Tyleno1

she fixed me

The fact that people are astonished that spoonies have bad experiences with doctors and that doctors can be ableist makes my heart hurt seeing how privileged they are with their health to not see the ugly side of health care. 

Permanently Closing

me waking up with a new chronic illness symptom that i haven’t experienced before:

honestly just getting so concerned about the public reaction to d*pp’s defamation case. like he lost a defamation case in a jurisdiction famous for being sympathetic to the claimant because the sun proved to the satisfaction of multiple judges that he assaulted heard at least twelve times, but he’s a poor baby who did nothing wrong. marilyn manson is suing evan rachel wood and the other women who spoke out against him and where do you think he got the idea??? bob morley and ezra miller’s exes, at bare minimum, have been accused of “pulling an amber heard” when they accused morley and miller of abuse. people are eating up a diagnosis of fucking hysteria by a psychologist who isn’t board certified!! d*pp pursuing heard through the courts is making it so much harder for abuse survivors to speak out and he’s fucking proven to have abused heard

oh my god. I got blood work and had to provide a urine sample today and my kidneys are so much more fucked than I thought. I have 3 grams of protein now. When I had severe stage 3 albuminuria, I only had ONE gram. White blood cells and red blood cells in my urine too. And ketones??? I don’t have type 1 diabetes, I don’t know what that’s about. Still waiting on a few tests to come back (c3, c4, dsDNA, CRP, ANCA), but so far my results are 31% abnormal. yay? I haven’t been able to see a nephrologist despite how hard my rheumatologist tries. the paediatric ones think I’m too old and the adult ones think I’m too young. I get edema in my legs too. Going to be interesting seeing where this leads

update: my 2 year long C4 deficiency is gone! just to be replaced with a C3 deficiency. rip to my immune system #immunocompromised😍😍

I am so high and I can’t believe what ******* said to me omfgg I hate sacha and I’m so mad ****** is cheating on her boyfriend with him like litrlly what the balls I’m so excited for fall