Girlish-in-pain - Maja

hi, you there who are or are thinking about spending all day in bed, it’s okay, I’m not telling you to get up. I’d just like to do a quick check in to make sure you’ve got everything you need to be comfortable and safe.

Have you gotten up to take any meds you need?

Do you need to open or close your windows or curtains/blinds to make your environment nicer? (Fresh air, keep the cold out, sunlight/darkness)

Do you have a water bottle or a glass of water easily accessible? (Can also be juice, cordial, a meal replacement drink or anything else)

Do you have any over the counter or prescription as required meds you might need, like painkillers or anti nausea meds?

Is your phone or laptop charged?

Are you wearing comfortable clothing?

Do you have enough blankets/pillows to be warm and comfortable?

Do you have any snacks like fruit or chips or muesli bars in case you can’t get up to make a meal?

Are you able to change positions in bed (or sit up if you’re able)?

Do you have any regulation tools like fidgets, ear plugs, or journaling/art books or low energy hobbies you might want?

Are you being gentle and patient with yourself and your body today?

Thanks for doing this check in with me. I like to have some of these things prepared on my nightstand, or all together in the same space in my room so I don’t have to do as much work on low energy days. It can also help to have someone else prepare or get these things for you if you’re unable. Hope you have an uncomplicated day.

I came out as nonbinary to my best friend last week and it went great. Which I was expecting but that didn't stop me from crying, shaking and needing her to talk me down from an almost panic attack. I had never said anything out loud to anyone, so I was expecting some sort of a reaction.

When I told her, she smiled in the most reassuring way and I asked if she already knew. She said she didn't want to assume anything or pressure me to talk about it before I was ready, so she had been waiting for me to say something. But she had come across some pronoun pins a couple of weeks earlier and she wanted to buy some that said "they/them" for me but she didn't want to pressure me so she didn't buy them. I honestly love that she knew. And that she instinctively knew which pronouns I prefer. Anyway, it's been really nice to be able to talk about it. I've had weird gender feelings for about 10ish years now and only started thinking I might be nonbinary a couple years ago. Before I just did everything to not think about it. But yeah, I'm nonbinary;)

pain and suffering are not things you earn or deserve. they’re just things that happen, often with no rhyme or reason.

you do not deserve to be in pain.

you do not deserve to suffer.

I hope your pain subsides, and that you find good pain management strategies. and I hope you treat yourself with the kindness and compassion that you do deserve

Why Does Fibromyalgia Weaken the Immune System? - Southern Pain and Neurological

Southern Pain and Neurological

Why Does Fibromyalgia Weaken the Immune System? - Southern Pain and Neurological

Various reports have proven that fibromyalgia does indeed weaken our immune system and raise levels of white blood cells.

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Firstly, studies have shown that fibromyalgia patients tend to have high counts of white blood cells and cytokines (immune cells), which is often observed when a patient is suffering from an infection. This in itself shows that this condition affects an individual’s immune system.

Similarly, further studies show that this disorder weakens our brain’s immune system. It does this by reducing the blood flow in the brain’s pain center, hence affecting the neuron receptors. This eventually leads to increased pain and stress levels and a weak immune system that is incapable of fighting off bacteria.

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cureus.com

The Influence of Pro-inflammatory Cytokines and Genetic Variants in the Development of Fibromyalgia: A Traditional Review

Fibromyalgia is a complex syndrome characterized by widespread chronic pain, without any obvious etiology, and it is often accompanied by a

Cerebral Palsy also causes cytokine dysgregulation. Did you know that? I just learned. How am I not dead?

sciencedirect.com

The association between proinflammatory cytokine polymorphisms and cerebral palsy in very preterm infants

Cerebral palsy (CP) is a nonprogressive motor disorder caused by white matter damage in the developing brain and is often accompanied with c

https://onlinelibrary.wiley.com/doi/10.1111/dmcn.14724

Can't believe it took me 8 years to realise that the random pain I get in half of my face for a couple of days to a week every other month is a migraine...

I always thought it didn't matter bc it's not every day like my fibro pain

reblog if you want anonymous opinions of you

"love is love" until it doesn't include sex

"love is love" until it lives in separate beds

"love is love" until it is queer platonic

"love is love" until it does not comply with compulsory sexuality and amatonormativity

love IS love, for aspecs, for sex repulsed folk and for platonic relationships

"love is love" apply to more than same-sex relationships in a world where romantic and sexual relationships are considered more valuable

Remember to advocate for Asexuals and Aromantics this pride. Because we are also here, and we are also queer

normal vs not normal: pain edition

normal: your knees/hips starting to twinge after climbing a big set of stairs

not normal: climbing stairs is hard for you, and you start to feel pain after a couple steps

normal: you wake up feeling pain after doing a lot of exercise the day before

not normal: you wake up feeling pain regardless of your activities the day before

normal: you are usually a zero on the pain scale

not normal: you cannot imagine what a pain scale zero would feel like

normal: when you experience pain, there is a direct reason for it, and it is able to be fixed with over-the-counter drugs (such as paracetamol)

not normal: you can’t figure out why you’re in pain, and taking over-the-counter painkillers doesn’t always work to fix it

normal: you do not spend most of your time in pain

not normal: you’ve spent most of your time in pain for over three months

if you experience pain regularly and for seemingly no reason, go to the doctor! you are not supposed to be in pain, and you deserve to find out what’s going on with your body!

you will live and you will say the wrong things and make mistakes and people will love you anyways.

I forgot about this post. But I did it @wittlepuppydog. I didn't shave my head completely, I just got a short hairstyle instead. It was about 5 months ago now and I absolutely love it. It has made the pain considerably more bearable as hair is no longer brushing against my face constantly, and I no longer have to tie it up to get it out of the way (which also hurts).

Honestly, it's not even just about the pain. I feel more like me. I recognise myself in the mirror. I like my hair, I like my face - something I could never comfortably say before. It feels like my pain gave me a gift. I never thought I would say something like that about my chronic pain. But yeah, it has helped and I have never felt more like myself than I do now.

And people's reactions and their staring honestly haven't faced me. I don't care about it anymore. Also, it's hard to say whether they're staring bc of the hair or bc I'm young and disabled and walking with a cane.

Thought I'd add some pictures for reference;)

I've been considering shaving my head because of the pain. It's still constant and my hair makes it worse. Is it stupid? Will I regret it? Will I feel like I'm "giving in" to the pain? Does that even make sense? I'm tired of feeling like I have no control over the pain. And this feels like a way I can maybe at least not hurt myself more and gain a little control back? I don't know. I'm tired