Itsmelmitch 🤣🤣

I laughed so fucking hard at this

Sometimes I’m looking for something online - often “how to” articles - and I want to filter for - like - a website that was clearly built in 2010 at the latest, which may or may not have been updated since then, but contains a vast wealth of information on one topic, painstakingly organized by an unknown legend in the field with decades’ worth of experience. I don’t want a listicle with a nice stolen picture in a slideshow format written by a content aggregator that God forgot. I want hand-drawn diagrams by some genius professor who doesn’t understand SEO at all, but understands making stir-fries or raising stick insects better than anyone else on this earth. I don’t know what search settings to put into Google to get this.

heartbreaking:

girl has sooooooo many ambitions and ideas for projects but can only get 1.5 basic tasks done per day

maybe i'm missing something, but why wouldn't you listen to a doctor's opinion of whether you're in pain or fatigue?

Okay, I’ve thought about this question for most of a day, because the obvious answer is “….why would I?”, but it’s clearly not obvious to you.

Now, I know exactly what you’re thinking. They’re a doctor. They’re a professional you’ve gone to for help. And pain and fatigue are, like, medical things, right? Going to a doctor about medical stuff and then saying “LOL NOPE” to what the doctor says is like hiring a plumber and then arguing about how to fix your sink, right? If you’re so smart, why’d you call the plumber over?

Okay.

But now imagine your basement is flooding and you call the plumber. While on the phone, the plumber asks you what the problem is and you say that there’s a pipe in your basement that’s burst and it’s now flooded.

And the plumber—still on the phone—says “LOL NOPE.”

And you say, “Excuse me?”

The plumber says, “Look, a flooded basement is a really severe problem, okay? Usually, these calls, they’re a clogged toilet or a leaky u-bend under the sink. Trust me, this is better. Those are a lot cheaper to fix.”

And you say, “I’m sure they are, but I’m telling you, my basement is flooded. I’m looking down the stairs and I can see the water.”

“I’m just saying, there are other things it could be. It won’t hurt anything to eliminate them first,” the plumber says.

And you say, “But I need my basement fixed! Look, I can’t go down in my basement and do laundry right now, and I have important keepsakes down there in boxes… some of them are already ruined, but maybe I can salvage some if we can just fix the problem.”

“Well, then it will be in your interest for me to check your toilets and your u-bends,” the plumber says.

“The problem is not in my toilets or my sinks,” you say. “I am looking at the problem. I called you because my basement is flooded, and I need you to help me fix that.”

And then… now, I’m not assuming you’re female, but I just want to emphasize that this is a starkly though not exclusively gendered phenomenon, so if you’re not female then imagine you are.

“MA’AM,” the plumber says, in a way you recognize. It’s the voice of putting you in your place, the voice of unearned authority, and with this voice, this word, ma’am, is not a title of respect, it’s a reminder and a command. “MA’AM, if you’ll just calm down. I’m sure what you’re experiencing seems terrible to you, but the truth is, it’s probably not as bad as it looks from where you’re standing. And that’s a good thing! Trust me, have been a plumber for 27 years. Now, when can I come over to check your u-bends?”

“It’s not my u-bends!” you say.

“Ma’am, if you don’t want to be helped, I’ll start to think you’re calling for attention.”

You see?

(Now for bonus points, imagine the plumber refuses to help you until you lose a statistically improbable amount of weight just to rule out that this might be flooding your basement, or is acting on the subconscious but deeply entrenched idea that people with your skin color are less susceptible to flooding and in less need of help, or believes that as a feeeemale you’re more likely to be suffering from emotional distress than a physical problem and suggests the preferable course of action would be for you to take a nap every time the supposed flooding in your basement bothers you.)

As I said in that post, pain and fatigue — like dysphoria — are qualitative experiences. This means they happen in your head and they cannot be directly observed or measured by anyone else (which would make them quantitative phenomena). 

The doctor talking to you about dysphoria —or pain or fatigue — is not a plumber in your house, they are a plumber on the phone. The only input they receive about the problem is your account of it. 

And if they’re not willing to listen to what you say and aren’t willing to take you at your word, then all the expertise and experience in the world doesn’t matter. You can have the most powerful calculator in the world but if you type the wrong numbers into it it will still give the wrong answers. Someone can be the best doctor in the world but if they’re ignoring the information they’re not going to give you the right answer.

Point

maybe i'm missing something, but why wouldn't you listen to a doctor's opinion of whether you're in pain or fatigue?

Okay, I’ve thought about this question for most of a day, because the obvious answer is “….why would I?”, but it’s clearly not obvious to you.

Now, I know exactly what you’re thinking. They’re a doctor. They’re a professional you’ve gone to for help. And pain and fatigue are, like, medical things, right? Going to a doctor about medical stuff and then saying “LOL NOPE” to what the doctor says is like hiring a plumber and then arguing about how to fix your sink, right? If you’re so smart, why’d you call the plumber over?

Okay.

But now imagine your basement is flooding and you call the plumber. While on the phone, the plumber asks you what the problem is and you say that there’s a pipe in your basement that’s burst and it’s now flooded.

And the plumber—still on the phone—says “LOL NOPE.”

And you say, “Excuse me?”

The plumber says, “Look, a flooded basement is a really severe problem, okay? Usually, these calls, they’re a clogged toilet or a leaky u-bend under the sink. Trust me, this is better. Those are a lot cheaper to fix.”

