watching other people just live their life doing things you don't know if you'll ever be able to again...
grateful for everything my life is besides the illness
grateful for everyone i get to have close to my heart
grateful for everything i get to experience
i refuse to let being sick stop me from being grateful for the rest
me: "i'm so fatigued and my brain fog is pretty bad"
healthy person: "stop complaining, i'm tired too"
your "tired" is not the same as my fatigued! sleep won't cure me, this is not how it works!
i need to lay in bed for a week to make up for one day i overdid it
Just because it’s “to be expected” doesn’t mean you’re not allowed to be upset about it.
healthy people will never understand the amount of joy i feel when i come home dreading having to feed myself to then realize i still got leftovers
cluster headaches SUCK
i'm just existing and my head is all like *ouch* *ouch* *ouch*
not being able to sleep due to pain sucks, because sleep is the one time i am not in pain
i miss travelling without basically taking a mini pharmacy with me
recovering from a simple cold really takes incredibly long when you have a chronic illness...
like please i wanna be able to do at least some things again
me casually overdoing it on a low symptoms day and then wondering the next day why i feel bad
(will i ever learn? probably not)