Dear People Who Think "how Could You Even Function If You *actually* Had All That" Somehow Disproves

Housing is a privilege.

“Fewer than 5 percent of units have the features needed to accommodate a person with moderate mobility difficulties. The percentage of wheelchair-accessible units is even smaller; less than 1 percent of all units are equipped with features that would allow a wheelchair user to live independently.”

Marriage is a privilege.

“The [SSI] monthly maximum Federal amounts for 2023 are $914 for an eligible individual, $1,371 for an eligible individual with an eligible spouse.”

Minimum wage is a privilege.

“Section 14(c) of the Fair Labor Standards Act authorizes employers, after receiving a certificate from the Wage and Hour Division, to pay special minimum wages — wages less than the Federal minimum wage — to workers who have disabilities for the work being performed.”

We still need to fight for accessibility and equity for all disabled people.

Despite the ADA, equity is still out of reach.

Ahhhhhhh I love this show!!!!!!!!!

musical appreciation week ll day four ll favorite movie musical/pro-shot ↳ she loves me

Song that reminds me of pride?

Ok so probably really basic but

Yeah...

I don’t have much else to say.

So I’ve been struggling recently with whether or not things I’ve done actually happened. Like my dreams are so plain and “normal” they seem like everyday occurrences so I can’t recall if they actually happened or if I dreamed them.

anytime I talk about my chronic pain and fatigue and the limitations they impose on me, my mom's response is always "well you have to talk to the doctor" like firstly. I do. Secondly, I have an entire life to live between doctors appointments. 20 minutes with my doctor every 3-6 months is not going to suddenly cure me.

Babe seriously

Name: Sonny and/or Beckett

Gender: Demiboy (he/they)

Star sign: Virgo

Height: 5’7”

Age: none y’a fucking business (minor)

Phone wallpaper: It’s a picture of Keith from Voltron Legendary Defender laying face down and on the floor.

House: Ravenclaw babieeeeeee (I’m literally the embodiment of my house)

Ever had a crush on a teacher: HA no. (Aro)

Favorite 90s show: Boy meets world; Sean Hunter is gender envy incarnate

Coolest Halloween costume: probably either my homemade Chewbacca costume or my Homemade Janus (Sander sides) costume.

Last kiss: nah fam, not interesting

Have you ever been stood up?: not on a date because I don’t date, but for sure have had friends not show up.

Favorite pair of shoes: my spiky black combat boots.

Have you ever been to vegas?: I don’t recall, have been to Nevada, it was the worst night of my life.

Favorite Book: the Unpopular Vote or Crush

Stupidest thing I’ve ever done: give away my ever after high dolls /j honestly something I’m not sure on, and I really don’t wanna be negative.

All time favorite show: It’s a massive tie between Adventure time, Steven Universe, Ducktales, Phineas and Ferb, Miraculous Ladybug, and the Mandolorian

Last movie I saw in theaters: Sing 2 (new comfort movie I swear)

Get to know me tag

Name: bat(although if you dig far enough in isa’s blog you can find my actual name)

Gender: 🙃

Star sign: gemini

Height: 5'5

Age: 17

Wallpaper on phone: my lock screen is a wicked orochimaru collage while my home screen is a all the scouts from sailor moon (it’s matching with a friend)

House: slytherin

Ever had crush on a teacher?: nay

Favourites 90s show: the golden girls, although it’s technically 80’s and 90’s

Coolest Halloween costume: uhhh I don’t really remember a ton of my Halloween costumes

Last kiss: god it’s been so long I don’t even remember

Have you ever been stood up: indeed

Favourite pair of shoes: my new boots, I don’t have many shoes so

Have you ever been to Vegas?: no, despite how much I do travel it’s all on the other coast so

Favourite book: god uh I have a collection of h.p. lovecraft’s works probably that

Stupidest thing you’ve ever done: oh uh this is the most recent thing I can think of, but I bent and bruised my nails and immediately went “I lost my fingers in the war”

All time favourite shows: mindhunter, golden girls, some anime I shan’t say, a ton others

Last movie you saw on theatre: I think it was knives out at the beginning of last year, before everything went wack

Tagging @plzineedhelp @hellounicorn

• being disabled should not be expensive •

• being mentally i’ll should not be expensive •

Demons and Drag pt. 4

Jem is sitting on their couch peacefully sipping their tea and watching Anitri swoon over the guys on TV when Surri walks into the room, phone in hand and a bored look on her face.

“Anitri, quit your drooling, we’ve got a job.”

Anitri whined and slide off the couch onto the floor.

“Do we have to go now? They’re almost to the part where they get shirtless.”

Jem groaned and turned off the TV, making Anitri yell.

“What’re y’all doing this time?” Jem said putting the remote behind them so Anitri wouldn’t grab it.

Surri glanced up from her phone and leaned on the wall.

“We were told that this guy; Mickey, they call him, is testing lethal injections on randos on the street. Has been for about two years, but the cops turn a blind eye cause he’s a white pretty boy.”

Jem’s brow lowered as their look of mild interest shifted to utter disgust. Jem looked away for a few seconds before their face lit up with what appeared to be an idea.

“Can I come?”

Surri was taken aback.

Not by the question itself, but the fact that Jem asked. Jem doesn’t ask for anything.

“Uhhh, sure? I guess it’s fine, but you got to bring something to defend yourself.”

Surri just looked at Jem.

Waiting.

Waiting to see what they came up with.

