Discovering The Trend Of “dopamine” Dressing/decorating Was So Hilarious To Me…

agreed, making things i need pretty?? instantly changes my perspective on it.

decorating my feeding pump and using fun tube tape has done wonders for my mental health and not being able to intake much besides water by mouth. making things your own when you're disabled is such a necessity for me. 

healthy coping looks different for everyone right, but i really wish it was easier to figure out what was right for me without all this trial and error stuff 😭

the way that when youre a young adult who is disabled/chronically ill older people often say things like

“just wait until youre my age”

“you young people are so soft now”

“when i was your age i wouldn’t have complained like this”

but when a child is disabled they consider it tragic, what do they think happens to disabled children do they not grow up to be disabled young adults? 😭

fellow LSN disabled people, this is coming from a place of much compassion and love. i hear you when you say you’re jealous of MSN/HSN people’s support. how you wish you could have such support. mental health is complicated and it’s hard to see through emotions and trauma.

but i really need you to understand that our higher support needs disabled friends aren’t inherently privileged for having said support. while it may be that if you had that same support your QOL would improve, they most likely need the support you’re jealous of to literally survive.

the point i really want to make here is there is a difference between support for QOL and support to SURVIVE. people die without these supports. that is not a privileged position to be in.

you’re allowed to be upset and angry that you don’t have the life you want and deserve, but please focus those feelings on society and governments. because they are the ones that created a world in which it is so hard for us to exist.

we need to be friends to each other, not throwing around misdirected anger and blame. please take time to listen to MSN/HSN disabled people and learn about their experiences, there are so many people out there begging to be heard.

kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.

THIS IS GENIUS WHY HAVE I NEVER DONE THIS

slay ty to ur partner for accidental allyship

People who spend a lot of time in/on bed, I have a recommendation for you... Go to some big and cheap store like Kmart and get yourself a kids activities tray!

My partner got this for doing crafts on the couch but we've repurposed it to be a writing surface for my bed-rot days. It's not perfect (I'd prefer a surface a bit higher, and it squishes these thicc thighs a bit) but it's a pretty good stop-gap for $10-20

let's recap what we've learned about the United States in the last few days.

things that are terrorism:

allegedly shooting a healthcare CEO whose company generated more pure profit (not revenue, profit) in a year than the GDP of 94 countries, exclusively by denying coverage to people who pay for it

a 42-year-old mother of 2 using the wrong combination of 7 words during a heated conversation with a call center employee at a health insurance company who was in the process of denying her health coverage.

things that are not terrorism:

mass shooting in a Black church to incite a race war

going to a BLM protest specifically to kill protestors

a neo-nazi running over a crowd of people, killing a woman

targeting and killing 23 latinos in an el paso, texas walmart

killing 12 people in a theatre, shooting 58 others, rigging your apartment with explosives

a QAnon groyper killing 7 and shooting ~50 at a 4th of July parade

killing 3 people and shooting several others at a Planned Parenthood in defense of the unborn

stalking someone relentlessly and then killing them and their child despite months of the victim making police reports

any one of the 1,200 murders committed by US police yearly, the vast majority being minorities

tightening your border while ~100 immigrants (including children) drown every year in the Rio Grande

United Healthcare killing an unnknowable number of elderly people by using faulty AI to deny medically necessary coverage

Aetna killing a woman by refusing to cover her cancer care

Blue Cross killing a 6-year-old by denying her appendicitis surgery

Cigna killing a 17-year-old child by denying her liver transplant

the pharmaceutical industry killing half a million people with opioids in the name of producing revenues in 2023 that rivaled the GDPs of countries like Spain, Mexico, and Australia.

the United States killing 45,000 people a year because they can't access health coverage

make sure you keep this guide handy the next time you find yourself interacting with your insurance company or any other millionaire, billionaire, or an individual who is part of a protected class such as a CEO or president of a corporation.

ive been avoiding my shower for months (been using literally any other shower) but i finally used it today and i didnt even cry so i think 2025 is going pretty good so far fingers crossed everybody manifest tysm

Shout out to people who use adult diapers

Shout out to people who have chronic UTI

Shout out to people who have catheters

Shout out to people who have urostomys

Shout out to people who still wet the bed

Shout out to people with kidney scarring

Shout out to people who deal with kidney stones

Shout out to people with kidney cancer

Shout out to people with kidney failure

Shout out to people who I didn’t mention but still have kidney/urinary tract issues

I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.