And you say, “I’m sure they are, but I’m telling you, my basement is flooded. I’m looking down the stairs and I can see the water.”

“I’m just saying, there are other things it could be. It won’t hurt anything to eliminate them first,” the plumber says.

And you say, “But I need my basement fixed! Look, I can’t go down in my basement and do laundry right now, and I have important keepsakes down there in boxes… some of them are already ruined, but maybe I can salvage some if we can just fix the problem.”

“Well, then it will be in your interest for me to check your toilets and your u-bends,” the plumber says.

“The problem is not in my toilets or my sinks,” you say. “I am looking at the problem. I called you because my basement is flooded, and I need you to help me fix that.”

And then… now, I’m not assuming you’re female, but I just want to emphasize that this is a starkly though not exclusively gendered phenomenon, so if you’re not female then imagine you are.

“MA’AM,” the plumber says, in a way you recognize. It’s the voice of putting you in your place, the voice of unearned authority, and with this voice, this word, ma’am, is not a title of respect, it’s a reminder and a command. “MA’AM, if you’ll just calm down. I’m sure what you’re experiencing seems terrible to you, but the truth is, it’s probably not as bad as it looks from where you’re standing. And that’s a good thing! Trust me, have been a plumber for 27 years. Now, when can I come over to check your u-bends?”

“It’s not my u-bends!” you say.

“Ma’am, if you don’t want to be helped, I’ll start to think you’re calling for attention.”

You see?

(Now for bonus points, imagine the plumber refuses to help you until you lose a statistically improbable amount of weight just to rule out that this might be flooding your basement, or is acting on the subconscious but deeply entrenched idea that people with your skin color are less susceptible to flooding and in less need of help, or believes that as a feeeemale you’re more likely to be suffering from emotional distress than a physical problem and suggests the preferable course of action would be for you to take a nap every time the supposed flooding in your basement bothers you.)

As I said in that post, pain and fatigue — like dysphoria — are qualitative experiences. This means they happen in your head and they cannot be directly observed or measured by anyone else (which would make them quantitative phenomena). 

The doctor talking to you about dysphoria —or pain or fatigue — is not a plumber in your house, they are a plumber on the phone. The only input they receive about the problem is your account of it. 

And if they’re not willing to listen to what you say and aren’t willing to take you at your word, then all the expertise and experience in the world doesn’t matter. You can have the most powerful calculator in the world but if you type the wrong numbers into it it will still give the wrong answers. Someone can be the best doctor in the world but if they’re ignoring the information they’re not going to give you the right answer.

are we out of the woods yet ?

Abled people have seriously skewed the meaning of “recovery” and i am Not About That. 

Whenever I hear the word mentioned (both on this site and in real life), the conversational subtext is usually “when will you/they recover enough to meet the standards of abled society?” As if I, a nuerodivergent person living with chronic pain will one day get up and fit seamlessly into a society not made to accommodate me. (Or as if I have any interest in doing so, which,, HAH. Nope!) I’m basically resigned to hearing this from abled people by now, but I’ve noticed fellow spoonies getting frustrated about not being able to do stuff that Abled Society says they should and falling into the pit of “when I’m recovered I’ll meet those standards”. That is not okay!!

For one, chronically ill and disabled people’s lives fit a different pattern than abled people. There is no magical point where all our symptoms vanish and we return to mainstream society — the hint is in the keyword “chronic”. It means that our condition or illness is a) going to stick around for a long, indeterminable length of time, possible lifelong, or b) recurs frequently or consistently. For example, my autism will never go away and I am completely fine with that, but fluctuating circumstances may mean that I manage the traits better at some times than others. My RLS will never go away either, but unlike autism it isn’t constant — I can have weeks, even months, with no symptoms and then suffer for the next six months straight. If I say that I’m recovering, what I mean is “I just had a symptomatic flare-up that knocked me off my feet but I’m managing the fallout better and getting back to my version of normal” NOT “i am now Fully Functioning and able to do bed-linen laundry without pain and suddenly capable of stuff i couldn’t do before.”

Secondly, recovery is a personal experience that nobody else can define. I’ve said it already but boy is it worth reiterating: recovery for chronically ill/disabled folks means getting back to OUR individual version of normal, not ANYONE ELSE’S version of normal. This definition is particularly important when talking about anyone who used to be (more) abled because in those cases, recovery can mean finding a NEW version of normal. 

If someone is in remission for a disease — let’s say cancer, since that’s a Big Thing — they could end up symptom-free, but that doesn’t necessarily mean they’ve recovered. Cancer (both the illness and the treatment of it) puts a huge about of trauma on both the body AND the mind, and they may need to adjust their lifestyle because of that. Expecting your life to go back to 100% normal after an illness/accident is harmful to your mental and physical health and I am SICK of abled society encouraging it. 

Recovery means understanding what your body and mind needs and learning how to provide it so you can live comfortably/manage your symptoms; NOT so that abled people approve of how you live your life! Just remember that 

broke: giving a girl character eyelashes because she is a girl

woke: giving every character eyelashes because it’s cute

Naked Sea Angels (Clione limacina) are small, free swimming snails. The shell has been lost and the foot has been modified into wing-like paddles for swimming.

(source)