You need a three ring binder. And sheet protectors. And tabs. “Why?”
‘Cause you need a medical binder.
What is a medical binder? A place that you store your medical information paperwork. All of it.
Why should I have this? Documentation. Insurance and medical care are all about documentation. If it’s not in writing, it didn’t happen and doesn’t exist. Why can’t you do it electronically? Because the internet can be compromised. No one can hack a piece of paper from a thousand miles away. Having a copy of your medical records means you have easy access to talk to a new doctor and get them up to speed.
For my fellow chronic illness people, this is what keeps you from going batsh*t insane if you see a new doctor or need to go to the hospital.
What should go in it?
Medical Records: This is a copy of whatever records you have from whatever appointments/visits you go to. Have a check-up? Get a printed copy. Have lab work run? Get a printed copy of records. ER visit? Printed copy. Surgery? Printed copy. Vaccine? Printed copy. I recommend having documentation going back at least five years. Include lists of any medications you’ve taken, along with start/stop dates. This is ideally a catch-all of everything you would want to tell a brand new doctor so they can immediately pick up where your last doctor left off. If you have chronic illnesses, this is where you want to include a history of it. Diagnosis, medications and treatments that have worked and not worked, and all symptoms/progressions you’ve noticed.
Medical Bills: Did you pay a bill? Print a copy of the receipt? Did you get a bill? Save it and then add the receipt after you pay it. Collections notice? Financial Hardship paperwork? Payment plan agreements? Print and add here.
Insurance Paperwork A copy of your ID card, a copy of your summary plan document, and any copies of your claims. Print it and save it.
Misc. Anything else related to your healthcare/bills that you could need. If you think in five years there is the remote possibility you could need this specific piece of paper, print it and save it.
These documents are important to have. If you're in an accident and you have everything on hand (or can have someone bring you everything), you're already ten steps ahead. Otherwise, your new doctor has to have you sign a HIPAA form for every single doctor you've ever seen so they can send your records to be reviewed blah blah blah. The main point is that process is time consuming and frustrating. Save everyone (and yourself) the headache.
Do people know about Vocational Rehab? If you're USAmerican they have this in every state.
It's a program that helps disabled folks access education, training, and employment. For FREE.
You only have to be disabled to qualify (autism, ADHD, mental illness, physical illness, etc) and they cover very broad categories of disability. You do NOT have to be officially diagnosed yet when you walk in - they will even help pay for your diagnosis if you are struggling w disability.
I applied with my suspected autism and fibromyalgia, and they paid for 100% of my formal autism assessment.
Once your disability is established they will give you career counseling to learn about your interests and skills, and depending on the plan you create with your caseworker they will then help with school or finding employment. They paid for 100% of my college tuition and books, and even provided a laptop for me to use.
You do not have to pay anything for this program. If you make above a certain income, you will have to contribute to educational costs but will still receive assistance.
They will also help with the cost of things like mental health counseling while you work towards your goals, clothing for interviews, etc.
They cannot discriminate based on your race, gender, or sexual orientation.
They won't make you do excessive meetings.
They will allow you to do meetings with your caseworker remotely.
They will not drug test you.
They want you to succeed.
I'm sure that individual experiences vary but my caseworker was exceptionally easy to work with and very kind.
Vocational Rehab is a phenomenal resource every disabled person should be aware of. Here is the list of offices in every state:
Another free Notion template! This one is a digital medical binder to keep all your medical information in one place, to make the medical system easier to deal with. A minimalist and mobile friendly version coming soon!
ok y'all so it's almost 1 in the morning and i can't sleep so i figured i might as well make use of my time. these tips are from what have personally worked well for me as a person who's been dealing with ibs and gerd since basically birth. of course these might not work for everyone, this is just what has helped me the most :)
first, make sure you've taken your meds!
sip on some cold water. preferably with ice.
get some cool air. whether that's through a window or just a fan.
drip some cold water onto the veins of your wrist. i know this sounds kinda weird, but my dad said it's a trick he learned in the military to help nausea. it's worked pretty well for me, personally. though the effect is temporary.
sip on some cola or another fizzy pop. carbonation helps you burp, and you honestly might just have some trapped gas. you'd be shocked how just one good, trapped burp makes you feel like you need to projectile vomit. drink in small, frequent amounts, not large gulps(for the love of god don't take large gulps. please). this is honestly one of the best tricks for nausea for me, it helps within minutes or sometimes a bit longer.
sniff some rubbing alcohol. again, kinda weird, but it works pretty well for some reason.
drink some pepto bismol. a life saver honestly.
take some tums. i highly recommend the peppermint flavored ones. tums are usually for acid reflux/gerd, but the peppermint really helps the nausea part for me. that's why i usually get these bc i'm killing two birds w/ one stone lol
sleep at a high elevation. this helps stomach contents from coming back up. there's been many times where i've had to sleep at a 90° angle. get out your pillows and stuffed animals to make one giant mountain if you have to (that's what i do at least).
sleep on your left side. if you really want to sleep on your side, sleeping on the left keeps the stomach contents down the best.
distract yourself. either watching your favorite show, playing a game, or, hell, even working. this might be a bit tricky if the nausea is overwhelming, though.
avoid strong smells. rubbing alcohol is the exception here, but strong smelling things (esp food) has always made my nausea much worse.
avoid spicy/punch-to-the-face type food. eat simple foods like toast, saltine crackers, or applesauce. my personal favorite is dried seaweed (salted)!
sit upright; try not to slouch. sitting upright helps you digest food properly and gets rid of any trapped gas as well.
don't move around a ton. of course, some simple stretching is beneficial, but i'm just suggesting you don't go run for a few miles when you're feeling like shit <3
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what are your thoughts on ibs diagnosis
78% of people reporting to ERs due to IBS have chronic gastritis.
population studies on microscopic colitis are rare, but have found that rates are much much higher on a population level than previously assumed
the symptoms labeled as ibs (diarrhea and constipation with no obvious flags for inflammatory bowel disease) are often treated as an issue of simple dietary intolerances, or as a psychosomatic condition, and people with ibs are told to follow various diets, or to "reduce stress."
these diets tend to be high fiber, which could literally kill someone whose actual issue is gastroparesis, or could severely aggravate microscopic colitis. i know that when i was trying to eat high fiber, my symptoms were completely unmanageable, and switching to a low fiber diet is the only thing that's helped at all. the food intolerance stuff can be really helpful for people who do have rare food intolerances, but for people who actually/also have autoimmune gastritis, it wastes time that could be spent monitoring for gastric atrophy, metaplasias, and precancerous lesions.
the worst part of this is that things like microscopic colitis and h-pylori related chronic gastritis are treatable, either with steroid medication or antibiotics to kill the h-pylori. but if you're dismissed with "dietary changes" or "reduce stress," then you're not getting treated for conditions that can cause really serious tissue damage and increase your cancer risk.
basically ibs is a "fuck you get out of my office" diagnosis