what are your thoughts on ibs diagnosis
78% of people reporting to ERs due to IBS have chronic gastritis.
population studies on microscopic colitis are rare, but have found that rates are much much higher on a population level than previously assumed
the symptoms labeled as ibs (diarrhea and constipation with no obvious flags for inflammatory bowel disease) are often treated as an issue of simple dietary intolerances, or as a psychosomatic condition, and people with ibs are told to follow various diets, or to "reduce stress."
these diets tend to be high fiber, which could literally kill someone whose actual issue is gastroparesis, or could severely aggravate microscopic colitis. i know that when i was trying to eat high fiber, my symptoms were completely unmanageable, and switching to a low fiber diet is the only thing that's helped at all. the food intolerance stuff can be really helpful for people who do have rare food intolerances, but for people who actually/also have autoimmune gastritis, it wastes time that could be spent monitoring for gastric atrophy, metaplasias, and precancerous lesions.
the worst part of this is that things like microscopic colitis and h-pylori related chronic gastritis are treatable, either with steroid medication or antibiotics to kill the h-pylori. but if you're dismissed with "dietary changes" or "reduce stress," then you're not getting treated for conditions that can cause really serious tissue damage and increase your cancer risk.
basically ibs is a "fuck you get out of my office" diagnosis
it shouldn't be a controversial take but:
disabled people are allowed to hate being disabled
Do people know about Vocational Rehab? If you're USAmerican they have this in every state.
It's a program that helps disabled folks access education, training, and employment. For FREE.
You only have to be disabled to qualify (autism, ADHD, mental illness, physical illness, etc) and they cover very broad categories of disability. You do NOT have to be officially diagnosed yet when you walk in - they will even help pay for your diagnosis if you are struggling w disability.
I applied with my suspected autism and fibromyalgia, and they paid for 100% of my formal autism assessment.
Once your disability is established they will give you career counseling to learn about your interests and skills, and depending on the plan you create with your caseworker they will then help with school or finding employment. They paid for 100% of my college tuition and books, and even provided a laptop for me to use.
You do not have to pay anything for this program. If you make above a certain income, you will have to contribute to educational costs but will still receive assistance.
They will also help with the cost of things like mental health counseling while you work towards your goals, clothing for interviews, etc.
They cannot discriminate based on your race, gender, or sexual orientation.
They won't make you do excessive meetings.
They will allow you to do meetings with your caseworker remotely.
They will not drug test you.
They want you to succeed.
I'm sure that individual experiences vary but my caseworker was exceptionally easy to work with and very kind.
Vocational Rehab is a phenomenal resource every disabled person should be aware of. Here is the list of offices in every state:
This site comes recommended by a friend of the blog, and oh boy does it look useful! Since it’s meant for use by doctors as well, the information it will give you doesn’t go through the kinds of “for the patient” filters you’d see on sites like WebMD.
The interface is clean and simple, and once you’ve gotten a list of conditions and selected one to investigate, it opens an on-the-page window for you with the Merck Manual’s entry. There’s in-depth data, a quick-view of the highlights of the condition, and there are even links out to other providers like Mayo Clinic, Medline, WebMD, Google, and more.
What’s particularly nice is that when you’re done looking at one condition, you can click “back to results” to get straight back to the list.
This one seems to do a good job of pulling up the common but quote-unquote rare diseases in the list, which certainly makes it feel a little more trustworthy.
Nonbinary folks, do note that it requires you to enter a binary gender.
My face is having uncontrollable spasms. Great. It hurts really, really, really bad.
I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”
doctors offices are always like BE ON TIME IF YOU'RE MORE THAN FIVE MINUTES LATE WE'LL EXILE YOU TO MARS meanwhile you get there on time and wait a minimum of 20 minutes
𝐏𝐈𝐍𝐍𝐄𝐃
𝐚𝐛𝐨𝐮𝐭 𝐦𝐞 : lexi / 24 / gad & ibs
𝐛𝐥𝐨𝐠 𝐭𝐨𝐩𝐢𝐜𝐬 : chronic illness / disability / invisible disability / gut health / mental illness / advocacy
Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
It’s a fucking travesty that the leading cause of bankruptcy in these United States is medical bills. Not credit card bills nor risky investments. Not even student loans, but hospital bills. Invoices racked up through freak accidents and diseases the patient certainly didn’t ask for and would probably prefer to live without.
To our readers in other, more civilized countries, you’re dismissed. This week we’re going to be dissecting a uniquely American problem: exorbitant medical bills and how to pay them.
The CEO of GoFundMe, an online crowd-funding platform, never dreamed that his company would become synonymous with “I’m broke and need $300,000 to pay for my child’s cancer treatment.” What he envisioned as a way for entrepreneurs and artists to raise money for their passion projects has become the last desperate hope of sick and injured Americans on the verge of total financial ruin.
It blows, dear readers. It fucking blows.
Keep reading.
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