It's A Really Weird Moment, Going To A 2nd Opinion Doctor At A Big University Hospital And Being Told

It's a really weird moment, going to a 2nd opinion doctor at a big university hospital and being told "your doctor is right, there's nothing else we can do for you besides remove your colon and reconstruct your pelvic floor surgically."

Moment of silence for my asshole. RIP

More Posts from Dissociatedbi and Others

2 years ago

After a year of trialing other injectable migraine treatments that barely worked because our insurance company changed the formulary- my appeal was FINALLY approved & I get to go back on the medication that actually helped!!! Never in my life have I been more excited to stab myself in the stomach, lol.


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2 years ago

So I'm reblogging this from a fandom person I follow but it's on brand for the shit I post so, hello! I have OSDD and CPTSD (both of those disorders have a HUGE amount of symptom overlap and are caused by severe, prolonged trauma). I have different types of flashbacks, triggered by different things, so I'll try to organize my answer below but please be aware that my answers might be triggering especially for anyone who has experienced childhood sexual abuse and/or child trafficking. These terms are just what I use to discuss them with my therapist, so idk if they are official terms or not.

• Tactile flashbacks, also called tactile hallucinations

In these, I am entirely aware of where and when I am, but I feel sensations that were occurring during my trauma. It's usually triggered by experiencing pain from old injuries. For specifically (TW!!!!), I occasionally get nerve pain in my vulva from an injury where I was penetrated with an object and it damaged my cervix severely. Sometimes that nerve pain triggers a tactile flashbacks, where I can feel hands and the object touching me exactly the way it felt when it was really happening. It is so realistic that the first few times it happened, part of me was shocked that I wasn't bleeding or hadn't sat on a knife or some weird shit. It makes it feel like I don't even have pants on. It's fucking disorienting and PAINFUL and scary.

I've spent years training myself to show it as little as possible if it happens in public, because it's not the kind of thing that's easily explainable. But the added stress of hiding it triggers me even more- because hiding was an important job I did to cover up for my abusers, so hiding pain is both instinctual and triggering now- that it kind of just makes it worse. So if I'm around someone, they might see me grimace or shift on my chair a bit, I've also heard that I get pretty pale, but I almost always lie and make up an excuse like cramps, which people tend to believe.

But in reality it's horrific and once I'm in privacy, I am pretty useless for the rest of the day unless I have a close friend or my husband around to help me stay grounded and get back on track.

•Emotional flashbacks

This happens a lot when I'm triggered by an everyday normal occurrence that in normal life, is totally fine, but in my past was something I used to know whether or not I was in danger. Probably the most annoying one is the sound of dishes clanging as someone puts them away. If that happened in my childhood, it meant I hadn't put away the dishes in time, and would be punished (but not grounded because my parents were fucking monsters- punishment for me was things like being locked in very small spaces, being forced to braid my hair in high pigtails and hairspray it and go to school looking stupid, not getting food for a few days, having things thrown at me, sometimes the dishes themselves being physically broken on me).

So imagine what a child's emotions might be, knowing they're about to undergo a severe punishment- fear, regret, remorse, defence, desperation- and then transplant all of those emotions into my 32 year old body. It makes me have some wacky ass responses to my husband putting away the clean dishes. I've spent YEARS working on it but we've been together since I was 19, and just last year I got to the point where I could let him put dishes away without me actually yelling at him, or apologizing, or crying. Thank god for therapy.

Emotional flashbacks can really have drastic, immediate control over my behavior, which makes them pretty dangerous when it's not a situation as innocuous as putting away dishes. It's very hard for me to control what I say and do during these episodes, and it's one of the reasons I was diagnosed with OSDD, because my therapist thinks that when I have emotional flashbacks, I dissociate and another part of my personality kind of takes over. And it really is a dramatic personality shift. Still a part of me, but a much younger version. I used to have total amnesia of these episodes and only knew they were happening because my husband would explain them to me. Now I manage to stay conscious (sometimes called co-conscious by people in the OSDD/DID communities) but still have partial amnesia. It makes it very difficult for me to understand what someone is saying to me long enough to formulate a response that makes sense. It's horrible and really challenging to hide or control.

