What I Say: I'm Off To Bed Now, Goodnight!

I only want human contact from the person I’m attached to…other than that I’d rather be alone.

Chronic Illness flare clinics need to be a thing.

They need to have holistic chronic illness clinics. You can go to them while you’re in a flare. They have low sensory rooms with soft beds and low light tv’s. Have doctors to administer flare reducing meds/pain meds, but also have holistic professionals like massage therapists, acupuncturist, mindfulness workers, physical therapists, chiropractors etc etc.

Basically so that you’re entire body and mind can heal because the reality of this is mind and body health need to be aligned.

This is especially necessary because going to an ER for a flare can be so terrible and increase the intensity of the flare. It’s so bright and you have to wait for hours to be seen by doctors who let’s be honest don’t specialize in chronic illness, and are trying to jam in as many patients as they can because of being over capacity.

This is what healthcare would look like if it was designed by the sick.

my feelings for you are obvious, like ink on a piece of paper. your feelings for me are uncertain, like the changing constellations in the sky.

Beawings (via wingsandwhiskers)

If only it could be so easy

Have I already told the person this thing? Have I only thought about telling them? Have I only dreamt about telling them? Or am I going to tell them and find out I already told them 3 times before?

Nervous af

I have an important doctors appointment in like 6 hours. I have not slept. Been drinking wine off and on all night. Hhhh.... So nervous. So nervous so nervous. Anxious and scared. I just want to message him and have him comfort me but hes sleeping and I know hes only had a few hours but..HNG.. I need someone.

I hate when I get told this. Especially by my own mother, who knows I’m sick. And has the same thing because fuck genetics sometimes right? So..Its like...I have a chronic disorder??? My own existence is an exhausting painful battle???? You should know this as well as anyone??? Smdh

Conversations with abled people I'm sick of

Me, chronically ill: Gosh, I’m so exhausted.

Abled person: YOU’RE tired????? *I* worked all day!