Cystic Fibrosis - Blog Posts
Hello! I need medication for life to prevent my lungs from collapsing, this implies permanent treatment with steroids, oxygen therapy, control of oxygen in the blood and antibiotics to prevent the development of bacteria in the lungs.
I'm afraid I have to insist on this because it may be the only way to get my treatment.
I need medication for life to keep my lungs from collapsing, this costs around $700 per month.
Things are really tough on me,I can’t afford. Please donate🖤
i can't donate but again hoping this reaches other people im very sorry
https://www.tumblr.com/thornyrat/763894611992313856/hello-i-need-medication-for-life-to-prevent-my
choppedreviewsong is a documented scammer
https://www.tumblr.com/tired-and-unjellied/762604298788012032/hello-i-need-medication-for-life-to-prevent-my
I see, thank you for pointing this out! Though I won't delete (but still edit) the first one as it could be a good lesson on scams.
The truth is: the whole point of dying is to be scared. Because that means that your life meant something to you. You should fear dying. You should be terrified of it. Even though it's natural, even though it's going to happen, even though you should come to terms with it in a certain way, and go through the feeling of it , and have a relationship with it. You also should acknowledge the fact that when it's gonna happen, no matter how much you prepare, you're gonna be terrified. Because life does mean something.
Claire Wineland, YouTube video
The whole point of being alive is that you are alive! And that you can make something with this. That we're a tangible… You know, we're literally the manifestation of some kind of underlying brilliance to how everything works. We are in physical form, and we're relating with the physical world around us. And at the same time we are consciously relating to the world around us. And consciousness in and of itself is just a physical manifestation… Right, it's neurons firing, it's chemical synapses-it's all of that. Right? So that's incredible! It's incredible, and you feel that it's incredible when you're dying. And that's the most difficult about it-is that you're laying there, and you're a little kid, and you wanna hold your mom's hand, and you wanna cry and you wanna hold on, because you feel how incredible it is to be alive. And not in a corny way, not in a stupid, fake inspirational bullshit way-in a genuine, "I don't wanna give this up" kind of way.
Claire Wineland, YouTube video
[Image description: A photograph of a pretty twenty-year-old woman. Her name is Claire Wineland. She wears glasses and also an oxygen canula that fits into her nose, wraps around her ears and fastens under her chin. She has brown hair that reaches down to her shoulders. She is giving us a big smile, showing lots of front teeth. End of image description.]
“We’re the manifestation of some kind of underlying brilliance...”
Claire Wineland lived a beautiful, joyful life while suffering from CF (cystic fibrosis). At the end of August, she received a lung transplant, hoping this might give her a new lease on life. Sadly, she died of a blood clot on September second.
During her life she shared many of her experiences, her sense of humor, and a lot of deep wisdom in her YouTube videos. You should watch them.
Claire Wineland YouTube Channel
She also started Claire’s Place Foundation, which provides financial and emotional support to families living with CF. If you can, please donate.
Claire’s Place Foundation
Here’s an example of her wisdom from her YouTube video, “What it feels like to die.” In it, she describes her experience of dying, up to the point when she lost consciousness and then was saved by medical intervention.
Im excited to see this movie!!