please please please allow yourself to try aids and adaptations. it’s not giving up but working with your mind body and being kind to yourself. it isn’t the tragedy that society mistakenly think it is. i’m proud of everyone who tries to find easier ways to exist 💜
it hurts hearing other disabled people talk about medical mistreatment.
like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.
breaks my heart.
UHC website has an article entitled "Response to Misinformation" in which it explicitly labels Luigi as a killer despite a trial not taking place. Which in itself is defamation and very telling of their concerns with pushing a narrative more than a legal and ethical perspective.
Taking care of the disabled and injured is human nature actually. We have evidence of our ancestors caring for folks with disabilities. We're a cooperative species that takes care of their own. If our starving, weary, and hunted ancestors could care for the disabled members of their tribe, in this era of modern medicine and abundant resources we absolutely can afford to do the same.
nailed it
i also feel like stella helps tecna to let go sometimes, to help her live more freely and step out of her comfort zone. tenca would totally not break so many rules at alfea if not for her friends.
also, keep in mind these are my impressions based on watching only first season!! i will yap more about their friendships as i continue watching the show! ✨
i really cannot understand how people see disabled life as this glamorised lazy life. i genuinely cannot wrap my head around this.
how could ANY of what i go through be seen that way i just dont get it.
i just wanted to say you're not gross if you deal with gastrointestinal issues. even if people treat your symptoms and disorders like they're disgusting, they're not. they're genuine health problems- health includes your entire body. if you are having issues digesting/processing foods, eating, controlling your bowels or having diarrhea or constipation issues or frequent gas and bloating, you're not gross. if you need a colostomy bag, you're not gross. if you need to use diapers you're not gross. if you frequently vomit you're not gross. if you deal with acid reflux and chronic heartburn you're not gross.
people and even doctors will treat people with these kinds of issues like we're disgusting but we're just people with health issues. a GI issue is no less worthy of attention than a broken bone. it doesn't matter where it's located in the body you still need help with it. there are many issues people can have with digestion that aren't necessarily "gross" and they don't deserve to be looked down on. you deserve care and respect from everyone in your life. you don't deserve to be treated like your health problems don't matter
i find it interesting the overlap of c-ptsd symptoms with autistic traits.
i get asked all the time if im autistic. i even started questioning it myself just from how often this happened to me.
but while yes i have a lot of symptoms that are a part of many autistic peoples experiences, i wasnt always this way. i developed these symptoms throughout my childhood as i went through more and more trauma.
i remember when i wasnt sensitive to noise, light, etc. i remember when my social abilities were practically the same as my neurotypical peers. i remember when i never needed to carry stim toys everywhere i went. just to name a few.
anyways, i have so much in common with my autistic friends. while we arent the same, we get each other on a level that i havent found with many neurotypicals. ive also found that i often gravitate towards autistic people without meaning to.
i think its nice that we can find community where we didnt really expect it.
i have such a complicated relationship with the word “goals.”
i grew up constantly being asked what my goals or ambitions are for my life. i had answers when i was younger, id come up with different jobs all the time.
but as i got older - and sicker, i found it increasingly hard to feel encouraged by having goals.
it felt more like a weight that i wasnt able to carry, like i was carrying a massive burden on my back with everything going on in my life, and then i was expected to pretend like that burden wasnt there, and to jump up as high as everyone else who didnt have that burden.
as i continued to get sicker (to the point i had to leave school early) the questions of goals never stopped, and that was deeply confusing for me.
my goal was take care of myself, that was it. but that never seemed to be enough for people.
i would answer saying “im just trying to take care or myself and heal at the moment.” and they would ask me again, “but what are your life and career goals?”
why is taking care of myself not a good enough goal?
so now as i am in less of a crisis stage of life, im starting to open myself up to more “career and life goals.”
but thinking of goals is incredibly hard now.. i find myself feeling sick with anxiety thinking about even simple goals.. and i think im just really terrified of “failing” again and having to quit like i did with school.
i also feel like i have spent many years now trying to gain a healthy relationship with rest, with healing, with not being what society deems as “productive,” that i feel a bit uneasy about returning to more “productive” goals.
i dont want to lose what ive learnt over my time healing, i dont want to pressure myself too much to go back to being a “productive member of society.”
there are things i want to achieve in my life, of course there are. i dont lack motivation, in fact i have a really hard time having enough time and energy to do all the things im really eager to do.
its just that i have such a complicated relationship and past with the normal path that society wants people to take in life, im scared of losing myself, and failing in re-engaging in such things.
tysm fatigue
Receive message, be too busy/tired/stressed to respond right away
???
It has been long enough that responding without preamble would now be Weird
never speak again.