Here's An Updated Version Of My Pinned Post 😊

Free Luigi

“You do what the rest of us have to — you take the good parts of yourself, and you love them. And the bad — you try to make better. The best we can do.”

— Jerome, The Crowded Room

hey when a disabled person says theyre tired, theyre most likely lying. what they mean is that they are so utterly EXHAUSTED that theyre struggling to function.

i suffer with terrible fatigue as part of my condition and i find it hard to partake in hobbies i enjoy, nevermind hardwork, when it hits. which is a lot of the time. i sometimes sleep 10+ hours a night and still have to take a nap.

before i started seeing doctors abt my condition, people would always ask how i am when i was at work and when id answer id always get 'youre always tired!'

the worst one was the guy who turned round to me and went 'you dont have kids, you dont know what tired is.'

girl, if most able-bodied people were operating at the levels i operate at most days, they wouldnt have the energy to get out of bed or feed themselves. some days i cant do that and i live like this every day. some days i become so exhausted i cannot form words.

idk man chronic fatigue is not just 'being tired all the time'. its debilitating. imagine not eating because you dont have the energy to lift cutlery or chew. imagine being so drained that you physically cannot talk. imagine having to wait until someone else is home to go to the bathroom because you dont have the energy to get there alone.

some of us live like this and when you measure our worth based on what we contribute, it becomes a depressing existence.

DIVA OFF IF YOU WILL

what kind of dumbass binges the crowded room in one afternoon/evening?

Hello

I am Haifa from Gaza 🇵🇸🍉

, Palestine, mother of three children. We faced many physical and psychological problems because of the war that completely destroyed our home and our source of income. My children’s health was destroyed because of contaminated water and contaminated food. We live in a canvas tent, and my children are shivering from the cold

My son Youssef, 8 years old, had ambitions to become an engineer, but the occupation destroyed his talent. Jory and Joan, the fun twins full of humor and fun in our house, they are 6 years old, deprived of my children's education.

Other than that, the price of food has become very expensive My kids make me cry heartburn because I can't provide for them because I don't have the money Pleas

https://gofund.me/dcda1d31

gofundme.com

Donate to Help Haifa and Her Children Rebuild Their Lives, organized by hifa hifa

I am Haifa, a mother of 3 children, Youssef, hifaaa823 Jourie and Joan, from… hifa hifa needs your support for Help Haifa and Her Children R

Donating even $10 can help.

✅️Vetted by @gazavetters, my number verified on the list is (#356)✅️

paypal.com

Donate to Ismail Masare

Help support Ismail Masare by donating or sharing with your friends.

Made a little fanart of Aika from I don't want to be a magical girl while procrastinating at school

God I want her plush so bad, I still don't know if I gonna buy it

I don't want to ask AI a question. I don't want AI to write my sentences for me, at all ever. I don't want AI search bars to be the default and I don't want them to be in such a way that I can't opt out. I don't want this kind of AI in my life and there is no such thing as AI art, there is only theft of art from human artists by AI scrappers. I don't want any of this, I hate it. Maybe in a world that isn't driven by tech bro capitalism we can see machines doing all the dangerous inane things so humans can be free to pursue life and creativity. But that's not what's happening right now and I hate it.

i've seen quite a bit of confusion about this, so let me attempt to clear things up :

empathy is the ability to feel somebody's emotions as though they are affecting you personally. for example, somebody tells you "my dog died last night!" -> you now feel as though you've lost a pet personally -> you feel grief and sadness just like the other person. not everyone has empathy. it's a trait some people develop and others don't. some have high empathy, some have low empathy, some (like me) have none.

sympathy is the ability to understand and care about somebody else's struggles, even if you don't feel them yourself. so, somebody tells you their dog died -> you realize how this affects them emotionally -> you care about this person, and are upset that they are suffering. not everyone has sympathy either! it's a scale, just like empathy.

compassion is doing something to relieve another person's suffering or make them feel better. somebody tells you their dog died -> you don't want them to remain upset -> you come up with ways to help them feel better, like offering comfort and distractions, or other forms of support. compassion is a learned trait, not something you can be born with like empathy or sympathy. anyone can learn to be compassionate, although some may struggle more with it than others; it's a skill, just like anything else.

however, none of these are required to be a good person. that's a choice you make on your own accord. i hope this clears things up!

Hobbies that able bodied people recommend as very accessible but actually aren’t; (if you find these exhausting it’s ok - many do and you aren’t weaker or less than or unworthy or being a “buzz kill” or “over dramatic” bcs you need more rest than these hobbies provide💓)

Reading - eye strain, hand pain - it’s expensive in general and more expensive if you need physical aids to help you do it.

Knitting or crochet - this one feels more obvious - sure your not going for a hike but this is a lot of movement for people who either have fatigue, foggy brains or inflammation😗

Shows or movies - more so but then there are the flashing lights, bright color, many sounds and if you’re like me the brain fog can make you feel pretty stupid when trying to keep up with the plot.

Collectibles - expensive! And often requires a lot of travelling to get limited editions or to explore second hand shops to chance upon one of those items.

Video games - I’m gonna cut to the chase and just say anything with bright colors and loud sounds and lots of hand stuff is pretty much the last thing many disabled people want to do on a flare day. Quick response times too can really suck when the fog is just consuming every single coordinated thought!

Cooking or baking - it’s alot of standing if you don’t have an accessible kitchen. And having a kitchen like that can be expensive or at least very time consuming as you travel from second hand shop to second hand shop to find the needed equipment.

Yoga - fuck off. It’s so obvious why this is an issue just like strength training and cardio.

This is not at all to say that disabled people can’t do or can’t enjoy these things. It’s more to say that what is easy for an abled person isn’t necessarily easy for a disabled person. And that doing these tasks exert excess energy. Even our hobbies tire us at time and require a lot of effort to have.

I love reading and knitting and writing. And I do it when I can but I’m aware my hands aren’t as nimble and happy with me so I can’t do it as much as I want. I work out too but to my limits and I’m aware that if I fuck up and do too much I will have consequences (if I can even do that thing).

My point really starts and ends with; a disabled person remains disabled even when doing cosier or nicer activities. And those tasks cost spoons just like other ones. And those tasks can be harmful when a person is not in a position to enjoy them - which can be more often for a disabled person. So it’s important to have a level of empathy for the kind of rest people need and their limitations (which may not be in places you expect).