Does anyone else feel like they lost some sort of awareness between the years 2017 and 2021 & are now waking up like holy shit it’s been 4 years...
i was referred to as an epileptic by a doctor for the first time yesterday. even after having the tonic-clonic seizure in february and my eeg showing epileptiform discharges, the most my neurologist will say is that i *may* have a “tendency towards epileptic seizures”. he won’t say i have epilepsy. he had been blowing me off for a year, saying my focal seizures were probably “near syncope”, or a “weird migraine”. it’s finally gotten to the point where he can’t dispute my epilepsy anymore, but he still finds a way to phrase in such a way where he doesn’t have to admit he was negligent. i told my new rheumatologist about my history with seizures, and she looked over my eeg. she said i should be medicated for epilepsy. but my neurologist will not put me on medication until i have another tonic-clonic seizure, and unfortunately it’s not really her decision. i told her that my neurologist said that eeg’s can show epileptiform discharges in 1% of the non epileptic population. she laughed and said “you’re epileptic, sweetheart”. it was such a throw away statement for her, but it meant so much to me. this is one of the first times my seizures have been taken seriously. i think things r finally looking up
Permanently Closing
hottopic.com, 2001
my sleep deprived eeg on April 21st 2021 will show epileptiform abnormalities
im just spilling this to the void. i had a tonic clonic seizure day. i hate my friends i hate my doctors i hate everyone who doesn’t take me seriously i hate my body i hate this i hate this i hate this. scariest fucking thing ever
Valentine’s day is NOT a day for lovers, couples, or people in relationships. Valentine’s day is exclusively for elementary school students who each buy their entire class cute little cards with cartoon characters on them, messily scrawl their classmates names there as an act of love, and give them a tiny little candy packet.
that is the height of the holiday.
The fact that people are astonished that spoonies have bad experiences with doctors and that doctors can be ableist makes my heart hurt seeing how privileged they are with their health to not see the ugly side of health care.
“Broken arm, huh? Have you tried eating more celery?”
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