“Imagine Having A Child That Refuses To Hug You Or Even Look You In The Eyes”

want say something about discussion of aba therapy think not mentioned a lot: most places (that I see) online are hostile to aba survivors speaking about aba

there's the constant risk of aba providers or parents seeing survivors just talk about experiences and respond with immediate attack. AND if add any level of nuance to discussion (which often may have more understand of, with experience), then big risk of autistic people who never saw aba respond with immediate attack

Because she was lonely.

So, today, a woman came into our shop. It was a woman I’ve only heard my parents refer to as ‘the Deaf Lady’. My mum had told her about me, explained that I was doing Sign Language, and come to find me on a day she knew I was working.

But today, she didn’t need her lawnmower repaired. In fact, she hadn’t touched it since it had been, and as far as she knew everything was fine.

She’d come in to sign to me.

She waved hello, and instantly explained that my mum had told her I would be in today. I asked her how she was, and the smile that she had on her face was the biggest I’ve ever seen.

And we spent about an hour in my family’s little shop, talking about everything. She told me about her life, about how she’d lived in the same house for 60 years.

She’d been born deaf, and been a Brownie, but never a Guide, because of the War… she’s now 86.

She had some amazing stories to tell, and twice she cried. One of those times was remembering her youth, and the other was when she was explaining to me that her husband had died around 20 years ago, and how he’d been the last person she’d known that could communicate with her.

She’s been alone for 20 years, living in a silent world, unable to communicate with anyone for the most part. The most interaction she has is when she writes things down for people, but she’s struggled to make any recent friends, and her family is long gone.

Now someone explain to me what’s wrong with every school teaching a certain amount of Sign Language, and for colleges to offer it more freely and frequently. People should be encouraged to learn BSL, because otherwise we’re cutting ourselves off from talking to around 8 million people or so (in the UK alone).

That’s millions of people who are no less important than you are, who have their own stories to tell, and the same need for communication as anyone else on this tiny little planet.

J. cried today because it was the first time for a long time that anyone has asked her for her name, or listened to her stories.

She’s also coming back into work tomorrow, to sign with me, and help me practice. But also - because we’re only human - for the company.

DID IS NOT RARE DID IS NOT RARE DID IS NOT RARE DID IS NOT RARE DID IS NOT-

btw if you wanna see a blind character, the chief engineer on Star Trek: The Next Generation is blind. He has a thing across his eyes that helps him see

I have no idea if this is eugenics-supporting anon so I'll assume you aren't.

Yes, Geordi! Gods, I loved him growing up. He was such great representation, especially for the ti.e period.

Obnoxious how most anti-infantilization activism in many low support-centric autistic communities seems to rely on arguing we don't need support rather than reducing the stigma attatched to needing support.

Simply put, most anti-infantilization autistic activism I see is about how we don't need to be talked to slowly, need 24/7 care, don't need help with going to the toilet, don't need help shopping, etc. because we 'aren't toddlers'.

Which is a bad kind of activism, because, uh, many of us DO need those things. This is a fact. Ignoring it won't make it go away. And saying that only children need those things IS infantilization.

What we SHOULD be arguing is that adults who have medium to high support needs and who need help with or just can't do basic tasks, can't speak or can't speak well, need to have things explained slowly/repeatedly, etc. are still adults and deserve to be respected as such. Having higher support needs isn't childish.

No, people shouldn't assume that all autistics have higher support needs. But autistics with lower support needs also shouldn't erase those who do, when they are ALWAYS the ones most impacted by infantilization.

I wish there was a way to ask for money without doxxing myself. I have seven dollars to last me until the 28th and I need forty bucks for transport to my job.

Don't tell me you're tired too!

I have ME (myalgic encephalomyelitis) also known as chronic fatigue syndrome. People seem to think that it's just that I'm a bit tired and i often get comments like "I'm tired too" or "i think I've got a bit of that".

I am NOT "just tired"

Most people fail to understand the differences between fatigue, chronic fatigue and chronic fatigue syndrome (ME), so I'll explain:

Fatigue is extreme tiredness caused by mental or physical exertion or illness.

Chronic fatigue is extreme fatigue that doesn't go away with rest and last for a long period of time usually due to a chronic illness. While not an illness in itself it is a symptom of many chronic illnesses.

Chronic fatigue syndrome (ME) is a chronic multisystemic neroimmune disease (meaning it affects a lot of stuff and lasts a long time). While chronic fatigue is the most well known symptom it is not the only one. ME/CFS can cause a wide variety of problems including but not limited to, sleeping issues, cognitive functions, muscle and joint pains, headaches and migraines, soar throat and glands, flu-like symptoms, dizziness and feeling sick, breathlessness, hypersensitivity and heart issues such as palpitations. ME/CFS can last anything between months, years, decades or even life. No matter how much you rest it doesn't go away. There is no cure and no effective treatment. It is NOT just tiredness!

I AM NOT JUST TIRED!

I have soul crushing chronic fatigue that you probably can't even imagine and it plagues every moment of my existence. I am in constant pain. My clothes hurt my skin, the light hurts to look at, the sounds make my migraines worse. It hurts to move, if i so much as breathe it feels like I'm being stabbed a thousand times. My brain no longer works correctly, i have brain fog all the time. I can't sleep no matter how badly i need it and when i do it's filled with nightmares and i wake up at 3 in the morning crying from the pain. Even if i had the best sleep of all time i would still wake up the same, more sick than i previously thought possible.

So I'll say it again,

I AM NOT JUST TIRED!

a damaged cerebellum causing ataxia, nystagmus, weakness, tremor, etc. etc. vs. a bad childhood

clearly exactly the same thing

having washed hair: fantastic. amazing. wonderful. refreshing

washing my hair: the most challenging and tedious and impossible task I’ve ever done