And much to Surri’s surprise, Jem reached in between the couch cushions and pulled out a bat.

“Let’s go.” They said, and mad their way to the door.

“Where the Hell did that come from” Anitri called from the floor.

Surri shook of her surprise and walked over to her brother and pulled him of the ground by his jacket.

“Listen to the scary Enby.”

***

Jem, Anitri, and Surri were sitting at the bar of Meh discussing there plan.

“So when we find Mickey, Anitri will walk up to him and act like the twink he is. If our source is correct, Mickey will be to enthralled to notice us anything around him, so we can shoot the dart and it will inject the poison.” Surri explained. “Any question?”

Jem shook their head and glanced towards Anitri, who was touching up his hair in the bar mirror.

“Sis, what if the source is wrong?”

Surri pursed her lips as she thought for a moment.

“Well we’ll be there if anything goes wrong, if he doesn’t have a react to you ‘wiles’” Jem gags “then just distract him until I can get a clear shot” Surri told him.

He turns to face her.

“It’ll be fine, we got you.”

He glances at Jem and they nod.

“Lets do this.”

***

They’re strolling down the street, Anitri in a grey sweater and shorts, his hair swept to the side, his tail swaying, and his glasses slumped forward in his nose.

Surri was in her normal black dress, but with a dark, red jacket today. Her hair was pulled back into a small bun, showing the tattoo on her neck. A spider with an M on the thorax. In her jacket was her concealed dart gun.

Jem was wearing a green tank top and maroon pants under a long trench coat which concealed their bat. They had their hair tucked away in a moss green beanie.

“What does this guy look like again?” Jem asked, tucking a of green back into their hat.

“A Kyle.” Surri said.

Jem snorted a laugh while Anitri shuddered.

They turned a corner and they saw a guy wearing a tank and shorts, holding a kitten and a syringe. He looked as if he was about to use it on the kitten, which was meowing and squirming.

Surri watched as Jem shot forward and smacked the guy in the back of the head with their bat.

He dropped the cat and it scampered into a nearby bush.

“What the hell!!!” The guy said, turning towards the group, and Jem hit him again, this time in the face.

The guy, who Surri could now tell was Mickey hit the deck.

Jem just kept smacking the guy, muttering about how sick you have to be to try and harm an innocent kitten.

Anitri shook off his shock and rushed forward to pull her away from the now bloody and battered Mickey.

Jem huffed, handed the bat to Anitri and calmly walked over to the bush the kitten hid in.

While Jem looked through the bush, Surri walked up to the pile of blood and limbs that was Mickey, who was surprisingly enough still breathing.

Anitri looked at her, a question in his eyes.

She looked from Anitri, back to the battered form. With a roll of her eyes, she drew her gun and shot the dude in the forehead.

Anitri and Surri watched as the form shook and then stilled. Anitri was the first to walk over to Jem, who was now sitting on the ground next to the bush with a wiggly, ginger furball.

Anitri sat next to them and looked at the kitten. It had a scar above it’s right eye, which was green, the other eye being brown. It had a clump of thick fur in the middle of his head that looked like a Mohawk.

Jem held him up to show Anitri. Surri also turned to pay attention.

“This is Westley. He will be comin home with us.”

Surri gave a confused look.

‘Another cat?’ she thought to herself.

Surri crouched to get a better look at the kitten. He mewed at her in the tiniest little cat voice she’d ever heard and Surri decided that this cat was her new favorite roommate.

Idk if I've posted about this before, but the most important thing I've learned in 2022 (The Year Of Never Ending Doctors' Visits) is to leave every medical appointment with a clear-cut set of next steps. When you have a chronic health issue, it's not just as simple as telling the doctor what's wrong and letting them take it from there.

If you go in for an undiagnosed issue, your should leave with:

An investigative plan: Orders for labs, imaging, or specialist referrals to try and figure out what's causing the problem. If your doctor doesn't want to order tests, ask why. It could be an insurance issue (e.g. tests denied unless front line treatments have failed), or it could be a bias issue. If it's a bias issue, things get more complicated, but the first step towards adequate care is asking your doctor to note that you requested testing for the issue and they denied it on the basis of [whatever]. I have some tips for next steps in these situations, so feel free to shoot me a message.

A "what-if" follow up plan: Ask your doctor, "What if the labs/scans/etc. come back negative or inconclusive? What if this treatment plan is not effective after [preestablished length of time]? What's the next step?" and make sure the next steps are noted. This helps keep you on your doctors' radar until you have an effective care plan in place.

A symptom management plan: Really spell out the effect the symptoms are having on your daily life. Let the doctor know you're fully invested in long term recovery, but that you need something to help you live your life as "normally" as possible until the long term treatment plan can be established and take effect. This could be medication, assistive devices, FMLA or other documentation for work/school, etc.

If you go in for a diagnosed issue, swap out the investigative plan for a long-term treatment plan. The goal should be to reduce your symptoms or prevent progression, if possible. For some conditions, this looks pretty similar to symptom management.

This has been working pretty well for me lately. At the end of my appointments, I verbally summarize my understanding, like "Okay, so we're trying to figure out the cause of my [symptom], and you've ordered XYZ tests. If nothing comes back abnormal, you'll [order different tests, refer to specialist, etc.]. In the meantime, I can manage it with [medication, lifestyle change(s), adaptive device, etc.]. Is that a good summary of our plan?"

Rinse & repeat at any/all follow up visits.