Tyleno1

btw *dies from lack of being kissed*, if you even care

when ur so so so so so so sleepy and then u fall asleep...... delicious

i started hydroxychloroquine a few days ago. crazy im finally taken seriously. wow

Does anyone else feel stuck at the age they were when their chronic illness started to take over their life? For me it feels like time stopped and I got mentally stuck at that age, even though I’ve obviously been aging physically. Everyone else ages around me physically, mentally, socially and emotionally. Everyone I grew up with has started to build a life for themselves and seems lightyears ahead of me when it comes to life experiences but I’m stuck in this cycle of living the same day over and over and genuinely forgetting how old I actually am.

I cannot work a job I don't have time. every day I need to sleep 24593280 hours

i don’t EVER want to hear “ughh why do people care about this celebrity drama they’re both bad it’s not that deep” again. if you cant see the sweeping ramifications of this you’re blind or dumb or both

got my kidney results back. i have nephrotic syndrome! doctors r arguing the cause. some r saying lupus podocytopathy. some r saying minimal change disease. some r saying class V lupus nephritis. treatment is the same regardless of what it is (STEROIDS my worst fear). But i hope my nephrologist says it’s just due to the systemic lupus erythematous. pls pls pls pls

Me coming back to the party after puking in the bathroom.

oh my god. I got blood work and had to provide a urine sample today and my kidneys are so much more fucked than I thought. I have 3 grams of protein now. When I had severe stage 3 albuminuria, I only had ONE gram. White blood cells and red blood cells in my urine too. And ketones??? I don’t have type 1 diabetes, I don’t know what that’s about. Still waiting on a few tests to come back (c3, c4, dsDNA, CRP, ANCA), but so far my results are 31% abnormal. yay? I haven’t been able to see a nephrologist despite how hard my rheumatologist tries. the paediatric ones think I’m too old and the adult ones think I’m too young. I get edema in my legs too. Going to be interesting seeing where this leads

update: my 2 year long C4 deficiency is gone! just to be replaced with a C3 deficiency. rip to my immune system #immunocompromised😍😍