oh my god. I got blood work and had to provide a urine sample today and my kidneys are so much more fucked than I thought. I have 3 grams of protein now. When I had severe stage 3 albuminuria, I only had ONE gram. White blood cells and red blood cells in my urine too. And ketones??? I don’t have type 1 diabetes, I don’t know what that’s about. Still waiting on a few tests to come back (c3, c4, dsDNA, CRP, ANCA), but so far my results are 31% abnormal. yay? I haven’t been able to see a nephrologist despite how hard my rheumatologist tries. the paediatric ones think I’m too old and the adult ones think I’m too young. I get edema in my legs too. Going to be interesting seeing where this leads
update: my 2 year long C4 deficiency is gone! just to be replaced with a C3 deficiency. rip to my immune system #immunocompromised😍😍