•Visual/dissociated flashbacks

These have only ever been triggered by sex, and they're very similar to the way flashbacks are portrayed in the media, like in movies. Either all or most of my visual field changes from the current situation to a traumatic sexual abuse memory. I completely dissociate, have no idea where I am or what's happening, but the difference from this and movies is that even within the memory, I don't understand what's happening. I don't go into it with my knowledge of what's happening and 15 years of therapy, I'm right back in the exact mindset I was when it was happening, just with the added idea that something is very wrong. Sometimes it feels like I'm asleep in a nightmare, sometimes it feels like I'm literally living it. They don't last more than maybe 30 seconds or so, and my husband tells me that he knows it's happening because my eyes get really wide, I go totally limp, and don't respond except in a way that's similar to how people might talk in their sleep. Once I come out of it, it's straight to having a panic attack, which as you can imagine is kind of awkward when you're in the middle of trying to fuck your partner. My husband is amazing about it all, but when we first got together it scared the shit out of both of us.

•Some other notes: I often try to ground myself so that I don't dissociate during or after a flashback, but for years the only way I knew to ground myself involved pain. I eventually tried to switch to methods that would hurt but not injure me (pinching the skin between my fingers, punching my thighs). But now I do grounding in a way that doesn't hurt myself- or at least I try to. I talk to myself, out loud, to remind myself where I am, what year it is, what's happening, etc. I do breathing exercises, sing loudly, try to hold a conversation. All of those things can help me stay in the present moment. Unfortunately they don't always work, but hey ya can't win 'em all.

@z-mizcellaneous-z I know that's a LOT but lemme know if you have questions or want any more details/info! I'm happy to share!

Call for People who Have First Hand Experience with PTSD

(Part of The Research Game, question by @z-mizcellaneous-z)

We are wondering if anyone who has first-hand experience can share with us what PTSD flashbacks look or feel like to you, as well as what it might look like from the outside perspective (such as witnessed by friends/strangers).

(please only share if you're comfortable. You can also send me an anonymous ask instead!)

Everyone else, reblog this around until we can find someone who has the answer!

(Otherwise, there's a Youtube channel I know of that aims to spread awareness of PTSD and may help you here: https://youtu.be/vdLfrJSzMY8, though it's important to note she has Complex PTSD, which is slightly different and is characterized by prolonged trauma rather than a single event)


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8 months ago

I know it’s hard but try to resist the urge to say “it’s okay” or “I’m okay” when it’s not true to those you’d like support from.

Try saying things like:

“I’m not okay. I could use some support right now.”

“I’m not okay. Unfortunately, you can’t fix this for me. But I could use the company of a friend.”

“I’m not okay. But I’m not up to talking about it right now. Can we do something else to distract me?”

Often, your loved ones want to help you but they don’t know how.

It’s okay to say you’re not okay. And it’s okay to ask for help.

2 years ago

Just. For the record, for anyone worried after seeing that post; Traumadumping on the first day of therapy is like. A good therapist’s dream. Like they WANT you to spill out your problems so they can help you work through them. When you only have an hour with someone once a month it is a Godsend for them to be able to just. Say whats hurting them right off the bat. The biggest problem I had at therapy was I became so conditioned to not talk about my issues that nothing was able to get done. So please, ‘traumadump’ to your therapist. Its what they’re paid for. They are trained to decompress, you don’t have to worry about them.

3 months ago

are you five nights at fucking kidding me

2 years ago
My Heart Aches For Our Community And What We've All Been Facing Lately. Please Hang In There, Everybody.

My heart aches for our community and what we've all been facing lately. Please hang in there, everybody.


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9 months ago

Recently I keep thinking about how I wasn't allowed to clean myself properly as a child. My mother was obsessed with ridiculing me for my general hygiene making her look bad, but didn't allow me to condition my hair or moisturize my face or use soap on certain areas of my body. Like why? If you're so obsessed with how I look, why are you trying to make me look bad?


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2 years ago

another thing that people are clearly having a bit of trouble wrapping their heads around is the concept of objecting to the terms in which something is criticised, and how that does not necessarily equate to defending that thing.

some people tend to like to reduce things to "pro" or "anti," and any attempt to delineate a position more nuanced than that will still be immediately assigned by them to one of those two "camps"

2 years ago

How abuse affects your friendships and relationships

Friendships/relationships

Abusive childhood teaches you to stay in abusive relationships

Children of abusive parents are more likely to tolerate abusive friends

Abuse will make toxic friendship feels normal.

