Just Sending A Message To Say ‘hi’! And To Say I Totally Get Your Frustration Over “normal” Lab

Would anyone want a video on how I went from dressing in decora kei to, this?

Lol idk what to call my current style. I just do what I want

Call me a gymnast cause I am jumping through hoops trying to get a diagnosis

My gf bringing me water so I don't have to struggle up and down the stairs 💖

Would you dress like this?

Just had to pay a thousand dollars of medical debt…

I spent a third of my savings, I can’t get a job because of my disability. I haven’t gotten a diagnosis. And if i want a diagnosis I gotta keep fucking pay off medical debt. And no getting paid disability till I get a diagnosis. THE AMERICAN HEALTH CARE IS ABSOLUTELY FUCKED

People act like we CHOSE to be disabled. That we CHOSE to not be able to hold a job, or not be able to take care of ourselves.

All I gotta say at this point is

I'm trying to create a more positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically ill and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

TO ALL FELLOW CHRONICALLY ILL AND DISABLED PEOPLE

What would you like to see in artwork to help represent you? People with mobility aids? People that look like you? Give many any of your thoughts and ideas in the comments, my inbox, or my DMS

gentle check in for my fellow POTSies. does your body feel:

heavy

weak

shakey

sweaty

or generally overwhelmed?

if yes, here's a little reminder to hydrate, get in some electrolytes, take ur meds if you forgot, and adjust your positioning if you can! sit down, lay down, stretch your legs, elevate your legs, etc. if you've been in one position too long, you may find a little bit of movement to help.

i know for me even sitting upright too long can exhaust me and i dont realize until im out of sitting up spoons. i just did that today now, after some wandering around the house, im having my Horizontal Time (bed). after this i'll likely take a 5 minute walk.

there's no shame in needing rest. there's no shame in needing a break from something to go stretch or get water/food. there's no shame in only being able to do very light exercise. it's okay to listen to your body and do whatever is best for you!

I thought exercise would cure me so I did one sit up. My back hurts. Everyone is telling me to exercise, even my doctor. I’m trying. Will it actually help???