Ok so at this point I've had two people roll up to me in manual wheelchairs, well, one of them was somebody pushing somebody who was nonverbal at the time, but it still counts. They asked me why I had zip ties around my tires.
It's winter where I'm living and we have really bad snow. And the snow plow people are really bad at their jobs probably because there aren't snow plow people who clean sidewalks. As a solution I got to thinking about how I could increase the traction on my wheels. And the most redneck thing I could think of was taking a bunch of zip ties and tying them around my wheels. They last surprisingly long, and work surprisingly well. It's basically the same premise as chains for your tires during the winter.
I chose to space them out pretty evenly so there's about one for every spoke. You could probably do more or less depending on how many you want and how much traction you get but I wouldn't go more than three per spoke. I realize that it's a bit later in the winter, and I probably should have made a post about this sooner, but I came up with it about a week ago. So please share this, even if you're not disabled, because there are tons of people I know who are stuck in their houses because they can't get around in the snow. A pack of zip ties costs about $5, which compared to $200 knobby snow tires is a big save, and if you want to invest you could get colored zip ties.
americans better be rebloging the donation and help links for mexico and colombia after all the help they recieved from latin americans w their own issues
it's okay to use things that are typically associated with young children. diapers, bibs, pacifers, sippy cups, velcro shoes, onesies, stuffed animals, toys, etc. there's no shame in finding joy and comfort in these things, or using them as disability and neurodivergence aids. it's your life. it's your happiness. it's your wellbeing. that's all that should matter - not what people who don't have your best interest in mind think.
Oklahoma is attempting to pass a bill that would ban explicit romance novels. Authors, narrators, and sellers could all face fines of up to $100,000 and up to 10 years in jail for each instance.
If you live in OK, call your representative and tell them this bill should not be allowed to pass.
This is likely a test case. Republicans will try to pass it in OK and if it passes other states will likely try to pass similar laws.
In the meantime, get physical copies of books you like. Download those pdfs. Archive your AO3 stories and keep them on a physical hard drive. (Storing those files in the cloud could be problematic in the future as the company managing the cloud service can see what your files are)
okay, so here's a new info post from the top.
the problem: tumblr is extremely extremely in debt. the current model is not profitable. this is why they are trying to turn the site into a shit clone of every other social media site, so they can attract new users and their money.
solution: not a ton of people can afford a long-term subscriptions like ad-free. however, many of us CAN afford $3 to inflict crabs on another unsuspecting user. (and those that can't, can still enjoy crabs everywhere)
the idea: in the grand traditions of mishapocalypses and goncharovs and tumblr users' obsession with [random inconsequential thing] Days, we create a fund drive/holiday on July 29th, dubbed Crab Day. buy your friends crabs. buy your enemies crabs. blaze posts. post memes. change ur icon. whatever. actually put your money where your mouth is and show @staff that there actually IS profit motive to listen to the current users about what we want this site to look like. (and yes, that means accessibility features too. we currently have zero leverage to demand these features. let's change that.)
i don't know if this will actually go anywhere. worst case scenario, a few of us have fun, tumblr gets a small amount of money, and nothing changes. best case though, we actually provide incentive to keep our stupid hellsite unique.
If my mutuals can’t rb this then we can’t be mutuals
Ok so this will be poorly formatted and maybe a bit long.
Ok let’s begin!
I came to terms that I was aromantic a couple months ago though I identified as aro-spec for nearly a year before that.
I realized I was aro in probably a bad way.
For a little over a year, I had convinced myself that I had a crush on my friend who we will refer to as Eggroll.
Eggroll is a sweet girl, she truly is, but she is also obsessed with romance and love and touch and affection. This was something I had to come to terms with in the time of our “flirtationship”.
She was constantly reaching out for I love you’s, constantly in need of affection and live that I simply couldn’t provide. I tried my best, over and over, I forced myself to see a life with her, dates with her, dances, just sweet little moments.
But I just couldn’t get behind it.
This wasn’t the first time this had happened, throughout school, I found myself trying to find people that I found cute or even mildly liked but wasn’t overly close with and slot them into the all to important role of love interest that society insisted was normal for someone of my age.
But it just wasn’t.
And eventually I had to tell Eggroll how I felt.
She was also a bit codependent and a tad insensitive and didn’t listen while also being constantly but hurt if I ever told her I found something rude or was uncomfortable with something.
I told her, over text, one Wednesday, a really emotional day.
She understood, although she felt sad, she sprung right back to her feet by the next week and now is constantly “in love” with nearly every pretty girl she spots.
I’m happy for her, she’s happy for me.
And I get to be happy in my own skin, with a label that I love, that I can relate to.
My experience isn’t the same as everyone else’s but as someone who witnesses identify crises every week and has had many of their own, I am always open to helping anyone who needs it.
We’re supposed to tag our found family but the majority of my found family doesn’t have tumblr so....
@alexclaremont-diazbutnot
hate hate hate it when adults tell younger people they're "too young to experience (x.)"
pain, memory loss, mobility aids, and disability are not exclusive to older people. young people can be disabled.
im nearly sixteen, and i have a hellish mixture of scoliosis and kyphosis. on top of that, i experience amnesia DAILY. my back doesnt hurt every day, and my brain doesnt refuse to remember important things just for you to say only old people can experience these things.
Idk if I've posted about this before, but the most important thing I've learned in 2022 (The Year Of Never Ending Doctors' Visits) is to leave every medical appointment with a clear-cut set of next steps. When you have a chronic health issue, it's not just as simple as telling the doctor what's wrong and letting them take it from there.
If you go in for an undiagnosed issue, your should leave with:
An investigative plan: Orders for labs, imaging, or specialist referrals to try and figure out what's causing the problem. If your doctor doesn't want to order tests, ask why. It could be an insurance issue (e.g. tests denied unless front line treatments have failed), or it could be a bias issue. If it's a bias issue, things get more complicated, but the first step towards adequate care is asking your doctor to note that you requested testing for the issue and they denied it on the basis of [whatever]. I have some tips for next steps in these situations, so feel free to shoot me a message.
A "what-if" follow up plan: Ask your doctor, "What if the labs/scans/etc. come back negative or inconclusive? What if this treatment plan is not effective after [preestablished length of time]? What's the next step?" and make sure the next steps are noted. This helps keep you on your doctors' radar until you have an effective care plan in place.
A symptom management plan: Really spell out the effect the symptoms are having on your daily life. Let the doctor know you're fully invested in long term recovery, but that you need something to help you live your life as "normally" as possible until the long term treatment plan can be established and take effect. This could be medication, assistive devices, FMLA or other documentation for work/school, etc.
If you go in for a diagnosed issue, swap out the investigative plan for a long-term treatment plan. The goal should be to reduce your symptoms or prevent progression, if possible. For some conditions, this looks pretty similar to symptom management.
This has been working pretty well for me lately. At the end of my appointments, I verbally summarize my understanding, like "Okay, so we're trying to figure out the cause of my [symptom], and you've ordered XYZ tests. If nothing comes back abnormal, you'll [order different tests, refer to specialist, etc.]. In the meantime, I can manage it with [medication, lifestyle change(s), adaptive device, etc.]. Is that a good summary of our plan?"
Rinse & repeat at any/all follow up visits.
the next person who tries to tell me “you just need to do X to cure your chronic illness!” is going to get beaten to death with a binder of my entire compiled medical history
I love all things frog, mushroom, rainbow high… I have Ehlers danlos syndrome and use both a rollator and a cane. Enby that is bad at making friends but likes to have them. I adore many cartoons but haven’t seen even more.
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