My Controversial Opinion Is That I Think Chronically Ill People Should Be Able To Fight One Doctor A

need to sleep 30 hours and then .. sleep 50 hours after that

Video captions: And stop trying to show your ex what they missed out on! Stop trying to teach your family a lesson for not believing in you! Stop trying to shit on your haters! Do it for you! Do it because you deserve it! Do it for YOU! Water your dreams with love! Don’t put no hate and resentment, and try to — “oh Imma fucking show them, Imma show” — FUCK THEM! Fuck them, do it for you! They don’t matter! They NEVER mattered.

one of the guys in the kitchen at work got called irritating and replied “I am not irritating. You just find me irritating. There are many people who love me.” I think we should all adopt his attitude

If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"

A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade

Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options

Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile

Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it

Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.

Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks

If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho

Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust

A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight

If they have a service animal, an accessory for their vest/leash/collar could be nice

One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing

A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao

If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too

More than anything, listening to what they want and need is a bigger gift than most think

If you're a disabled young person, you've most likely been hit with the "pfft you think you're in pain now? Just wait til you're my age" bullshit from older people at least once. Everyone talks about how invalidating it is

But I haven't seen anybody mention how it's terrifying, too. Yes, I know health deteriorates with age. I know that old age is a disability unto itself. I know that the healthiest person alive will start getting aches and pains past the age of 40 and may even need mobility aids

I know all this stuff. And it always makes me think "yeah, if I can't walk without joint pain even while using mobility aids AT AGE 21, how painful will life be for me at the age where it gets painful for everyone?"

And it's hard not to feel like I'm doomed, y'know? Where most people get a period of health that they wish they appreciated more when they start to lose it, my starting point was a body that doesn't work properly and it's only gonna get worse from there. It's worse every fucking year.

TLDR stop telling disabled young people that their pain will only get worse to the point of being unimaginable as they age, WE FUCKING KNOW

see the THING IS I don't feel like I ever worked hard enough to have "earned" the burnout, which is. probably how we got here.

Best things about being disabled:

Not necessarily being in a flare up, but it’s been two weeks of things not being right and each day you lose more hope that it’ll ever be okay again

All food and drinks are making you sick, even water churns your stomach

The weather can make your writhe in pain

Not being able to do anything, watching TV is exhausting, even scrolling on your phone requires a modicum of attention

Sitting upright is painful

Lying down is painful

Keeping your eyes open is effort

Wishing you could be the old you, the healthy you

Like a half hour after taking pain relief meds: oh actually it doesnt hurt anymore i probably didnt even need to take those