“Autism Isn’t A Disability”, “it’s Just A Difference”.

“Autism isn’t a disability”, “it’s just a difference”.

I am of lower support needs. I hold down a (part time) job. I have travelled around my home country. I live alone.

At work they complain about my speech. I’m too quiet, they say, “barely audible” is the words used at my autism assessment. My voice is all monotone, and it needs to be more expressive. I get this complaint every week for a year straight, until my manager gives up. I don’t attend trainings because I forget and find it overwhelming anyways. My coworkers form friendships, and I watch them talk, wondering how they make it look so easy. I get a new manager, I tell her I find the work socials too overwhelming to attend. She tells me I can just say I don’t want to come. I don’t know how to tell her that I desperately want to, to be like the rest of my coworkers, instead of constantly being the one sat on the sidelines.

I come home, and I can hear my neighbours again. The niggling background noise messes with my head, and I meltdown; I throw myself on the floor, I hit my head on the ground repeatedly as I scream and cry, tear out my hair and scratch my arms and face. When I complain, people tell me that I just have to accept that neighbours make noise, that I should just ignore it, or block it out. I am the problem, the one overreacting. I put in earplugs and it hurts and I'm crying again. I wear headphones but I can't handle the noise for that long.

I have reminders set for everything. Every chore, no matter how big or small. My phone beeps at me, reminding me that I need to wash the dishes. If I don't go now, then tick the little box on my phone to say I did it, it won't get done. My home is almost always a mess despite this. It's not just chores either. I won't think to wash, dress myself, brush my teeth or hair, without those reminders. And unless someone actively prompts me to do so, I will do those tasks "wrong". I haven't changed my underwear in a month, and I'm currently aware that's a problem, but within the hour I'm going to forget all over again until I'm next prompted.

I can't sleep without medication - it's not unusual for autistic people to have messed up circadian rhythms. Without my medication it's hard to even tell when I'm awake and when I'm asleep. When I was younger and at school I slept through so many lessons, and when I have my mandatory breaks from my sleep meds I sleep through every alarm I set. I want to work full time some day, and I'm terrified of what my sleep issue will mean for me then.

I don't travel independently. I don't travel anywhere alone, always with someone or to someone. If to someone, I have assistance the whole way. I find it embarrassing sometimes. Yes, I have a job that requires a certain level of intelligence. No, I cannot get on a train by myself. If I am not shown To The Train, To My Seat, I will be unable to travel.

Last time I travelled, I was left alone at the station for ten minutes. I stayed rigid and sobbed the whole time. I was overwhelmed. It was too loud, I didn't know where I was or where I was meant to be going, and until the assistance person came back I couldn't do anything because for some reason I cannot understand it.

I spend a lot of time trying to explain to people that despite my relative competence, I am unable to do many things. Why can I understand high level maths but not how to get on a damn train? No fucking idea.

"Autism isn't a disability" most severely affects those with higher support needs, and this is absolutely not to take away from them. But for fucks sake, autism is disabling.

Maybe you personally are extremely lucky and just find you're a little "socially awkward", or just find some textures painful or nauseating. Maybe you would be fine with just a couple of adjustments.

But for a lot of us, even lower support needs autistics, it doesn't work like that. I will never sleep properly without medication. I still have the self-harming type of meltdowns as an adult, over things that are deemed as being "just part of life". I live alone but have daily visits from family - if I'm left fully alone I forget all the little daily things one is "meant" to do. I had speech therapy as a child to get me to the "barely audible" "mostly correct" speech. I don't mask, I'm not really sure how I would to begin with.

I'm not unhappy with being autistic. It's just who I am. Life would be easier if I were neurotypical, but I also wouldn't be me. I just wish those luckier than me could...stop saying it's all chill and not at all a disability.

Because yes, socially, I am "awkward". I obviously don't make eye contact - I stare down and to the side of whoever I speak to. People think it's weird or creepy or a sign of disinterest. My autism assessor wrote down about how I often use words and phrases that don't make sense to others, even though they make perfect sense to me. In my daily life this means I'm frequently misunderstood, and have to try explain what I mean, when what I mean is exactly what I said, and the true issue is that what I mean just doesn't make sense to others. I gesture, at times, but again, my gestures apparently don't make sense in relation to what I'm saying. I take things literally, I have almost no filter, and I can't explain how I go from topic to topic.

And yes, I do have sensory problems. Sometimes people, including others with sensory problems, tell me that "sometimes sensory issues have to be tolerated", and I wonder what they think of as being sensory issues. I'm sure they do struggle, but if I say I can't handle a touch, I mean you will need to forcefully hold it against me for me to touch it more than a second and it will make me meltdown. If I say "I can't eat that", I mean that I am unable to swallow it, that I will gag and choke and inevitably spit it back out, as much as I try. If I say I can't handle a noise, I mean I'm so close to a meltdown and my meltdowns are a problem for everyone around me.

But yes. Autism. Not a disability. Just a fun quirky difference.