Abusive parents teach us to chase people whose love we think we can ‘earn’ or obtain by removing boundaries and suffering more abuse.

Abuse can trick you into believing you have to love people unconditionally even if they abuse you.

Abusive fails to teach you the signs of an abusive relationship.

Abuse makes us scrutinize our own actions and behaviours, but never others’.

Abuse will make you completely disregard subtle red flags in friendships.

Long term neglect can make us long for any kind of attention

Neglect makes us extra vulnerable to Love Bombing and Mirroring

Abuse makes us vulnerable to Future Faking.

Abuse makes us tolerate more pain than anyone normally would tolerate in a friendship/relationship.

Abuse can teach us that neglect, lack of positive attention and engagement, lack of consideration for our needs and wants, is normal and acceptable in our friendships and relationships, leading us to tolerate it.

Living in abuse and using fantasy and idealism to endure the reality, will encourage the development of Magical Thinking in adulthood.

Abuse makes us emotionally vulnerable to grooming, and likely to bond with groomers.

Abuse makes it impossible to notice the signs of an abusive relationship.

Abuse can groom you to accept and tolerate abuse from others.

Sense of self

Neglect causes low self esteem.

Abuse greatly amplifies the human fear of being unlovable, unwanted and dying alone.

Being raised in abuse can make you feel like you’re 'not normal’ and make it difficult to relate to people.

Abuse can make you feel like you’re a constant inconvenience and always left out.

Abuse forces you to keep secrets that alienate you from friendships or feeling like a part of community

Abuse in isolation makes us feel like the world abandoned us.  

Attachment disorders

Abuse can lead to intense, over-attached, idealized, unstable, disorganized, or detached and fragile attachments as opposed to stable and healthy ones with boundaries and realistic expectations.

Neglect can cause abandonment issues, which then cause intense stress, anxiety, insecurity, and overall traumatic response to a break of a friendship/relationship

Neglect can cause craving of being ‘taken care of’ or ‘being the caretaker’ rather than pursuing equal and completely mutual relationships

Abuse can lead you to bond intensely with a 'favourite person’ which puts you into a position where you can easily be groomed or exploited, and unable to get out of it.

Abuse leads into idealizing people who show us even the minimum of kindness.

Abuse can make us crave ‘feeling important’ even from abusers

Parentification

Parentification teaches you to take care of other people as a Survival Strategy

Abusive parents can set you up to live as a resource to others

Abuse teaches you to keep your pain secret while tearing yourself apart to care for other’s pain.

Socializing

Abuse starves us out of conversation, touch, gentleness, community, and it can be painful to introduce ourselves (back) to it.

Abuse makes casual socializing anxiety-inducing and frightening.

Social abuse can invoke social anxiety.

Abuse can make attention feel dangerous.

Abusive parents can sabotage you socially, making your real entrance into social life only after you get away from them, and by that time you’ve missed out on valuable development of social skills and you’re starting with a disadvantage

Suffering the pain of abuse alone can make you feel like isolating yourself and being away from people is the only safe way to exist.

Suffering long-term abuse can make you intensely doubt people’s intentions (and sometimes you might be right).

Abuse can make any criticism in a social situation extremely painful and triggering for us

Abuse can create strict double standards for how we’re allowed to live and feel, and what others are allowed.

Intimacy and closeness will trigger emotional flashbacks, painful memories and personal crisis, making you unwilling to try and be close to people.

Long term abuse makes it painful for us to receive or accept comfort.

Abuse can make us feel indebted for comfort.

Abuse makes us feel like we’re craving abuse when we’re only craving comfort

Abuse makes us look for positive attention in non-effective or dangerous ways.

Abuse can make you blame yourself for any social interaction that hurts you.

Abuse makes us dismiss our own discomfort with others.


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dissociatedbi - this blog is my therapist's idea
this blog is my therapist's idea

33. she/her. disabled. did & cptsd. sex trafficking survivor. posts might be triggering.

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