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ablebodied ppl will be like “i know you’re in constant excruciating pain but why are u so grumpy” and not hear themselves

i cant donate so im reblogging , i wish you luck!!

i’m sorry that i’m spamming this but i really want that wheelchair asap, im in so much pain rn and i’ve been dreaming about having that chair for three nights in a row!!! crazy.

i’m so grateful and thankful over all the donations and support i’ve gotten, and we’re like. halfway there!!!!! it’s only been a few days it’s so crazy to me how many people chose to support me, it’s really making me emotional. thank you so very much.

everything helps, donations and reblogging/sharing the gofundme link helps me immensely, and i would really appreciate if you could donate if you are financially able to, and if not, just reblog!!<3

again, thank you so much.

gofundme.com

please help me get a wheelchair!, organized by Leo Noren

hey, my name is Leo and i am almost 24 years old. i have been dealing with chronic pain fo… Leo Noren needs your support for please help me

i am rebloging this because its so so annoying when ppl don't understand that it affects my entire LIFE.

"Not everything is about your autism."

Actually it is. My autism effects:

How I see the world, including light sensitivity

How I interact with the world, including difficulties with social interaction, speech difficulties and processing disorders

How I feel the world around me, including hyposensitivity or hypersensitivity to temperature, pain, or stimuli as well as proprioception which can make it difficult for me to physically navigate the world

How I feel my body, including interoception which can lead to missed meals, dehydration, and even urinary urgency (which is a problem just by itself) because I don't notice the signals my body gives

How I relate to those around me, due to my alexithymia, so often I feel nothing or can not work through the bodily sensations that indicate emotions.

How I cope with the world, including needing to stim, escape noises others may not hear, or requiring accommodations to help me survive an "average" day

How I rest after a normal day, including delayed sleep onset, reduced melatonin and increased cortisol, making getting to sleep a 2 hour long endeavour and staying asleep a task unto itself

So yes.

This is all about my autism.

(Tw for a VERY brief mention of infantilization)

I want to talk about interacting with AAC users in person, specifically for speaking people.

1. Being an AAC user, I get left behind during conversations a lot because it takes me longer to add in my statement. By the time I'm done, the topic has oftentimes changed and then what I want to say isnt relevant anymore, and sometimes wont even be understood because to everyone else what I just said was out of place and random. This feels really frustrating and sometimes isolating, as well as embarrassing. Please wait for us, we want to converse too.

2. Sometimes when I am not yet done responding, people will watch me and try to guess what I'm going to say. If all I've got down so far is "I already", people might go "I already.. know!" "I already.. saw!" etc. Please stop doing that. Even if you got the idea correct, you might use the wrong words, which frustrates me. And even if you say it all correctly it's still frustrating, imagine if someone tried to guess what you were saying by interrupting you every time you started to talk. It's annoying.

3. Dont comment on what in our folders. If I open a folder to get to another word, and whilst doing that you see a different word in it that's funny or inappropriate or whatever, keep it to yourself. Its annoying. You have acsess to those words, and it isnt treated as weird, so why is it for me?

4. Don't infantilize us. We aren't perpetually children. We are our age. Treat us as if we are a speaking person of our age.

PEOPLE WITH GASTROPARESIS I NEED YOUR HELP

I think i have gastroparesis but im not sure how to bring up my symptoms to my doctor, and im not sure if im looking into the right think, i show all the common symptoms, but i just want to hear others experience, anything helps, thank you.

discuss

I love sun-spider.

I fucking love sun-spider. Before I learned of sun-spider, I never knew ANY E.D.S representation, i was diagnosed last year, and now i am up at almost, 3am crying over the fact that sun-spider exists, ive known for a bit over a week now, and i just, i love them so much

THIS IS A VENT !!!!!!!!

I am so upset, a SUB is treating me better than my normal gym teacher, I am disabled and I told him that and he didn't even try to make me do any of it, when my normal gym teacher does. its just so stupid. anyways vent over just a bit upset

i love u fat cripples, use any mobility aid u need and don’t give a fuck about fatphobic ableists.

we are not just fat and lazy for using mobility aids, we are simply fat and crippled. and we deserve the mobility aids we need.

[this is about fat physically disabled ppl. do not derail.]

disability pride ask game

I'm so sleepy but I have persisted anyway bc i am so brave

feel free to reblog, try and send an ask to the person you're reblogging from so the game doesn't die, and absolutely never be pressured to answer anything that feels too personal--this is about/inspiration for what you Want to share about disability and experiences being disabled, not what you feel like you have to! (also: this ask game is PRO SELF DX.)

what disability/ies do you have? (and are they mental, physical, or both?)

how long have you known you're disabled? does that match up with diagnosis?

what, if any, disability aids do you use? (mobility aids, sensory aids, braces, communicative devices, IVs, etc. meds also count here). do you customize them/their containers/outsides?

do you know any disabled people irl? what about online?

if you have multiple disabilities: do they affect each other? how?

what's something good that's come out of being disabled?

what's a struggle you wish more people talked about?

does your disability affect how you experience other parts of your identity? (gender, queerness, culture, even hobbies/life goals you're very passionate about)

how do you measure your energy? (spoons, battery, something else?)

whats something youve come up with or integrated into your life that makes disability easier, besides typical aids?

how would you label your support needs?

what's something (a struggle, a symptom, a weird phenomenon, or even a funny experience) people don't realize about your disability?

whats the most Abled Person Thing someone has said to you?

has there ever been a time where you felt solidarity/community with another disabled person in a situation with you?

what does disability pride mean to you?

free space to talk about whatever disability issue or experience you want !