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Okay But This Neurological Stuff Is Scaring The Hell Out Of Me - Blog Posts

3 years ago

Absence

Apologies for not being particularly present of late; I’ve been dealing with some frustrating health issues.

As I noted previously, I was gifted a cold by a coworker in early December. The following week I contracted another respiratory virus. This was was rather more severe:

First, it induced acute bronchitis; the net effect of which is that I ended up in the ER with an oxygen saturation level of 85%. The blood tests, EKG, and chest X-ray all came back clear; so I was discharged with antibiotics and a course of steroids.

The day after, the virus began to affect me neurologically. My long-term memory, short-term memory, and focus all started to wane. I developed a sensation of weakness in my arms, palpitations, insomnia, severe anxiety, and an impending sense of doom.

The palpitations, anxiety, and sense of doom thankfully receded. Unfortunately, I also lost the ability to regulate my temperature and my blood pressure when changing position.

It looked like I was over the worst of it, until I spontaneously developed neuropathy in my lower limbs. That earned me another trip to the ER, where they ruled out - in their words - “Anything super-deadly”. (I also got my first ever IV catheter, which I found kind of annoying; and a lumbar puncture, which was pretty interesting!)

The neuropathic symptoms have also receded somewhat; but the weakness in my left arm has grown worse, and now there’s a tremor in my second and third fingers. I’m currently waiting on additional neurological tests to determine the cause (’waiting’ being the operative word; after all, heaven forbid I have an MRI without my health insurer getting to sign off on it first)!

I know where a lot of people’s minds are going to go given the timing, and I don’t blame them; but: it wasn’t COVID. Two antigen tests, three PCR tests, and a nucleocapsid antibody test all indicate that this was a routine respiratory virus that just got completely out of control.

Two fun sidebars though:

First: between the tests from last year’s check-up, and the tests from the ER, I discovered that my lymphocyte numbers are routinely low. As measures go, it’s not a one-to-one predictor of immune health; but it does suggest that there’s something not quite right with my immune system, and that this might explain why even minor illnesses cause me significant secondary issues.

Second: I’ve written at length about how COVID tests set off my PTSD. (It’s not a rational reaction; but one borne of my younger self confusing their invasive and required nature with past violations of my bodily autonomy.)

The second go-around at the ER, the nurse performing the test was extremely thorough and as a result, I experienced arguably the most discomfort of any test to date. However, I was able to manage the situation well; in large part, I now recognize, because that selfsame nurse had a warm and sympathetic bedside manner.

That leads me to think that it’s less the physical discomfort of these acts that I find triggering; and more that they are being performed without care or consideration for my person. I’m still trying to make sense of the ramifications of this insight; but it’s beginning to seem like the core of the problem is that I’ve been dehumanized in the past, and this is what I’m so afraid of happening again.


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