Doctors Hate Her! This Woman Is Experiencing Symptoms That Might Point To A Health Problem And Wants

Sometimes it feels like i am already dead. Not part of anyones life anymore. Locked up in my flat. Just a liability for my parents who dont even like me. Like a ghost who is damned to haunt this room, but still has pain and wifi.

Sometimes, I still feel so able bodied.

Like the aches and pains are quiet for just a moment long enough for me to remember what freedom I used to have. It's almost like if I yearn for it hard enough, I can have the old me back. The me that could still achieve all my dreams. The me that had no idea what was coming and how much it would all cost me.

Somedays, I still feel the urge to live the way I could before. Carefree and boundless. God, I can almost taste it.

Had an appointment with my neurologist today. Guess who went there with a stupid spark of hope to be taken seriosly this time and ended up crying ugly in the parking lot 🙃🙃

different than what I usually post but I'm mentally so so tired and in a ranting mood lol

able bodied people doing things that aren't ideal for their health is so normalized, but when disabled people do it it's wrong or worse somehow?? are disabled people not allowed to be human sometimes??? "isn't that bad for XYZ?" "didn't you say you shouldn't XYZ?" "i thought people with XYZ shouldn't-" I'M AWARE!! I DID NOT ASK!! im not a toddler that you have to remind to eat their veggies or not to stand too close to the tv, im a grown ass adult. ive been living with my disability and chronic illnesses as long as i can remember. sometimes i don't wear my braces when i should, or drink more alcohol than i should, or have caffeine, or do things that I KNOW could trigger flares or seizure or some other issue my body feels like being a bitch about. im fucking human. im allowed to do things that make me happy even if it's not the best for me, just like anyone else. let me live, christ.

what if ablebodied people believed disabled people when they said stuff exhausts/hurts them, even if said ablebodied people didnt understand or couldnt relate. lol

You don't owe anyone an explanation of your condition/disability, how or when it started, what meds you take, what tests you've undergone, or literally anything about your health!

It doesn't matter if it's a stranger, a friend, or a relative.

It's your life and you have a right to privacy.

Don't let them guilt you into answering invasive questions.

I was outside today! For the first time in weeks except medical appointments. Went for a very short walk. It was great, but i'll probably have to pay for it and also i'm more sad now than i was before. The distance between where im at and where i would like to be is just too big.

Disabled people are not obligated to do everything that a non-disabled person can do. Stop treating us as though our bodies are the same. What you do normally can be detrimental and dangerous to us.

like yeah. you're not a bad person just because you're disabled. but also you're not a good person for being abled. you're not a good person for being abled. it doesn't make you better than disabled people. you're not a good person for being abled. internalise it. it's not a reward. you did nothing to deserve this - because health is not something that people "deserve" or don't. it's something they have or not, for any number of reasons