Loving People With Chronic Health Conditions And There Being Nothing To Do To Help Them SUCKS

really tired but making sure to stay awake until the point of exhaustion so i hopefully actually fall asleep

my mom told me she doesn't know what to do anymore with all the different health issues i got... which is like fair enough, but i wonder if she realizes how i feel and how draining it is to actually go to all the different doctors appointments

i'm so tired of feeling sick all the time

i don't want to be miserable... i wanna worry about things that other people my age worry about and not how to manage doctor appointments... i want a doctor to actually help... i wanna feel okay and not be scared of dying

one good thing about being chronically ill that i learned about this week is when you need to drive your friend to the hospital for drinking too much alcohol you know your way around and exactly where to go

some guy invited me to go clubbing with him and his friends... i tell him i would go, even though it's not something i usually do, but i couldn't drink because of the medication i'm taking/health issues

he looked at me and just went "oh maybe some other time then"

and my question is why? WHY am i required to drink to hang out with people? and if that's just a rule then there won't be some other time, because i got a chronic illness and not just a cold

navigating doctors visits and applying for university in the same week while going to school should be a valid answer if asked what exercises i do

being chronically ill it's so difficult to not dismiss healthy people struggleing with a short time illness

like "i'm sorry you got a cough, i have to make big adjustments to my everyday life to not regularly faint" is not the answer i wanna give others

saying "oh you're tired cause you stayed up on tiktok for too long? i didn't sleep at all cause of how much pain i was in" isn't empathetic

it's just hard not to compare my suffering to others seemingly minor issues

i always need to remind myself that this isn't minor to them, no matter how i might feel about it... i refuse to loose my empathy in addition to everything else i have to limit

love the random wave of nausea that hits me multiple times a day /s

normal people sick in addition to chronic illness really sucks...

everyone that has a chronic illness already shouldn't get sick in addition to that

Whoever decided to force chronically ill/physically disabled kids to do p.e should be hunted for sport