@shady-swan-jones do you know this story?
Can anyone remember a fic where Emma’s dorm was evacuated at 3am because a stoner set the kitchen on fire. She’s standing out in the freezing cold, enter Killian?
Could just mean she hasn't been invited YET! Still plenty of time! I sincerely hope they have her back! Not to would just be stupid on their part
WTF? They have 1 episode guest stars like Adam (whose character is DEAD) appear and they don’t invite Jen? The hell kind of logic is this?
@isaaclahys I just wanted to say thank you so much again for doing this playlist for me for Mike & Sasha! It truly did make my day and put a huge smile on my face. Is there any chance Eyes Open could be maki a comeback? Even to finish just this story? Was honestly just curious! I hope there’s a chance for a comeback but if not I totally understand! Can’t Been feeling nostalgic and started reading it again and wanted to ask if there was at last a shot since a lot of time has passed! I can’t imagine never seeing an ending to it! Love their romance so much!!! Sorry if it seems like I am being an irritating pest by asking!!!
This is for Sasha Hardy and Mike Weston, and was requested by @piratesbooty63fan
opening credits: What Love Is - Tom Mann
meeting for the first time: All Again - Ella Henderson
hey, i kinda like you: Gotta Find You - Joe Jonas
i’m going to kiss you now: Vanilla Twilight - Owl City
falling in love: Wonderful Tonight - Eric Clapton
your place or mine: Trust - Jonas Brothers
naked in bed: Need You Now - Wonderland
first fight: Back At One - Brian McKnight
maybe we should take a break: Night Changes - One Direction
i want you back: The Chase - Celine Dion
will you marry me: Truthfully - DNCE
we’re getting older: Story Of My Life - Boyce Avenue
if you die i’ll go with you: When I Get Where I’m Going - Brad Paisley
end credits: Ask Me To Stay - Jade Halliwell
On May 28th, my sister, Edna, turned 31.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them.
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
Thank you,
Jeanie
Facebook: facebook.com/eisforedna
Twitter: @EisforEdna
[Tweet source]
Fight for the Future:
We only need ONE MORE SENATOR to force a vote to overturn the FCC’s terrible repeal of #NetNeutrality. Text VOTE to 384-387 or go to http://VoteForNetNeutrality.com and pledge to vote against any lawmaker who doesn’t vote to save the Internet, then get texted their voting record in 2018
Do you enjoy period dramas? Especially ones with color-blind casting and Shakespearean themes?
Then watch Still Star-Crossed.
Do you want to watch a show that is basically a Shakespeare fanfiction, filmed in Spain, with gorgeous scenery, costumes, quality writing and good acting?
Then watch Still Star-Crossed.
Do you enjoy childhood lovers torn about by circumstance? With angst and forbidden love where the Prince orders the lady to marry someone else?
Then watch Still Star-Crossed.
Do you enjoy enemies to friends to lovers relationships? Where they banter and dislike each other, but really have hella similarities and parallels and are arranged to be married?
Then watch Still Star-Crossed.
Do you enjoy sibling relationships? Ones where they support and help each other, despite different perspectives and outlooks on life?
Then watch Still Star-Crossed.
Do you enjoy shows adapted from books? Have you read (or been meaning to read!) the book and are curious about its adaptation?
Then watch Still Star-Crossed!
Still Star-Crossed is a Shonda Rhimes produced show (and yes, I realize this could excite you or make you quit straight away), so it’s dramatic and filled with different races and ethnicities (the main character is a dark-skinned woman and the character with most power/authority is black). There’s politics, there’s romance, there’s drama, there’s swordfights.
It also bombed the first night. (On Memorial Day.)
The first season is supposed to only be 7 episodes. ABC is not doing much to promote it. It likely won’t receive more than a single season. But it’s based on a book, and it appears to be paced to have a conclusive ending by the end of the season
That means just 7 hours dedicated to this beautiful, inclusive, fun show that will very likely have a satisfying ending.
So watch. Tweet #stillstarcrossed. Watch on-demand or live or on Hulu. Because if you do, maybe it’ll be more than 7 hours.
It’s now or never. If the ratings don’t go up tonight, we’re done.
@enchanted-keys @everythingtimeless @rittenhousetl @keirgreeneyes @lucys-preston
Please watch live!!!!!!
Jennifer said that unless more people start watching- with ads because that’s how the show gets its funding- then season six (if it gets renewed) will definitely be the last season.
It's about time!!!!