hi my name is bee, welcome to my main blog! it’s basically my diary.
here i talk about my experience as a LSN disabled/chronically ill person! i am medically complex and have medical PTSD. i also talk about abuse and childhood trauma. if any of those topics trigger you this is your warning ♡
all about bee 💌
art blog + art tag
chronic illness/disability + life updates
mental health + diary
human rights
music
books + reviews + writing
fandoms 🍰
barbie ever after high marvel precure strawberry shortcake tangled winx club
Free Palestine.
THIS THANK YOU.
I don't want to ask AI a question. I don't want AI to write my sentences for me, at all ever. I don't want AI search bars to be the default and I don't want them to be in such a way that I can't opt out. I don't want this kind of AI in my life and there is no such thing as AI art, there is only theft of art from human artists by AI scrapers. I don't want any of this, I hate it. Maybe in a world that isn't driven by tech bro capitalism we can see machines doing all the dangerous inane things so humans can be free to pursue life and creativity. But that's not what's happening right now and I hate it.
one of the worst parts for me about chronic illness is not having answers.
im a very logical and analytical person i love things to make sense i love patterns and reasons.
i have answers for pats of my health, and im so grateful for that, but the parts that i dont have answers for haunt me.
i think about it all the time. what if its not real and thats why theres no answer? what if im not explaining my symptoms right and thats why i havent had the right test that would give me the right answer.
i know logically that its a waste of time to think about, but i cant help it, i obsess over it. not understanding the world is one thing, but not understanding my own body? my own life? thats what gets me.
I prefer Musa in red Enchantix
its hard to think about world issues when most of my world is just trying to deal with my health.
my world feels so complicated and big and demanding and exhausting.
and then trying to think about the 8 billion other people living lives.. many in countries where there are political wars or genocide or severe environmental damage etc.
its overwhelming.
never stop deal with this so this your periodic reminder that
⬇️
!! if you see someone write different online. unless they explicitly tell you something different. leave them alone. don’t comment on their write. don’t do anything unprompted to “help” without ask. it rude annoying we heard it million times promise. !!
⬆️
some people with language disorders. agrammatism. cognitive struggles. or write with symbol base AAC that not support grammar inflections.
yes we will sometimes write different than you use to.
yes it not “correct grammar,” you so observant (sarcasm).
no it not for fun, no it not choice, no it not writing quirk.
whatever you want say, we probably heard it million times. yes even if it friendly joke - n we appreciate you friendly. but please
great that it “actually help you read/understand better than full grammar.” some people may like you tell them that. but personally not want hear it too - my way write my disability, it about me n it not on purpose it out of my control. would rather you talk about how way break down concept (something can actually control n try really hard at) as easy understand.
“this just gave stroke/seizure/whatever ‘funny’ ‘edgy’ disability” joke. not that anyone make it would listen but. shut up. it not funny to me it not funny to stroke survivors or to seizure havers.
decide stop apologize for exist if it hard read. even if you have receptive language / comprehension / reading / cognitive / etc disability - it unfortunate but conflicting accessibility exist. (yes, do understand actually, because speak from experience.)
if you want know what am say please at least put in some effort to read it.
if after genuine try, still struggle, do what you do when you see tumblr post in “perfect grammar” you don’t understand - polite ask for explain or rephrase or summarize.
it still english, or whatever language person use. unless you actual look for it be turn different language, it still english, no you not need “translate.” (no don’t care that “translate” okay in writing quirk community because again. not writing quirk)
not “fix.”
and. understand sometimes we can’t rephrase in different way, even if that different way include still write different.
personally am allow other people answer “can you rephrase” questions without go through me first, for now, because of this. - but understand this is reluctant compromise. because:
understand sometimes we still sensitive to other people rewrite explain in perfect grammar. because have long history of people refuse put effort in read our stuff but instead always give more attention to people who write perfect, even if their writing not any less complicated than ours. because have long history of be charity case n get unsolicit “help” “translate” when we never ask.
because have long history of be forcibly spoken for n be misunderstood. because people who answer may (& many times do) get it wrong & we then have to spend more effort chase down n correct when we already struggle with communication, n that other version always spread faster than our correction.
so know other people who write different, don’t allow people rephrase at all unless go through them first. please also respect that even if inconvenient.
n on that note.
unless we give you explicit permission to you (like “you specifically can do it” or like above “can do it if someone ask,” or “anyone can do it all times”). don’t. don’t rewrite what we write into correct grammar, into perfect grammar.
don’t give random disabled person unsolicited help. it not friendly it not helpful it rude n annoying. not your charity case. who even are you. no one asked.
none. of. your. business.
not need your fix. get off moral high ground.
n like everything. there some jokes n comments that *some* people who write different may be okay with if they friend with that person make it - sometimes opposite of what this post say. if you not friend with that person then. maybe don’t.
people who write different not all same. sometimes okay or not okay with different things. but. this general see.
the first time you hear about [stuff am tell you in post] probably 456737th time we re-explain it. excuse us for be exhausted n done n our time be tired n angry n impatient.
this been a PSA.
omark thinks if imark just finds out about gemma he'll love her the exact same way omark does and he becomes genuinely frustrated that that's just not the case. he just doesn't understand that his innie is his own person with his own relationships and memories that he takes just as seriously and just looking at and learning about his outies wife won't suddenly ignite something in him. oirving wanted to try to be loved the same way his innie was, idylan fell for gretchen as he got to know her. imark has helly, he doesn't know gemma, he doesn't need to reach across the barrier to find romantic connection, he's got everything he needs on the severed floor. and omark's inability to understand that is why his wife has been left alone in the lumon stairwell
what abled ppl think is a massive problem for disabled folks: 13 year old on the internet faking something
what is actually a massive problem for disabled folks: "well you don't LOOK disabled, are you sure you're not faking? I'm not giving you accommodations until you PROVE you're not faking. Please give me, a stranger, your medical info and explain your condition to me in detail so I know you're not faking and only then will I respect or take you seriously"
✨✨✨✨Magic Winx✨✨✨✨
i was trying to figure out why I find it so difficult to talk about my illness & disability with new people, or even people from my past, and I realized part of it is that I still feel like a phony? I didn't bring my cane last night and so it felt like I would get called a faker. or maybe that I was really a faker, see I'm out without my cane maybe I don't need it? and then the other part is that when it's a new person I feel like they're going to immediately run for the hills bc I am a huge red flag burden for so many reasons having these problems.
and then I thought about it some more & while some of that is kinda true, mostly I have to kill the ableist in my head. yes, sometimes it will be too much for people. but I have to let them make that choice. I have to just be who I am & let it happen even if it's heartbreaking to not meet new friends or connections. because not everyone will see it that way, and I literally cannot hide it so I have to just exist as I am and let the cards fall as they might.