April Is IBS Awareness Month. If You Have Irritable Bowel Syndrome (IBS), You Are Not Alone – IBS Is

There was a TikTok of an (American) woman who was documenting her husband’s ICU room and expressing displeasure with the state it was in, it was generally unclean with broken equipment, rust stains, clipped flooring, things that can make a medical environment unsafe. I opened the comments expecting people to be like “Wow, that’s scary. And a huge infection risk. ICU stays often cost patients upwards of $100k and not enough of that money is going to maintenance and cleaning.” But instead it was nurses being utterly vile to this woman. Not saying “You’re right, it’s terrible that we’re forced to do our jobs in unsafe, unclean and outdated environments.” they were telling her she was a prime example of why patients’ families were the worst part of their job.

The hospital that charged my insurance $87k for a single endoscopy & colonoscopy performed on me was recently fined for having dirty equipment. If not on sanitation, if not on giving nurses and providers better wages, if not on updating the facility, where the hell did that money go? If nurses could band together to attack and criticize hospital administration and the American medical system in the way they band together to attack and criticize patients and advocates online, all of our lives could improve.

But of course it is easier to raise the sword against the vulnerable person dependent on your care, on the people often experiencing the worst day of their life when they are too frightened and in pain to treat you with courtesy. It’s easier to lash out at the patient inquiring about their medication after waiting two hours than to lash out at the people responsible for making you responsible for 30 patients at once.

I don’t think anyone blames nurses for hospital rooms being nasty. It’s not their job. It’s the job of custodial staff and maintenance. It’s the job of administration to fund those departments. It’s a problem at the top. If we could all look upwards instead of down when it comes to who we criticize and blame, we could make progress.

It’s IBS Awareness Month, and honestly, I want to talk about the most annoying and frustrating part of IBS. I lose about an hour each day to it. That’s right. An hour. Half an hour in the morning, and half an hour in the evening. Yep, I start and end my day on the toilet, and while I’m nervous sharing this, I want people to think about that. Imagine being sick for an hour each day, every day, and there’s nothing you can do about it, and you lose that time. You have to wake up earlier than average people to get ready for the day, you can’t start your day until you’ve been sick for half an hour, and you can’t end your day until you’ve been sick for half an hour.

I have other symptoms as well, and I know everyone's IBS is a bit different, but wow, it is such a time waster for me.

what are your thoughts on ibs diagnosis

78% of people reporting to ERs due to IBS have chronic gastritis.

population studies on microscopic colitis are rare, but have found that rates are much much higher on a population level than previously assumed

the symptoms labeled as ibs (diarrhea and constipation with no obvious flags for inflammatory bowel disease) are often treated as an issue of simple dietary intolerances, or as a psychosomatic condition, and people with ibs are told to follow various diets, or to "reduce stress."

these diets tend to be high fiber, which could literally kill someone whose actual issue is gastroparesis, or could severely aggravate microscopic colitis. i know that when i was trying to eat high fiber, my symptoms were completely unmanageable, and switching to a low fiber diet is the only thing that's helped at all. the food intolerance stuff can be really helpful for people who do have rare food intolerances, but for people who actually/also have autoimmune gastritis, it wastes time that could be spent monitoring for gastric atrophy, metaplasias, and precancerous lesions.

the worst part of this is that things like microscopic colitis and h-pylori related chronic gastritis are treatable, either with steroid medication or antibiotics to kill the h-pylori. but if you're dismissed with "dietary changes" or "reduce stress," then you're not getting treated for conditions that can cause really serious tissue damage and increase your cancer risk.

basically ibs is a "fuck you get out of my office" diagnosis

[Text ID: "Just in case you needed to hear it, you deserve to be treated by a medical professional who listens to you, believes you, who never makes you question yourself, and who dies everything they can to help you."

By: chronicloveclub

End ID]

Thyroid Awareness Month! Waking up and feeling like a normal human being is always a gift that is never taken for granted.

May is a HUGE spoonie awareness month! 💙🥄

#als #lymedisease #lupus #asthma #mentalhealth #cysticfibrosis #arthritis #celiac #huntingtonsdisease #ehlerdanlossyndrome #multiplesclerosis #fibromyalgia #bechets #bpd #stroke #braintumor #mecfs

Alexithymia sucks. This chart helps!

How are you feeling? You don’t know? Me neither! So I look at this chart several times a day (got reminders set on my phone) to check in on how I’m feeling throughout the day. I’ve been doing it for a few months, and it’s actually getting a lot easier to identify how I’m feeling.

Pro tip: some people have to rely more on how their body feels to tell them what they’re feeling emotionally. Work on trying to identify how certain emotions feel in your body. Work in broad strokes at first, before working on identifying more specific emotions. For example, try to notice how sad, happy, angry, and afraid feel. Where in your body do you feel them? What physical sensations go along with the emotions? It’s different for everyone!

The more often you practice, the better you’ll get at it. This is all straight from my therapist and it’s how I’m finally feeling my feelings after years of dissociation.

Paging Dr. House: A Medical Mysteries Reading List - Longreads

Once upon a time, I wanted to be a doctor. Never mind my terrible grades in all things science. Never mind that I decided this in my second year of college, after deciding that the music school that I’d wanted for years wasn’t for me. It was 2006. It was the age of Dr. Gregory […]

I love a good medical drama. My mother, a nurse, raised me on ER and General Hospital, always pointing out all the plot lines that “would never happen in real life” but were really cool to watch on TV. My mother credits ER with pushing her toward her decades-long career in the operating room. So when I, a poor lost college sophomore who had gone to school to play French horn (French horn!) and found it wasn’t what I thought it would be, I did what I knew best to do and turned to TV. And on TV, I found House.

House had it all: a painkiller-addicted doctor with a smart mouth and a slap-worthy face, medical mysteries solved via CSI-style case-of-the-week format, and a beleaguered crew of sidekick physicians whose instincts were never quite as good as House’s. I would spend each episode studying the setup and trying to unravel what the medical culprit could be before the ultimate reveal. Instead of realizing that what I might want to be was a writer with a good plot, I missed the mark and decided I wanted to be a doctor.

Want to feel like you’re watching House, M.D. this Tuesday morning? Dig into Lisa Bubert’s new reading list on medical mysteries!