appreciate any and all kinds of feedback.

Here are a few more from the set, I hope you too learn something new from them. I certainly did, and I am a geographer.

Ocean drainage basin map of Europe, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

The greatest surprise with Europe is that its biggest river is all grey, as the Volga flows into the Caspian sea, therefore its basin counts as endorheic.

An endorheic basin is one which never reaches the ocean, mostly because it dries out in desert areas or ends up in lakes with no outflow. The biggest endorheic basin is the Caspian’s, but the area of the Great Basin in the US is also a good example of endorheic basins.

Ocean drainage basin map of Africa, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured green if they flow into the Atlantic, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

I love how the green of the Atlantic Ocean tangles together in the middle.

Ocean drainage basin map of South Africa, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured green if they flow into the Atlantic, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

No, the dividing line is not at Cape Town, unfortunately.

Ocean drainage basin map of the contiguous United States, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

I know these two colours weren’t the best choice for colourblind people and I sincerely apologize for that. I’ve been planning to make colourblind-friendly versions of my maps for ages now – still not sure when I get there, but I want you to know that it’s just moved up on my todo-list. A lot further up.

Ocean drainage basin map of the state of Minnesota, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

Minnesota is quite crazy with all that blue, right? Some other US states that are equally mind-blowing: North Dakota, New Mexico, Colorado, Wyoming. You can check them all out here.

Ocean drainage basin map of South America, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

Yes, most of the Peruvian waters drain into the Atlantic Ocean. Here are the maps of Peru, if you want to take a closer look.

Ocean drainage basin map of Asia, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a black background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

Asia is amazingly colourful with lots of endorheic basins in the middle areas: deserts, the Himalayas and the Caspian sea are to blame. Also note how the Indonesian islands of Java and Sumatra are divided.

Ocean drainage basin map of Australia, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a white background, the rivers are coloured orange/mustard for the Pacific Ocean, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Map created by Grasshopper Geography.

I mentioned earlier that I also made white versions of all maps. Here’s Australia with its vast deserts. If you're wondering about the weird lines in the middle: that’s the Simpson desert with its famous parallel sand dunes.

Ocean drainage basin map of North America, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is on a white background, the rivers are coloured blue if they flow into the Arctic, green if they flow into the Atlantic, orange/mustard for the Pacific, pink for the Indian Ocean, and grey if they are endorheic (don't end up in oceans). Oceans are also coloured. Map created by Grasshopper Geography.

North America with white background and colourful oceans looks pretty neat, I think.

Drainage basin map of the Arctic Ocean, showing all temporary and permanent water flows colour-coded according to the ocean they end up in. The map is cenetred at the North Pole, the rivers are shown on a black background. They are coloured blue if they flow into the Arctic, otherwise they are just grey lines. Map created by Grasshopper Geography.

Finally, I made the drainage basin maps of the individual oceans: The Atlantic, the Arctic, the Indian and the Pacific. The Arctic is my favourite one.

I really hope you like my new maps, and that they will become as popular as my river basin maps. Those have already helped dozens of environmental NGOs to illustrate their important messages all around the world. It would be nice if these maps too could find their purpose.

My face is having uncontrollable spasms. Great. It hurts really, really, really bad.

I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”

learning how to get out of the victim mindset and approach situations from the student perspective is changing the entire trajectory of my life. i am learning how to stand up for myself i am learning how to make decisions i am learning how to express my feelings i am learning how to live

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